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Comments:
one of my twins has the same name eliana-
my pretty single sis name is jan-i loved the page what are names mean.is their a website to find out what your hebrew namr means ?
Mendel Novack - 12/20/99 02:24:47
Comments:
Michelle Dilger - 12/16/99 22:42:22
My Email:richard.dilger@virgin.net
Where are you from: England
How do I know you: We're old friends
Comments:
I really enjoyed reading your stores and looking at your photos. Although I haven't met your family I feel like a know them a little already.
Keep on touch, Love Michelle
P.S. Ellie's story is fascinating and shows what dedication and not taking no for an answer can do.
Grace whitaker - 12/14/99 00:33:10
My Email:peach.brat@worldnet.att.net
Where are you from: Georgia
How do I know you: Chat AKA: 018999
Comments:
wow thats so cute! i ahev to make one also ! tead its me 018999! cute!
Ian Brayshaw - 11/27/99 21:29:00
My Email:icb@quista.net
Where are you from: England
How do I know you: web site visited
Comments:
thanks very much, we have a 3 year old daughter with West syndrome
Eliana - 11/25/99 13:07:47
How do I know you: I'm your daughter
Comments:
do you have photos of animals ? ifyou do give them to me.
Pam - 11/22/99 23:49:00
My URL:http://geocities.datacellar.net/Heartland/Plains/5214
My Email:fanofpern@aol.com
Where are you from: Gainesville, FL (home of the Fighting Gators!
How do I know you: PS's Jewish Family Life & PP's Jewish Families
Comments:
I wish I could remember my Geocities password to update my page! But even if I could, it wouldn't match this one. Beautiful page, even more beautiful family Jan.
Healthy preganancy, easy labor and birth. See you on the message boards!
Pam a/k/a/ Ani Eema
Carla Engel - 11/16/99 19:41:00
My Email:struttercarla@prodigy.net
Where are you from: Belleville, IL
How do I know you: you don't
Comments:
I am an Early Intervention Private Provider who is a case manager for an infant suffering from infantile spasms. I was just trying to learn all I can about the illness so I can better fascilitate the infant's progress.
Your web page was highly informative and interesting.
Thank You,
Carla E. Engel
Rebecca Baranski - 11/16/99 04:57:47
Where are you from: Michigan
Comments:
Your story fills me with hope. My son was diagnosed with infantile spasms when he was 5 months old. He is now 19 months and doing wonderful. He has physical and occupational therapy and is learning sign language. I long for the day when he brings home
math problems and I don't have to worry anymore.
Rebecca Baranski - 11/16/99 04:53:01
Comments:
Rebecca Baranski - 11/16/99 04:53:01
Comments:
heyman sharon & tamir - 11/06/99 13:10:28
My Email:tel -09 878 4313
Where are you from: israel
Comments:
אני אכתוב בעברית כי זה יותר קל לנו.
אנחנו מקווים שאתם יודעים לקרוא עברית, כפי ש&#
492;בנו משיר הנושא של האתר.
הסיפור מדהים מחזק ומעורר תקווה ועל כך תודת
97;נו לכם .
חיזקו ואימצו וצרו קשר בהמשך.
שלום
Debbie - 11/03/99 21:40:06
Where are you from: London
How do I know you: I'm your cousin
Comments:
Hi, great page! Nice to see how you're all getting along and you're all growing so fast!!! Take care and hopefully you'll be coming over to the UK soon so I can see you all. Lots of love. xx
Polly and Esther Fleagleman - 10/25/99 08:59:50
My URL:http://www.gurlpages.com/nolabel/cookie4/fleagleman.html
My Email:fleagleman@hotmail.com
Where are you from: New York
How do I know you: You visited our website
Comments:
What a lovely family.
Thanks for visiting us.
Nice to know we have lansmen in too!
Anice Browning - 10/16/99 02:51:24
My URL:http://centex.net
My Email:lmr@centex.net
Where are you from: Goldthwaite, Tx.
How do I know you: you don't
Comments:
My granddaughter has infantile spasms. Hers is from brain damage from meningitis when she was 3 wks. old. The doctors say she might out grow them. She doesn't have them as often as she use to, maybe 3 or 4 a day now. She is truly our little miracle. My em
il is Little Miracle Ranch for her.
Anice Browning - 10/16/99 02:31:38
My URL:http://centex.net
My Email:lmr@centex.net
Where are you from: Goldthwaite, Tx.
How do I know you: you don't
Comments:
My granddaughter has infantile spasms. Hers is from brain damage from meningitis when she was 3 wks. old. The doctors say she might out grow them. She doesn't have them as often as she use to, maybe 3 or 4 a day now.
anna mae - 10/12/99 04:38:08
Where are you from: tx
How do I know you: surfed on
Comments:
beautiful family and loved that song
- 10/10/99 08:13:45
Comments:
Very inspiring information - we have just started the journey and hope that it is shorter and less traumatic
nicole - 10/05/99 23:27:56
Where are you from: Oklahoma
Comments:
I was going through all the IS sites I could find...and found your beautiful daughter. Her smiling face gives hope to many parents,I'm sure!
She really is a miracle...and smart too! Wonderfully done page also
Yvette - 09/30/99 13:42:11
My URL:http://www.mymk.com/ybrunson
My Email:fe-mail@home.com
Where are you from: Baton Rouge
How do I know you: from "only child" Board
Comments:
I really like your web page! Just wanted to say "Hi" from Baton Rouge. Did it take long to set your page up? It seems like it would take me MONTHS of work. I like the music too. I'll be starting my own in a few weeks - we'll see how that goes :)
Thanks for the info!
brenda bailey - 09/29/99 00:45:01
My Email:bbailey@terraworld.net
Where are you from: Fort Scott, Kansas
Comments:
I am researching West Syndrome due to a case I am seeing in my Home Health practice. Information is very hard to come by. Thanks for your web site.
Susan - 09/22/99 20:34:41
My URL:http://home.att.net/~dallet/
My Email:dallet6@hotmail.com
Where are you from: washington
How do I know you: parentsplace
Comments:
great site! Please come and visit our page!
- 09/18/99 01:22:59
Comments:
Debbie Bradley - 09/16/99 00:49:02
My Email:Bradcol5@aol.com
Where are you from: Oklahoma City
How do I know you: Pediatric Occupational Therapist
Comments:
Thanks for your web page. I was doing some research for alternative therapies and information for the families for some of the children I see each week for early intervention therapy. Your page is great!
Alice Roberts - 09/12/99 02:15:19
My Email:vicentia@aol.com
Where are you from: Texas
Comments:
My grandson is six mos old. Has infantile spasms.
DEBBIE - 09/08/99 16:52:34
My Email:domi071297@aol.com
Where are you from: FLORIDA
How do I know you: SAW YOUR WEB PAGE
Comments:
LOVED READING ABOUT YOUR DAUGHTER ELIANA.
TOLD HER STORY TO EVERYONE I KNOW.
SHE TRULY IS A MIRACLE!!!!!!!!!!!!!!!!!!!
DEBBIE - 09/08/99 16:46:23
My Email:domi071297@aol.com
Where are you from: FLORIDA
How do I know you: SAW YOUR WEB PAGE
Comments:
Sue Nopar - 09/03/99 20:30:14
Where are you from: California
How do I know you: I saw your website link from the babyname board.
Comments:
The story of you and your family is amazing! I am almost speachless. What an incredible story about Eliana - How wonderful of you to persevere through such trauma and I pray for you that the diet continues to work it's wonders. Your children are all be
utiful. Bless you and thank you for sharing your story!
Nechama - 08/25/99 06:22:27
My Email:warshaw1@internet-zahav.net
Where are you from: Jerusalem
How do I know you: You may have seen me in "Jewish Families"
Comments:
I was just looking on the Epilepsy board (my almost 10 year old is currently weaning from Valproic Acid), and realised your name looks familiar. So wonderful to hear epilepsy success stories. :-) Also, I see from the other board that you're expecting...B'
haah Tova! - Nechama @:-)
PATRICA ELLIS - 08/25/99 04:04:47
My Email:Paellis@banet.net
Where are you from: NEW HAMPSHIRE
Comments:
I HAVE A SON NAMED PATRICK BORN ON OCT 28 1992. HE WAS A PERFECTLY HEALTHY BABY AT BIRTH AND AT 8 DAYS OF AGE GOT SICK FROM A COLD SORE THAT HE HAD CONTACTED FROM SOMEONE WHILE IN THE HOSPITAL ON HIS FIRST OR SECOND DAY OF LIFE. THIS CAUSED HERPES ENCEP
ALITIS IN HIS BRAIN. ALL SEEMED WELL ONCE THEY WERE ABLE TO STOP THE VIRUS FROM DOING ANY MORE DAMAGE. THEN JUST AFTER HIS FIRST BIRTHDAY PATRICK DEVELOPED INFANTILE SPASMS AND WAS PUT INTO CHILDRENS HOSPITAL IN BOSTON. HE RESPONDED WELL TO THE ACTH TH
RAPY AND WAS SEIZURE FREE FOR 1 1/2 YEARS. SEIZURES THEN BEGAN ANEW AND WE HAVE BEEN STRUGGLING WITH NEW MEDS/BLOOD LEVELS AND SEIZURES. WE ARE CURRENTLY CONTEMPLATING EITHER SURGERY OR THE KETOGENIC DIET. THIS IS THE FIRST TIME I HAVE EVER FOUND OR HA
TIME TO FIND INFORMATION ON THE INTERNET. THANK YOU SO MUCH. I NEVER KNEW THIS EXISTED.
PATRICA ELLIS - 08/25/99 04:04:41
My Email:Paellis@banet.net
Where are you from: NEW HAMPSHIRE
Comments:
I HAVE A SON NAMED PATRICK BORN ON OCT 28 1992. HE WAS A PERFECTLY HEALTHY BABY AT BIRTH AND AT 8 DAYS OF AGE GOT SICK FROM A COLD SORE THAT HE HAD CONTACTED FROM SOMEONE WHILE IN THE HOSPITAL ON HIS FIRST OR SECOND DAY OF LIFE. THIS CAUSED HERPES ENCEP
ALITIS IN HIS BRAIN. ALL SEEMED WELL ONCE THEY WERE ABLE TO STOP THE VIRUS FROM DOING ANY MORE DAMAGE. THEN JUST AFTER HIS FIRST BIRTHDAY PATRICK DEVELOPED INFANTILE SPASMS AND WAS PUT INTO CHILDRENS HOSPITAL IN BOSTON. HE RESPONDED WELL TO THE ACTH TH
RAPY AND WAS SEIZURE FREE FOR 1 1/2 YEARS. SEIZURES THEN BEGAN ANEW AND WE HAVE BEEN STRUGGLING WITH NEW MEDS/BLOOD LEVELS AND SEIZURES. WE ARE CURRENTLY CONTEMPLATING EITHER SURGERY OR THE KETOGENIC DIET. THIS IS THE FIRST TIME I HAVE EVER FOUND OR HA
TIME TO FIND INFORMATION ON THE INTERNET. THANK YOU SO MUCH. I NEVER KNEW THIS EXISTED.
Anslie - 08/18/99 00:38:39
My Email:Ansliehel@aol.com
Where are you from: South Carolina, U.S.A.
How do I know you: I was just looking on aol when I saw something that said, "do you want a boy or a girl" and I clicked it. Wanting children someday soon and enjoy looking at different names.
Comments:
Your children are beautiful!!!
Ken Dioguardi - 08/01/99 04:04:05
My Email:dio@worldnet.att.net
Where are you from: NJ
How do I know you: We have not met.
Comments:
My 4 month old daughter was just diagnosed with IS on Friday. She had her first ACTH injection today. My wife and I do not know what to do or expect. I am very happy for you. Your story was uplifting for me and I plan on taking it to the hospital in t
e morning for my wife to read.
Carrie Dickson - 07/19/99 12:29:25
My Email:cdickson@worldnet.att.net
Where are you from: Atlanta, GA
Comments:
My daughter was just diagnosed with Infantile Spasms and we were considering ACTH until I read your story. Thank You for your information!
Yvette - 07/02/99 07:54:17
My Email:portia9@hotmail.com
Where are you from: Aust
How do I know you: Parent Soup baby name board
Comments:
Your children are adorable. I am not in the slightest bit Jewish but I love Jewish names and your children's names are wonderful. I had to let you know.
Moonfire - 07/01/99 12:41:39
My URL:http://homepages.go.com/~moon_hawk/private.htm
My Email:moonfire@ivillage.com
Where are you from: Australia
How do I know you: Soup
Comments:
Gorgeous kid - and every one is so precious!
wonderful page, i really must go do some more work on mine - might have to pick your brain!
see you in the soup
Love Rachael
Tove Reiman - 06/29/99 05:53:15
My URL:
