Disclaimer: Please be advised that everyone's experiences may be different and appropriate treatments may vary. Any medical information that you find on The Rombergs Connection website must NOT serve as a substitute for consultation with one's personal physicians. Our visitors should discuss any specific questions or concerns they may have about Rombergs with health care professionals who are familiar with the specifics of their special case.
As a support group, The Rombergs Connection is unable to offer medical advice to anyone.
However, we are presently working on a listing of doctors with Rombergs experience.

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All photos and text are the property of the families represented,
and may not be used without their consent.


My Story
By
Josh
April 22, 2007

A Young Josh I was afflicted with my disease at the age of six. I never let it affect me. I had a surgeon malpractice on me and do six surgeries that he said were for a broken cheek bone.

At the age of fourteen, I met a wonderful doctor in Daytona, Florida named Dr. Slade. I had three more surgeries, and looked great.

Josh Loves Football I went off and played college football in Miami and now I am going to law school in Chicago. I have met many people, learned many great life lessons in my twenty-four years here on earth. I don't want to say I never asked God for better cards, but I always thank God for the breath in my lungs, the sun over my head, and I can see it, and live it. If my life ended tomorrow I would have no regrets, I could be way worse off.

We were who were, when we got here. We could try and change, but that’s just “TOP LAYER”. I learned this past year that life can be taken from you in an instance and you should never take it for granted. I now find myself wanting a successful life that isn't determined on who has the most money, but who has the riches of good family and friends.

Mr. Josh I still hope to try my hand in politics. I would like to one day run for state senator, and then possibly a run for governor of Florida. I would like to be a candidate who isn't run by big companies, but runs in hope of helping the people who need help the most, the children, the elderly and the poverty-stricken. I feel now more then ever that it is more important to leave a positive impact on this world, and leave this world better than when God brought me into it.

I sure hope I can achieve all of these lofty goals during my stay here on earth, and if I don't, maybe I can inspire those people who can make a change, and make things better for the human race.

Anyone who wants to contact me, I am more than welcome and accommodating. We are 450 strong in this group and need to collectively be a powerful voice. I wish more than anything we could come together and find a cure.

God Bless,
Josh

Feel free to leave a message for Josh at rombergs@hotmail.com


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All photos and text are the property of the families represented
and may not be used without their consent.


Last Updated June 21, 2008


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