alisa brown - 11/20/00 04:34:37
My Email:alisab@louisacomm.net
Where are you from: Wapello, Iowa
Did you like our site: yes
Comments:
My son Dallas is soon to be eight and was diagnosed at birth with ACC. He also has enlarged ventricles and seizures, beleive it or not the doctors told me that there wasn't any info on ACC. I really enjoyed the web page, it was easy to do for a first timer.
judy cooper - 08/21/00 16:59:09
Where are you from: medford, MA
Comments:
Norzita - 08/16/00 09:42:58
My Email:nzmgt@tm.net.my
Where are you from: Ipoh, Malaysia
Did you like our site: Yes
Comments:
My daughter, Sarah who is now three was also diagnosed with partial absence in corpus callosum. At the age of three, she can't even sit or balance herself. At the moment all she can do is to turn side by side. In Malaysia, there is no support group which
I could turn . At the moment Sarah is attending therapy classes and I also engaged a mental development teacher to look into Sarah's needs. I'm actually at a lost and would like to share information and experiences with parents whose children are diagnose
with ACC. Please e.mail me at nzmgt@tm.net.my
Christine & Nathan - 07/26/00 16:03:18
My Email:cnp1234@netzero.net
Where are you from: Laconia, N.H.
Did you like our site: Yes, Very much
Comments:
I have had the pleasure of meeting Elijah (and being related to) and I have to say that he is the sweetest child that I have ever met. He loves everything and everybody, you can't help but love him back. Even though he has more than his share of problems,
God blessed him in other ways...and blessed us with being able to be a part of his life.
Time to update,Amanda.
Bill and Kim - 06/09/00 01:48:21
My Email:bandk687@cs.com
Where are you from: Merrimack N.H.
Did you like our site: yes
Comments:
anything helps I'm so glad thier's sites even out thier because we were just told of our problem in our 37th week of our 2nd pregnancy. Me and I believe my wife totaly took a healthy child for granted I am sooooo soorryy now GOD BLESS EVERYONE OUT THIERE
ITH A HANDICAP CHILD!!!! Thank you!
Lin Silverman - 04/05/00 12:01:15
My Email:lsilverman@wpp.com
Where are you from: London, England
Did you like our site: yes
Comments:
My daughter is five months old and has ACC, although she seems to have no effects associated with the condition as yet. Thanks for sharing your experiences, as my husband and I really want to know all we can so we can help Elinor as she grows. All best
ishes, Lin.
Mike Maher - 03/31/00 05:42:03
My Email:mmaher@merillat.com
Where are you from: Holly, MI
Did you like our site: Yes
Comments:
My 2 week old niece was just diagnosed with acc and one other defect which might lead to some retardation. I have been blessed by being able to volunteer help with kids with special needs, and learn much about loving selflessly, patience, and so much mor
.
I pray God's blessings to you and the rest of your family.
laret&don - 03/12/00 22:16:16
Where are you from: tyngsboro way
Did you like our site: yes sir re
Comments:
Jane Strauss - 01/30/00 06:36:46
My Email:Legalspan@aol.com
Where are you from: MInneapolis
Did you like our site: yes
Comments:
My son Rafi also has ACC. He's 27 months old now and, we think, doing well. Have just gotten around to finding the ACC sites.
Tina White - 01/26/00 00:14:45
My Email:tmwhite_ei@yahoo.com
Where are you from: OHIO
Did you like our site: Yes Adorable, Positive
Comments:
My 7 yr. old dtr. was prenatally diag. w/ACC and developed status seizures at 18 mths. Currently seizure and med. free on the Keto Genic Diet. Is reading and writing her name. Thank you for sharing your family..Do you have seizure issues?
Ingunn Hodne - 01/21/00 16:30:26
My Email:reiduott@online.no
Where are you from: Norway
Did you like our site: YES!IT WAS GREAT!!!!!!
Comments:
I am a 16 year old girl with ACC.So I haven`t got the corpus callosum.And my cerebellum has a bit narrow space--_.But I haven`t got much information about the ACC at all.Maybe you can help me? Now I have read much about it at your homepages.I can have som
problems motory.I can not swim,and my fingers can often be stiffen.So when I was a little girl,and played the piano,my left hand had to help the right hand with playing.
Now isn`t that a problem any longer,but I am often
thinking about it.Some types of athletics can be difficult to me.I am happy I haven`t got any other diagnosis yet.But maybe I can be available to get it ???
The doctors here haven`t told us so much about the ACC,so I don`t know much yet.Maybe it is anyone out there who knows anything about it?
Thank you for your homepage!
tina bowen - 11/19/99 13:03:15
My Email:pstl4ever@aol.com
Where are you from: epsom
Did you like our site: yes
Comments:
hi eli - its auntie tina - your web site is very nice and it allows me info that i dont know
you will always have a special place in my heart
i love you
Andrea, Greg & Max - 11/17/99 20:38:24
My Email:atheis@pressenter.com
Where are you from: Wisconsin
Did you like our site: Yes - It gave me some hope.
Comments:
Thanks for sharing your story. Maxwell was just diagnosed with ACC a week ago. We have been very troubled with this and feel so bad for Max - cheated of a "normal" life. Your site has given me hope - I will pray for you and your family.
We pray for Max all of the time.
God bless -
auntie weeza - 10/20/99 00:20:08
My Email:monell@coopresources.net
Where are you from: alexandria n.h.
Did you like our site: why ,yes
Comments:
you guys are doing a great job w/your kids.keep up the great work.
susan nikolai - 09/21/99 20:18:48
My Email:nikybuttons@aol.com
Where are you from: south bend, indiana
Did you like our site: yes!!
Comments:
I was wondering if you could email me ANY info you have on Sotos syndrome. Our 8 month old, Genna, has a tentative diagnosis. We are waiting for an MRI but I also suspect ACC. I am a pediatric nurse and recognize a lot of the traits in Genna. I loved s
eing your little one's photos and comparing. I am relatively (one day) new to the internet, so bear with me.
I could use a friend out there who has had some of my same concerns.
Thank you, Susan
susan nikolai - 09/21/99 20:13:13
My Email:nikybuttons@aol.com
Where are you from: south bend, indiana
Did you like our site: yes!!
Comments:
I was wondering if you could email me ANY info you have on Sotos syndrome. Our 8 month old, Genna, has a tentative diagnosis. We are waiting for an MRI but I also suspect ACC. I am a pediatric nurse and recognize a lot of the traits in Genna. I loved s
eing your little one's photos and comparing. I am relatively (one day) new to the internet, so bear with me.
I could use a friend out there who has had some of my same concerns.
Thank you, Susan
Auntie Sherry - 08/04/99 16:22:38
My Email:Sherryboop@juno.com
Where are you from: Nashua
Did you like our site: Love it!
Comments:
Hey, little man when are you going to get your mom to update this thing? I love you!
vickie sedlacek - 07/25/99 20:11:07
My Email:vicsed@grolen.com
Where are you from: Nashsua N.H.
Did you like our site: very much!
Comments:
I'm Aunt Sherry &Uncle Kevins neighbor downstairs, It's really nice to meet all your family and to see you all doing so well.
Best wishes see you soon. Bye
Auntie Sherry - 07/22/99 18:48:28
Where are you from: You know!
Did you like our site: love it!
Comments:
I just finished reading all your messages! Elijah, you are the cutest! Now, for your brother, Amanda--He is such a low-life! How could anybody call Elijah-Homely! I tried to fill out your survey but I couldn't get it to work. Please let him know that
he is a LOSER!!! He doesn't deserve a sister or nephew & neices like he has! You and Stephen are doing a wonderful job! I know its hard but keep the faith! Things will be better real soon!!
Auntie Sherry - 07/22/99 18:18:03
Where are you from: Nashua
Did you like our site: I loved it!
Comments:
It was so nice to see all the kids. I miss all of you and wish we could see more of you guys! I'm glad to here everything is doing well, except for the stitches thing, and the splinter thing---mom told me! Uncle Kevin says Hi! Love you all!
Olivia Robie - 06/16/99 04:29:42
My Email:livluv@juno.com
Where are you from: Holderness
Did you like our site: love it
Comments:
Hey guys... Your looking great Elijah. Haven't been here for awhile so I thought I would drop in. Hope you guys are doing great!
Cynthia Klingler - 05/30/99 17:29:38
My Email:cklink @ ShawneeLink.com
Where are you from: Noble, Il
Did you like our site: Yes! Great Work!!!
Comments:
It's wonderful to hear from others with ACC. I was beginning to think we were out here alone on this mission. My son Evan (2yrs.4mos.) has ACC. He's doing well, we've come a long way. He is just now starting to show an interest in walking. He has been c
uising the furniture for months. So far Evan has never had any other diagnosis. He's a wonderfully happy little boy. Thanks so much for sharing your story. If you or anyone reading your guest book want to know more about Evan please send an Email. I would
love to here of more children on this same mission. THANKS!!!
Cynthia Klingler - 05/30/99 17:29:24
My Email:cklink @ ShawneeLink.com
Where are you from: Noble, Il
Did you like our site: Yes! Great Work!!!
Comments:
It's wonderful to hear from others with ACC. I was beginning to think we were out here alone on this mission. My son Evan (2yrs.4mos.) has ACC. He's doing well, we've come a long way. He is just now starting to show an interest in walking. He has been c
uising the furniture for months. So far Evan has never had any other diagnosis. He's a wonderfully happy little boy. Thanks so much for sharing your story. If you or anyone reading your guest book want to know more about Evan please send an Email. I would
love to here of more children on this same mission. THANKS!!!
Cynthia Klingler - 05/30/99 17:29:14
My Email:cklink @ ShawneeLink.com
Where are you from: Noble, Il
Did you like our site: Yes! Great Work!!!
Comments:
It's wonderful to hear from others with ACC. I was beginning to think we were out here alone on this mission. My son Evan (2yrs.4mos.) has ACC. He's doing well, we've come a long way. He is just now starting to show an interest in walking. He has been c
uising the furniture for months. So far Evan has never had any other diagnosis. He's a wonderfully happy little boy. Thanks so much for sharing your story. If you or anyone reading your guest book want to know more about Evan please send an Email. I would
love to here of more children on this same mission. THANKS!!!
Cynthia Klingler - 05/30/99 17:29:04
My Email:cklink @ ShawneeLink.com
Where are you from: Noble, Il
Did you like our site: Yes! Great Work!!!
Comments:
It's wonderful to hear from others with ACC. I was beginning to think we were out here alone on this mission. My son Evan (2yrs.4mos.) has ACC. He's doing well, we've come a long way. He is just now starting to show an interest in walking. He has been c
uising the furniture for months. So far Evan has never had any other diagnosis. He's a wonderfully happy little boy. Thanks so much for sharing your story. If you or anyone reading your guest book want to know more about Evan please send an Email. I would
love to here of more children on this same mission. THANKS!!!
Cynthia Klingler - 05/30/99 17:28:43
My Email:cklink @ ShawneeLink.com
Where are you from: Noble, Il
Did you like our site: Yes! Great Work!!!
Comments:
It's wonderful to hear from others with ACC. I was beginning to think we were out here alone on this mission. My son Evan (2yrs.4mos.) has ACC. He's doing well, we've come a long way. He is just now starting to show an interest in walking. He has been c
uising the furniture for months. So far Evan has never had any other diagnosis. He's a wonderfully happy little boy. Thanks so much for sharing your story. If you or anyone reading your guest book want to know more about Evan please send an Email. I would
love to here of more children on this same mission. THANKS!!!
Mandy Williams - 05/02/99 20:16:35
My Email:Mark@mpeople93.freeserve.co.uk
Where are you from: Cambridge, England
Did you like our site: Yes
Comments:
I have 2 daughters, one of which (Molly) has ACC. She was 2 in March this year and I would love to hear from you and compare stories
Mandy Williams - 05/02/99 20:15:18
My Email:Mark@mpeople93.freeserve.co.uk
Where are you from: Cambridge, England
Did you like our site: Yes
Comments:
I have 2 daughters, one of which (Molly) has ACC. She was 2 in March this year and I would love to hear from you and compare stories
Angela - 05/01/99 00:10:22
My Email:Imagine@pshift.com
Where are you from: Vermont
Did you like our site: It was amazing!
Comments:
You guys are doing a great job. I enjoyed learning more about Elijah's diagnosis. He is such a sweetheart. We look forward to seeing you all in the summer.
Terri Scott - 04/23/99 02:27:11
Comments:
Mindy West - 03/30/99 21:06:24
My Email:MLW11657@aol
Where are you from: Ohio
Did you like our site: Loved It!!
Comments:
I saw you listing on the Sotos ONEList e-mail. Your kids are adorable! My daughter is 11 and Sotos. I read your letter. I'm sorry some of the letters scared you. Don't be. My daughter is a great kid. And most importantly . . . She's HAPPY!! That's
all that counts.
Katinka - 03/18/99 12:54:36
My Email:Katinka@wxs.nl
Where are you from: The Netherlands
Did you like our site: Yes
Comments:
I am about to puplish a familyhomepage by myself, want to put your page in it as a link, because our daughter Christianne is born with ACC too.
When you mind, please let me know !!
Lisa Myers - 03/01/99 18:15:51
My URL:http://www2.cybercities.com/l/lmmyers/index.html
My Email:lmmyers@se-iowa.net
Where are you from: Iowa
Did you like our site: Yes
Comments:
Hi Amanda! Loved your site. Your children are beautiful. Thanks for sharing it! I look forward to getting to know you. Happy Homeschooling! :o)
julie aka juls24k - 02/02/99 19:38:10
My Email:jnoble@portup.com
Where are you from: michigan
Did you like our site: yes i loved it very nice
Comments:
u have a very beautiful family and my prayers r with u and your son i hope and wish him all the luck in the world he is a lucky little boy to have such a beautiful family take care and god bless u all julie
michelle Saulsbury "mother of the year" - 02/01/99 15:32:08
My Email:kbkm@arkansas.net
Where are you from: Arkansas.net
Did you like our site: very beautiful!!! Lovely family!!
Comments:
Hello Amp,
Thank you for inviting me to your site. I didn't know you had a baby with health problems!! He looks well loved & very happy!!
I decided to finally create my own website ( a non-profit org.) to help kids in need of clothes!
i'm going to call it "Keeping Kids in Clothes".
I appreciate you being so kind in opening your heart to help the family in need in MO. If you would like to send ALL your clothes to them that's great, if you would like to support my new project in helping other kids too i acn work something out like spl
tting the clothes among others too, it's up to you!! If you only want to send to the 1 family the address is:
Debby Stogsdill
28 Green Acres
Rolla,MO. 65401
If you choose to help other children please e-mail me!! Thank you for your generous heart!!
donnakolb - 02/01/99 14:08:00
My Email:donnakolb@hotmail.com
Where are you from: you know
Did you like our site: loved it, really
Comments:
finally got upstairs to get my mail, progress, its Monday, 2/1 I think, I loved the pictures. See you all soon
Love
Sandra Miller - 01/30/99 23:14:25
My Email:jshsgramma@aol.com
Where are you from: Tulsa OK
Did you like our site: Absolutely
Comments:
Elijah is adorable!!! Your brother was joking for sure because Elijah is truly a handsome little guy!! I hope you will forgive him for being so hurtful - I'm sure he was just not thinking... I will definitely register my unhappiness with his thoughtles
humor. Thanks for sharing your family pics!
Amanda Potter(Elijah's mom) - 01/30/99 04:11:57
My URL:http://geocities.datacellar.net/Heartland/Park/1682/Jerk.html
My Email:sapotter@cyberportal.net
Where are you from: NH
Did you like our site: Of coarse, I made it
Comments:
The message below is compliments of my so called brother, and Elijah's uncle.He thinks he is funny, I DON"T!! Please go to the URL listed above and tell him what a Jerk he is!!
MAURY POVICH - 01/29/99 19:52:49
Where are you from: NY NY
Did you like our site: YES
Comments:
WILL YOU COME TO OUR SHOW ON HOMELY CHILDREN????? 1-800-GO-MAURY
OLIVIA ROBIE - 01/15/99 23:15:44
My Email:LIVLUV@JUNO.COM
Where are you from: HOLDERNESS, NH
Did you like our site: VERY CUTE!!!!!!!
Comments:
JACOB LOVES TO LOOK AT YOUR WEB PAGE.....HE GETS VERY EXCITED EVERYTIME HE SEES THE KIDS!!! YOU GUYS HAVE DONE A GREAT JOB.
Kalyn Kopech - 01/14/99 00:54:59
My Email:sonnyk@scescape.net
Where are you from: Aiken, SC
Did you like our site: Yes, very much.
Comments:
We are on the ACC Listserv and read about Elijah all the time. He is SOOOOOOOO CUTE.
glamergranny - 01/11/99 04:19:44
My Email:barbaras@emji.net
Where are you from: North Carolina
Did you like our site: Loved the site
Comments:
It's a beautiful site, full of hope and love. I will visit often for updates.
Betsy Williams - 12/26/98 18:58:22
My Email:monell@coopersource.net
Where are you from: Alexandria
Did you like our site: yes
Comments:
Hi guys!Surprised to hear from me? I just want to say how happy I am to hear everyone's doing well. Especially Eli.I think that this web site was a really good idea for people to understand it better. And for people to say hi! Like me.Well, hello to the e
tire family.Talk to you later!
kate - 12/21/98 16:11:57
My Email:ktinkham@cisunix.unh.edu
Where are you from: millinocket, me
Did you like our site: yes i do!
Comments:
i am a junior occupational therapy student at unh. i am very interested in pediatric and neonatal therapy. i think your site is wonderful!
thanks for sharing!
kate
Shannon Smith - 12/20/98 04:19:46
My Email:leigh@freeway.net
Where are you from: Alanson, MI
Did you like our site: YES thanks!
Comments:
It's 12/19/98 and my daughter Alexa, who also has ACC and hydrocephalus, is 22 1/2 months. It was so nice to see another doing so well with similar problems. Alexa is doing well (I mean great!) but she had a rough start. She sat assisted at 9 months ol
. She crawled around 13 months and walked at 16 months. She talks in 2 word sentences now. Feel free to e-mail me if you would like, but hurry we are moving to Minn. in 4 weeks!!!
Kathleen Markey - 12/11/98 14:05:49
My Email:markey@glo.be
Where are you from: Antwerp, Belgium - Europe
Did you like our site: very much
Comments:
Hello Elijah,
Your pictures are great. It seems you're doing
very well. I wish you could tell me how to get
on hands and knees: I haven't figured that out yet. But I can sit independently very well.
Bye,
Annelien - ACC - almost 15 months
Hasan & Kazumi & Selin Yoshida Akbayrak - 12/11/98 12:46:00
My Email:kybele@ibm.net
Where are you from: Istanbul= Turkey
Did you like our site: Very much
Comments:
It was great to visit your site and see the whole family. Our daughter Selin also loved your pictures very much. Great to hear that you are having progresses. Hope to hear from you as well.
Take care,
AkbayrakFamily
John, Holly and Katie Fowler - 12/10/98 18:45:43
My URL:http://www.ozemail.com.au/~commplus
My Email:commplus@bigpond.com
Where are you from: Townsville, Queensland Australia
Did you like our site: Fabulous!
Comments:
Hello Potter family...thought that we would reciprocate with a visit to you site which we thoroughly enjoyed and so glad to see thta Elijah Brian is doing so well!!! As our Katie has ACC it is intersting to se the diffrence. She is trying to crawl when su
ported (has a weak trunk) but we can se that you little one is of and almost running!!
Take heart that we are seeing that Katie's brain is re wiring itself despite the ACC and other issues and I hope and i am sure that is the case with your son. He looks great...! Our PC died and we have been off the net for 2 months and so have not had the
opportunity up date our site...soon though.Merry Christmas to you all.
Daniel Morrell MOTS - 12/06/98 01:43:30
My Email:Dmorrell@hpd.acast.nova.edu
Where are you from: Fort Lauderdale Florida
Did you like our site: Yes
Comments:
I am a Master's of occupational therapy student and I am doing research on Agenesis of the corpus callosum. If you currently know where the best source of information is, or if you would like to know, I will gladly get back to you if I find out.
Nice web page, my best wishes, Daniel
WILL DAISLEY - 12/05/98 02:54:07
My Email:BINKKELS@AOL.COM
Where are you from: CLEARWATER,FLORIDA
Did you like our site: EXCELLENT
Comments:
FATHER OF KELSIE, 14 MOS. OLD W/ACC. KELSIE HAS A SMALL SINGLE WORD VOCABULARY AND CRUSIES THE FURNITURE. SHE WILL WALK WITH BOTH HANDS SUPPORTED. KELSIE IS ADORABLE!
Eddie/LYON2 - 12/03/98 16:21:45
My URL:http://home.talkcity.com/BelovedBlvd/roooar
My Email:emeeks@yahoo.com
Where are you from: California
Did you like our site: Loved it!!
Comments:
Hi, it's me from bingo. You have two of the cutest daughters and the most handsome son I have seen in a very long time (except for my daughter...lol). I really enjoyed your page. Hope to see you in bingo again soon..... :-)
Jennifer Samuels - 11/27/98 01:53:01
My Email:Jdsmws@aol.com
Where are you from: New Orleans
Did you like our site: yes, of course :O)
Comments:
We loved the pictures!!! What a cutie :O)
Jen & Kaitlyn
Jennifer Samuels - 11/27/98 01:51:15
My Email:Jdsmws@aol.com
Where are you from: New Orleans
Did you like our site: yes, of course :O)
Comments:
We loved the pictures!!! What a cutie :O)
Jen & Kaitlyn
Martina Couldry - 11/26/98 22:35:38
My Email:oma101@yahoo.com
Where are you from: Kent, WA
Did you like our site: Very !!!!
Comments:
Sally Verrill - 11/26/98 01:30:09
My Email:gverrill@javanet.com
Where are you from: Orange,Ma.
Did you like our site: yes
Comments:
Your favorite MIMI - 11/25/98 20:08:06
Where are you from: Your favorite place to visit
Did you like our site: LOVE IT!!!!!!!
Comments:
Amanda and Stephen are doing a wonderful job raising three fabulous children. Even with all the challanges and joys a very special child like ELIJAH brings to their household.
A very partial MIMI
Susan Beasley - 11/25/98 17:35:25
My Email:plume@colba.net
Where are you from: Montreal,Canada
Did you like our site: very much
Comments:
Great site, you have a lovely family Elijah looks great
Trudi Lynch - 11/25/98 17:06:39
My Email:glynch1@nycap.rr.com
Where are you from: Glenville, NY
Did you like our site: Yes
Comments:
Enjoyed the pictures very much. Thanks. Have a happy Thanksgiving.
Amy Clevenger - 11/25/98 15:17:56
My Email:amyjoclev@yahoo.com
Where are you from: Sabina, Ohio
Did you like our site: Wonderful
Comments:
Thanks for letting me know that you had new pictures. They are just precious!!!!!!!!!!!
Amy Clevenger - 11/25/98 14:00:53
My Email:amyjoclev@yahoo.com
Where are you from: Sabina, Ohio
Did you like our site: YES.......
Comments:
Hi, I am the mother of Kyle (13 ACC, ADD). We are on the list serve. You are a very handsome little man. Hang in there. We wish you well.
Laurie (also known as greenskyo) - 11/23/98 13:22:01
My Email:laurieo@wcvt.com
Where are you from: Vermont
Did you like our site: yes
Comments:
I wish you the best of luck wih your son and i hope that everything turns out ok.
ron nelson - 11/13/98 13:57:30
My Email:rnelson@cgocable.net
Where are you from: kingston.ontaio.canada
Did you like our site: yes i did i thought it was hart warming!
Comments:
i hope u get better soon lill buddy!
Julie Huntley - 11/12/98 22:49:53
My Email:jnrhuntley@prodigy.net
Where are you from: Asheville, North Carolina
Did you like our site: I loved it!!!
Comments:
Hey there!! Your mom is a pal of mine in online bingo...she knows me as toosweet27. I think this site is just wonderful! I have 2 boys of my own, they are 3 and 1 and I thank God for them everyday. Looks like you have a wonderful family that loves you
very much. I will keep this site on my list and hope to watch you grow and grow. You are a beautiful child with a #1 smile! You're parents did a super job with this site. Hope you all have a great day!
- 11/10/98 19:25:07
Comments:
maribeth dimarco - 11/10/98 19:24:44
My Email:dimarco@narm.com
Where are you from: new jersey
Did you like our site: outstandin
Comments:
God Bless you and your beautiful little baby boy and good luck I'm sure he will grow up to be whatever here wants to be
maribeth dimarco - 11/10/98 19:20:30
My Email:dimarco@narm.com
Where are you from: new jersey
Did you like our site: outstandin
Comments:
God Bless you and your beautiful little baby boy and good luck I'm sure he will grow up to be whatever here wants to be
Nickie Fulcher - 11/06/98 18:44:55
My Email:nfulcher@sprint.ca
Where are you from: Winnipeg, Manitoba
Did you like our site: very nice
Comments:
Hi. Just wanted to say that if you need someone to talk to or if there is something I can do, please e-mail me. BRENTFU from Bingo.
evelyn espinosa - 11/05/98 21:13:47
Where are you from: miami, florida
Did you like our site: yes
Comments:
elijaj your pictures of you and your family are great. i have my 2year old daughter amanda with acc and hydrocephallus. you guys are truly little angels that god has put here on earth.
evelyn espinosa - 11/05/98 21:02:05
Where are you from: miami, florida
Did you like our site: yes
Comments:
Angela Warwick - 11/04/98 20:17:13
My Email:skynx@spacestar.net
Where are you from: Sarona, WI
Did you like our site: Loved it!
Comments:
I loved your site! I got thge address from you on Uproar bingo blitz. I am making a page for my 3 month old baby girl, Brittany Rose. No reason except for she is sooo special! Yours was very touching. Beautiful son and beautiful and loving family!
Mimi - 10/22/98 20:28:44
Comments:
I miss you all. I am at my computer class and thought I would say HI! Love you all!
Mimi
Sarah & Cathy Robitaille - 10/05/98 21:27:55
My Email:Elephantshoes98@Yahoo.com
Where are you from: Meredith, NH
Did you like our site: Yes
Comments:
Elijah, you have been a cutie since day one and we all look forward to watching you grow up getting cuter and cuter everyday. We love you all so very much!!!!! That means you Kayla and Amber too!!!! Love the Robitaille Family(Sarah, Cathy, Roger, Roger L
o)
sue tolin - 09/21/98 12:53:49
My URL:http://members.tripod.com/~roses8/brent.html
My Email:tolint@crossnet.org
Where are you from: royal oak, mi. usa
Did you like our site: wonderful
Comments:
Mom is right you are a cutie. My son has acc and septo optic dysplasia, also. Nice job. Sue
Goldorak - 09/19/98 01:25:08
Where are you from: Canada
Did you like our site: YES
Comments:
Hey man your site is so cool
Great pic of your childs awsome
Pat Gathercole 14/9/98 - 09/14/98 19:43:18
My Email:l.gov.uk@portables1.ngfl.gov.uk.
Where are you from: uk
Did you like our site: yes
Comments:
Just found you on the net.Parent of 19 year old son with ACC. More information here than I have seen for years, brilliant!
Melissa Hans - 08/28/98 17:18:21
My Email:jhans@bellsouth.net
Where are you from: louisville, ky
Did you like our site: yes
Comments:
amanda your site was great. if we ever have time jim and I will get ours done. your kids are great. talk to you later.
Dawn Ykema - 08/26/98 04:25:54
My Email:ykema@frontiernet.net
Where are you from: Montgomery Minnesota
Did you like our site: yes
Comments:
I have a 17 year old son with ACC. You take it one day at a time and keep trying new thing all the time.
Megan Bowen - 08/23/98 21:20:41
Where are you from: Epsom N.H.
Did you like our site: YES
Comments:
Dear Elijah,
My name is Megan and I am one of your 16 cousins.
We all understand your problem and whatever may happen we all will love you for who you are
inside.ALWAYS.Well I have to get going.LOVE
Always,Megan MAY Bowen
Katie Foden - 08/23/98 21:13:46
Where are you from: Belmont
Did you like our site: YES
Comments:
Hi,
Iam one of your coolest favorite cousins.
When you get older I will give you rides everywere.You have a cute smile.
TINA M. BOWEN - 08/23/98 21:05:14
Where are you from: EPSOM, NH
Did you like our site: YES ITS NICE
Comments:
ELI - AUNTIE TINA AND HER FAMILY LOVE YOU AND YOU FAMILY. I REMEMBER THE DAY I MET YOU AND KNOW THAT YOU WILL BE FINE. YOU HAVE A BIG BIG FAMILY THAT LOVES YOU VERY MUCH. WE WILL ALWAYS BE THERE FOR YOU AND YOURS.
Kevin & Sherry Blain - 08/23/98 20:40:19
Where are you from: Nashua, NH
Did you like our site: Yes! Pretty Cool!
Comments:
We love you! Your so happy and we think your a pumpkin head! From your Uncle Kevin and Auntie Sherry
Kryss-heartland/Park Community Leader - 08/09/98 21:00:35
My URL:http://geocities.datacellar.net/Heartland/Valley/8454/
My Email:grlover@geocities.com
Where are you from: CA
Did you like our site: yes
Comments:
your site looks great. Keep upthe goodwork and hug the kids for me. : )
Mimi Baker - 07/27/98 17:14:57
Where are you from: Meredith NH
Did you like our site: YES!!!!!!!!!!!
Comments:
I think Elijah is doing very well. I know he is very alert and loves to interact with all he meets. He is the cutest kid and I could brag about him forever. I'm not partial I'm his favorite grandmother.
Daddy - 07/23/98 02:35:10
My Email:You Know
Where are you from: Home
Did you like our site: Very,Very Much
Comments:
First i'd like to say what a great job you did on the web page.And as long as we have eachother Elijah we'll be FINE.We will get through this!!!Love you little MAN.
JoAnne Tully - 07/13/98 18:11:58
My Email:7tullys@pensys.com
Where are you from: Delavan,WI
Did you like our site: Oh Yes!
Comments:
What an adorable little guy!! I love the new pictures. That smile could melt anyone's heart. It's so much fun to see how he is growing.
John & Holly Fowler - 07/09/98 07:09:43
My URL:http://www.ozemail.com.au/~commplus
My Email:commplus@ozemail.com.au
Where are you from: Townsville, Queensland, Australia
Did you like our site: Great site
Comments:
Nice yto see how elijah is doing!We have a 20 month old daughter with ACC and Dandy Walker Variant.
Holly tells me that she has been emailing you for some time but we are not sure if we have signed your guest book.
Cheers,
John
Aunti Donna - 06/25/98 19:45:52
My Email:donnakolb@hotmail.com
Where are you from: NH
Did you like our site: Loved it!!!!
Comments:
We all love Elijah, and he really is doing great. With a family like his, how could he help it! Thank you for the up-date it is great.
Sandie - 06/12/98 22:44:57
My URL:Angels Around The World
My Email:hope@aracnet.com
Where are you from: Oregon
Did you like our site: Very much! :)
Comments:
Elijah is adorable! I loved seeing his pictures
and your family pictures. It is a lovely page and
I enjoyed spending time here. I have included your webpage on my own website about ACC so that other people will be able to come and view your
great webpage too.
- 05/20/98 22:39:16
My Email:jane fox
Where are you from: down the road apiece
Did you like our site: YUP !
Comments:
Dear Amanda and Stephan,
I love what you've done ! Please let me know what else I might be able to help you with. I suspect that we will all be learning as we go.
Love and hugs to Amber and Kayla and the WEB Page Baby - Elijah
Jane
Denise White - 05/17/98 01:10:09
Where are you from: NH
Did you like our site: Loved it
Comments:
This is Auntie DeDe, I love you very much, can't wait for you to get big, so we can go to the ocean with your sisters!
Love, Denise and Family
Aileen Lathe - 05/12/98 13:11:13
My Email:jajala@webtv.net
Where are you from: Jacksonville FL
Did you like our site: word of mouth
Comments:
Elijah is sooooo cute!!!!
See ya on the list....
Aileen, mom to Jeremy 3yrs, ACC
and Andrew 8mths
Shelly Hansen - 05/10/98 02:43:42
My URL:http://www.geocties.com/Heartland/Estates/1692
My Email:shelly@cybertours.com
Where are you from: Maine
Did you like our site: I loved it.
Comments:
What a wonderful web page so far. Keep up the good work! What beautiful children.
Donna Mauzy - 05/09/98 17:38:07
Where are you from: N.H.
Did you like our site: YES
Comments:
Elijah is my little nephew. I loved him from day
one. Knowing now that he has a rare disorder just means to me that he needs a little more loving care.We will always love him no matter what . He has a long road ahead of him. With a loving Mom and Dad, two sisters . He is very much loved.
Grammy Potter - 05/09/98 17:14:05
Where are you from: NH
Did you like our site: Yes, very cute!
Comments:
Grammy thinks he's the worlds best, along with his sisters. I hope that all goes well.
- 05/08/98 23:53:47
Comments:
Sheryl - 05/05/98 03:37:02
My URL:http://geocities.datacellar.net/Heartland/Prairie/6063/
My Email:mathew@noble.cioe.com
Where are you from: Indiana
Did you like our site: yes, very much
Comments:
Hi.
I love your homepage. You have done a great job.
I am going to be putting some links up to pages of children with ACC on Stevie's page soon, and will add your page as well. Thanks for adding Stevie's page to yours. You have done a great job.
Sheryl
Judi & Rich Potter - 05/03/98 00:43:44
My Email:jimk@cyberportal.net
Where are you from: you know
Did you like our site: You did an awesome job
Comments:
We love Elijah! And we know he will continue to do well. He's got two great parents. And not to mention....... a very supportive family!
Love ya, Judi and Rich and boys
Ginger Lee bell - 05/01/98 20:05:15
My Email:vegasbell@aol.com
Where are you from: Las Vegas
Did you like our site: Yes!
Comments:
The kids are so cute. What a great idea. I hope Elijah continues to do well. Take care.
Aunti Donna Kolb - 05/01/98 19:24:49
My Email:donnakolb@hotmail.com
Where are you from: Meredith
Did you like our site: of course
Comments:
Hey you all looked so good! Kisses to the kids
Love
Me
Amy Tully - 04/26/98 19:24:04
My URL:http://geocities.datacellar.net/Athens/Acropolis/6673/acc.html
My Email:7tullys@pensys.com
Where are you from: Wisconsin
Did you like our site: Yes.
Comments:
Hello! My little sister Kathleen has ACC, and my mom belongs to the listserv. Your page is really nice so far. I like the smiley at the beginning. :0)
Amy
stephen - 04/24/98 23:15:39
Where are you from: Meredith,NH
Did you like our site: Loved It
Comments: