Instituciones vinculadas a la Distrofia Muscular
y otros desórdenes neuromusculares -DNM
AMERICAN ASSOCIATION FOR WORLD HEALTH 1129 20th St., NW, Suite 400 Washington, DC 20036 (202) 466-5883 REHABILITATION INTERNATIONAL 25 East 21st Street New York, NY 10010 INSTITUCIONES QUE BRINDAN INFORMACION SOBRE DNM The Washington University School of Medicine, St Louis http://www.neuro.wustl.edu/neuromuscular/index.html
The Human gene Mutation Database, Institute of Medical Genetics, Cardiff http://www.cf.ac.uk/uwcm/mg/hgmd0.html
National Center for Biotechnology Information, Bethesda http://www3.ncbi.nlm.gov/
The American Academy of Neurology http://www.aan.com
Research and Training Center for Neuromuscular Diseases http://medpmr.ucdavis.edu/
The Foundation for Gene and Cell Therapy http://www.uwo.ca/biochem/DMD/
Jesse's Journey for Gene and Cell Therapy http://www.uwo.ca/biochem/DMD/Jesse.html
Go MCA Info http://www.ultranet.com/~smith/GoMDAInfo.html
INSTITUCIONES DE DNM ESPECIALIZADOS ALS/MND International Alliance of ALS/MND Associations http://www.alsmndalliance.org
ALS Society of Canada http://www.als.ca/
INTERNATIONAL INFORMATION EXCHANGE FOR MND/ALS ASSOCIATIONS P.O. Box 246 Northampton NNI 2PR UNITED KINGDOM ATAXIAS European Federation of hereditary ataxias http://www.vsn.nl/euroataxia/index.htm
National Ataxia Foundation http://www.ataxia.org/
OTRAS Acid Maltase Deficiency Association, USA http://members.aol.com/amdapage/index.htm
CMTnet: Charcot-Marie-Tooth Disease Information Exchange http://www.ultranet.com/~smith/CMTnet.html
European Consortium on Chronic Respiratory Insufficiency http://www.vsn.nl/eccri/eccri/home.htm