Asociaciones Nacionales de Distrofia o
de Enfermedades Neuro Musculares
De Australia MDA of Australia GPO Box 9932 Melbourne 3001 Australia Freecall 1 800 800 284 Ph : 61 3 9370 0477 Fax : 61 3 9370 0393 Boris M Struk Executive Director http://www.mda.org.au
bms@webnet.com.au De Australia del Sur MDA of South Australia The Muscular Dystrophy Association of South Australia Inc GPO Box 414 ADELAIDE SA 5001 Australia tel +61 8 82345266 fax +61 8 82345866 http://www.mdasa.org.au
email info@mdasa.org.au De Estados Unidos MDA OF USA - MUSCULAR DYSTROPHY ASSOCIATION - USA National Headquarters 3300 East Sunrise Drive Tucson, Arizona 85718 http://www.mdausa.org
mda@mdausa.org, experts@mdausa.org De Canadá MDA of Canada NATIONAL OFFICE 2345 Yonge Street, Suite 900 Toronto, Ontario M4P 2E5 (416)488-0030; Fax(416)488-7523 (800)567-2873 http://www.mdac.ca
Email: info@mdac.ca De Holanda MDA of The Netherlands Vereniging Spierziekten Nederland - VSN Dutch Association for Neuromuscular Diseases Lt. gen. van Heutszlaan 6 3743 JN Baarn The Netherlands tel: 31 35-5480480/fax:31 35-5480491 http://www.vsn.nl http://www.vsn.nl/english/index.php Email: vsn@vsn.nl De Francia Association Francaise Contre Les Myopathies (AFM) 13, Place de Rungis 75013, Paris FRANCE 33-1-45-65-13-00 http://www.afm-france.org/ http://www.telethon.fr
De Gran Bretaña (Reino Unido) Muscular Dystrophy Group of Great Britain and Northern Ireland (MDGGB) MDA UK http://www.sonnet.co.uk/rupert
Muscular Dystrophy Campaign http://www.muscular-dystrophy.org/
De Irlanda Muscular Dystrophy Ireland http://www.mdi.ie/
De Italia
Unione Italiana Lotta alla Distrofia Muscolare
http://www.uildm.org/
http://andi.casaccia.enea.it/andi/UILDM/home.htm
http://www.telethon.it/
De Austria Austrian Muscular Dystrophy Society http://www.neuro.akh-wien.ac.at/muskel/page1.htm
De Polonia Polish Neuromuscular Association http://www.idn.pol.pl/tzchm/
De Suiza Schweizerische Stiftung für die Erforschung der Muskelkrankheiten De Dinamarca Muskelsvindfonden De Alemania Deutsche Gesellschat für Muskelkranke