My name is Finicia Compton. I am 20 years old. I am a fulltime college
student. At least I was until the disease called Still's hit me
like a bomb on February 28, 1998. It all happened so quickly and with no warning. I was on my way home
for the weekend from school and on my drive I noticed my right leg was
itching terribly. When I arrived home I showed my mom and we both
thought it was some allergic reaction to a lotion or soap of some sort.
Later that night the rash had spread to the other leg. By morning the
rash has all over my shoulder, legs and arms. By the next day, I couldn't even get
myself out of bed. I was so sore and stiff. My throat was
sore, I was freezing, had the rash, and I had a fever. Not to mention all
the pain I was in. I couldn't even put my clothes on. Get myself out of
bed, or walk without assistance. Later that night I kept getting worse. My mom said we couldn't wait
till Monday. We drove 3 hours to a hospital in Lexington, Kentucky. I
was admitted into the emergency room and examined by a
Physician's Assistant. She said she thought I had Scarlet Fever. The whole month of March and into the middle of April I was visiting this
infectious disease specialist about twice a week for some testing.
Every time we went back we were given no diagnosis. One time he said I
had Rheumatic Fever. On the first visit to this Rheumatologist in May of 98 I had already
gained back the 20 lbs. that I had lost, plus I had added 30 more lbs.
to it. Through the months of May and June she prescribed Voltaren. I'm still taking that now along with Naproxen which doesn't seem to help. I'm also taking Plaquinel.
My rheumatologist said that
the Plaquinel could take up to 6 months before you notice a difference.
I have only been taking it for 2 months as of July. As of right now, I am still on a low dosage of Prednisone, 200 mg of
Voltaren, and 400 mg of Plaquinel.
Mom rushed me to the
emergency room. The doctor said asked if I had been taking any new
medication. The only thing new I had taken in the last month was the
Excedrin migraine medicine. I always had really bad headaches.
This doctor seemed to believe that I was allergic to Excedrin.
He gave me a shot, some benedryl, and an
antibiotic and sent me home.
My mom called the doctor
that we had previously seen in the emergency room. He told me to come
right over and stop the medication that he had given me the day before.
He examined me for the second time and said that the
rash wasn't due to an allergic reaction. He phoned another doctor to
examine me.
To sum it up. These two doctors said they didn't know what
was wrong with me and told me to see a dermatologist by Monday. What a
joke!
They did a few blood tests and then I was examined by an internal
medicine doctor. The internal medicine doctor admitted me into the
hospital for observation.
I had to spend my 20th birthday in the
hospital. I was in so much pain all I could do was cry and beg for
some type of pain medication. I stayed that night in the hospital.
Nurses came in every hour injecting some kind of shot in my body.
After a month and a half of testing he finally
said I had Still's Disease. My mom and I were both puzzled, "What is
that?" we asked. He said I had a very severe case of it and that is why he didn't
suspect that it was Still's before.
During this month and a half the
rash had left and reoccured again, but this time all over my body. I
have always had constant muscle and joint pain. I would run a fever of
103. I would also take spells where I would shake to death because I
was freezing so bad. My throat would be sore off and on. I would wake
up in the morning with my shirt soaking wet from sweat--- I had
night sweats.
I had to get assistance to walk, rise from a chair and
even to put my clothes on. I missed so much school I had to withdraw
for the spring semester because I was not able to return.
He said that
doctors don't know how you contract this disease, and really don't know
the cure either. In May he referred me to a Rheumatologist who
specialized in the disease that I had.
I was starting to feel a little better, until my rheumatologist
started weaning me from my Prednisone. She said that a steroid was a
band-aid, because the problem was still there even though I was feeling
better. She explained to me that my immune system was attacking my own
tissue of joints and muscle, which is why I was in pain. My liver was
inflamed, my white blood cell count was sky high and my protein count
was high. She said they had caught my disease early and luckily no
organs were damaged. I guess my mom and I made a good decision by
coming to Lexington.
I have also
seen a Physical therapist to help with my strength and walking. I
don't think it helped me much.
The thing that has helped me the most is
the water exercises in my heated pool. The water is about 101
degrees. Warm bath water or pool water seems to loosen up my joints and
relieve the pain for a few hours. I hope to get a jacuzzi for the
winter. I hear they help a lot.
I still have some trouble putting on
my pants, rising from my chairs, etc. But I am walking better.
Some
days are worse than others. For all you who suffer with Still's I know
what you are going through. God Bless You.
Having this disease has
made me learn to appreciate what God has gifted me with. I never knew
what it was like to be dependant upon someone else before I got
Still's.
All I can say is that I couldn't have made it without my
mother and God by my side.