Just after I turned two in January 1998, I was diagnosed with medulloblastoma, a malignant brain tumor. I had surgery February 2 (12 hours long)and finished chemotherapy 14 months later in April, 1999. Everything had been going great. October 12 I had an MRI that showed a small recurrence of the cancer, so we started in on another long haul. I finished up six weeks of radiation right before Christmas. This was pretty tough... I had to lie face down and stay very still every day. But I did it!!! Chemo medicine wasn't so easy, but I did pretty well with it. Hopefully Radiation will have as few side effects as chemo seems to have. To see more about my type of cancer, click on Medulloblastoma
When I don't bring along my own hat, a friend or relative is always happy to loan one out. Sometimes I just put a lace doily on my head and pose. I have so many hats now, I can hardly choose. Philip likes the ones with ribbons from the Happy Hats people.
Please click here to see all of my cancer friends.
The Miracle Kids I just joined a website dedicated to kids with cancer called "The Miracle Kids." Visit me and other little ones there - it was put together in honor of Samantha, the author's granddaughter.
Medical Stuff
My Medicines
I had to take a lot of medicines when I had cancer, some are candy medicines, some juice medicines, some IV medicines, and some shots. I got a lot of it at home, and some of it in the hospital. I am very good at taking them when and only when I'm told to. Click on the caduceus (prescription icon) for my understanding of what they are and what they do.
My Tests
I've had a lot of tests, a bunch of imaging studies and some other stuff. To find out more about my "routine," click on the nuclear medicine symbol here.
This is the quilt square my mom made for the Childhood Cancer Awareness Quilt. The quilt was displayed at the March in DC in September, 1998 and traveled around the country. Mommy had big plans for this one, but somehow didn't get around to doing anything.