Craniofacial Disorders

Here is a short list of other craniofacial disorders we have found in our searches.

We have also provided links to support groups and personal home pages for the specific disorders. If you know of any websites that we have failed to include, please let us know.

Antley-Bixler
Antley-Bixler Syndrome Alliance Foundation
NORD
OMIM

Apert
Teeter's HomePage
NORD
OMIM

Arhinia
OMIM

Baller-Gerold
NORD
OMIM

Carpenter
NORD
OMIM

Craniosynostosis
CAPPS - Craniosynostosis and Parent Support
Asher's Craniosynostosis Page
NORD
NINDS
OMIM

Crouzon
Crouzon Support Network
NORD
OMIM

Goodman
NORD
OMIM

Jackson-Weiss
NORD
OMIM

Langer Giedion
NORD
OMIM

Pfeiffer Syndrome
NORD
OMIM

Pierre-Robin Syndrome/Sequence
Garland Neal's PRS Story
Pierre Robin Network
NORD
OMIM

Russell-Silver
The Magic Foundation
NORD
OMIM

Saethre-Chotzen
NORD
OMIM

Sagittal Synostosis
Sagittal Synostosis Cranio Support Group
Sagittal Synostosis Homepage
OMIM 1
OMIM 2

Shprintzen-Goldberg
OMIM

Stickler Syndrome
Stickler Involved People
Colorado Chapter of Stickler Involved People
Dave Hawley's Stickler Syndrome Page
NORD
Type I - OMIM
Type II - OMIM
Type III - OMIM

Treacher-Collins
Amie's Treacher Collin's Page
TCS- A Personal View
NORD
OMIM 1
OMIM 2
OMIM 3

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Last Updated September 30, 2006

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