Deafblind Children

<BODY TEXT="#000000" BGCOLOR="#FFFFC0" LINK="#0000FF" VLINK="#800080" ALINK="#FF00FF"> <P> <CENTER><H2>Deafblind Children Home Page</h2></CENTER><BR> <P><H3> This page is being set up as a resource for parents of deafblind children. We face many challenges in our everyday lives looking after and communicating with our deafblind children. <P> My goals for this page are to:<BR> 1. Make a place for parents to gain information<BR> 2. Make a place for parents to talk with other parents who face the same unique challenges. <P> <hr> <CENTER><H2> OUR CHILDREN</H2></CENTER> I feel we can all learn by sharing our experiences with raising deafblind children. I would like to include the stories of your deafblind children on this web page. If you are interested in sharing your child's story with us you can e-mail me at: <A HREF="MAILTO:shelmack@rogers.wave.ca">shelmack@bc.sympatico.ca</A> You can include such information as: <BR> Child's age, age of diagnosis, degree of deafblindness, additional disabilities or medical issues, how you communicate, school situation, intervention, how you cope etc. <P> You can read the children's stories by clicking on their name. <P> <UL Type=Square> <LI><A HREF="CJsStory.html">CJ</A></UL>is 9 years old and totally blind with a severe hearing loss. <P> <UL Type=Square> <LI> <A HREF="http://www.pacifier.com/~mstephe/ian.htm">Ian</A></UL> is 5 years old and has Infantile Refsum's Disease. He has visual impairment and a severe hearing loss. <P> <UL Type=Square> <LI> <A HREF="RebeccaWeaver.HTML">Rebecca</A></UL>is 5 1/2 years old and has Infantile Refsum's Disease. She is visually impaired with a moderate hearing loss. <P> <UL Type=Square> <LI> <A HREF="http://www.sense.org.uk/vois-bin/chapter/sense?2">Amelia</A></UL> is 10 years old and was born with congenital rubella syndrome leaving her severely deaf and visually impaired. On this page is also a story of an adult Ian, also born with congenital rubella syndrome and how they were both helped by Sense, The National Deafblind and Rubella Association. <P> <hr> <CENTER><H2> LINKS</H2></CENTER> <UL Type=Square> <LI> <A HREF="http://www.s55wilma.demon.co.uk/">Deafblind Link</A></UL>This site contains a great wealth of information on all aspects of Deafblindness. <P> <UL Type=Square> <LI> <A HREF="http://www.tr.wou.edu/dblink">DB-LINK </A></UL> is a federally funded information clearinghouse. They have a specialized library on deaf-blindness and can look for information either in their own library or in other sources relating to any aspect of deaf-blindness or related issues, for parents or others involved in the lives of deaf-blind children and youth. They also have an information and referral database, a number of fact sheets on deaf-blindness, and they participate in the production of the newsletter Deaf-Blind Perspectives. Their services are free of charge. <P> <UL Type=Square> <LI> <A HREF="http://www.eng.dmu.ac.uk/~hgs/deafblind/">Deafblindness WWW Resource</A></UL> This web site comtains information on it, and pointers to other related sites. It mainly concentrates on deafblindness although it does include some pointers to sites dealing with deafness and blindness. It is felt that Dual Sensory Impairment should be treated separately from deafness and from blindness because "the whole is greater than the sum of the parts". <P> <hr> <CENTER><H2> LISTSERV</H2></CENTER> <P> <H3>This listserv will be open to Parents, Intervenors, and Professionals working with Deafblind children. The object of this listserv is to provide support and encouragement to one another, as we care for these children and their many unique challenges. <BR> The way a listserv works is simple. You subscribe to the list, this allows you to receive e-mail from the list and send e-mail to the list. The listserver takes the e-mails and sends them to everyone else on the list. <BR> This list will take on an open discussion format, and will also have a question/answer format where people working in the field of deafblindness will be available to respond to specific questions. <P> To join the listserv: <P> Send an e-mail to <A HREF="MAILTO:requests@talklist.com"> requests@talklist.com</A><BR> Leave the subject frame blank <BR> Into the body of the message put Subscribe Children<BR> <BR><IMG SRC="request2.gif"ALT="Example of subscribe e-mail"><BR> <P> You will receive a confirmation letter soon welcoming you to the list. <P> If you have any problems subscribing please contact: <A HREF="MAILTO:shelmack@home.com"> Shelley</A> <P> </h3> <A HREF="http://www.cast.org/bobby"> <IMG SRC="approved.gif" ALT="Bobby approved" WIDTH=131 HEIGHT=40> </A> <hr> <BR> <A HREF="http://www.student.uwa.edu.au/student/deej"> <IMG SRC="toppaward.gif" ALT="Topp Award"> </A> <BR> This award was received June 10,1998 <HR> </body>