Neurofibromatosis Links
National Neurofibromatosis Foundation, Inc : One of the two national support groups in the U.S. specifically for NF. This one contains links to international NF associations also.
Neurofibromatosis, Inc : The other of the two national support groups in the U.S. specifically for NF. I personally prefer this one over the other organization, but both are great.
American Academy of Pediatrics Policy Letter: Volume 96, Number 2, Part 1,August, 1995, p 368-372 Health Supervision for Children With Neurofibromatosis (RE9534) : This is a set of guidelines to help the pediatrician care for children with NF. Excellant for parents to know, but contains a lot of physician language.
Neurofibromatosis Resources : Carol has worked hard to find information about neurofibromatosis on the Internet, including some personal stories and photographs. This is very much worth surfing into.
Neurofibromatosis type 1 (NF1) Research Laboratory : Contains links to some projects being worked on in NF research. Written in doctor's language.
International Center for Neurofibromatosis : Hospital in Belgrade that uses laser therapy to treat NF1 patients. Has an excellant photo of an NF patient with multiple fibromas.
Homepage for Neuro-Genetic Surgery, Neurosurgical Service, Massachusetts General Hospital, Harvard Medical School : Lots of information, but a little difficult to browse through.
Return to top of page.