Worldwide Sharing
This page is continually being updated.
The following ICQ and IRC numbers are provided for you as a means of connecting with others that are caregivers or are in similar situations. They are not intended to be used for junk mail or mailing lists. Please be respectful of this. We all have enough going on in our lives without getting a bunch of junk.
If you would like to be a part of this list please fill in this formWorldwide Submission Form
Name: Denise, This is my site
Nickname: (ICQ) Alzheimer's Support Room (IRC) Denise
ICQ Number: #4459537
IRC Server: Chatnet:US,OR,Portland
IRC Channel: #Alzheimers_Support
My Location: Longview, WA
Comments: My mom has lived with me for three years. I am her full time caregiver. She has mid/advanced Alzheimer's Disease.
Name: Lars Erickson
Nickname: (IRC) tempusfugit
IRC Server: IRC.DAL.NET
My Location: Wall, NJ
Comments: My father, who is 69, was recently diagnosed with
AD. My mother, for the time being, is the primary
caregiver. My fathers' condition, though recently
diagnosed, has been deteriorating for about 5 years.
Now we are in the position of caring for him and
dealing with this terrible disease. He is at home now,
but this may change as my mother, who herself is in her
60's, could become overcome with caring for him. I would
welcome any advice, tips or hints that will help us
try to deal with this situation. Likewise, I would try to
help anyone else who finds themself in this situation.
Thank you for your caring and God Bless You.
Name: Dawn Klein
Nickname: (ICQ) Dawn K
ICQ Number: #1353080
My Location: Sheboygan, WI
Comments: My grandmother recently died and had been diagnosed a couple years ago with Alzheimer's Disease.
Name: Elizabeth
Nickname: (ICQ) Liz
ICQ Number: #351608
My Location: Spring Hill, Fl
Comments: I am 48 years old and lost my husband who was 54 years of age to "early onset Alzheimers disease" in January of this year (1997), I cared for him at home for the entire length of the disease. It was not an easy job, but if I had it to do over again, I would, there were many tears, mixed with just as much joy, I loved him so much, and hated the disease for taking him from me, I would love to talk with anyone in the same situation, especially those who are dealing with the early onset AD,
Thanks and God Bless all of you,,,,,,
Name: Donette Hall
Nickname: (ICQ) Doni (IRC)Shaky
ICQ Number: #925717
IRC Server: Chatnet-Portland,Or
My Location: Newell, West Virginia
Comments: I have cared for an elderly couple for the past 2 yrs.
They are both in there 80's, she has Alzheimers.
Name: cheryl
Nickname: (ICQ) cheryl
ICQ Number: #5484872
My Location: Northern, WI
Comments:I am a caregiver for 78 year old Mother with alz. disease. Am married with grown children and an 11 year old at home.
Name: Andy Dykes
ICQ Number: #6797278
My Location: Dalton, GA USA
Name: Wally Turner
Nickname: XRAY
ICQ Number: #5243165
My Location: Demorestville,Ontario, Canada
I am a fulltime caregiver to my wife of 54 years (Peggy), she is totaly dependant on me ,she is totaly incontinent and can not communicate only yes or no.
I have been looking after her for over 8 years at home, had her in a N/H for 6 weeks but did not like the treatment brought her home been here ever since.
I have some homecare assistance and some by my Son & DIL but the rest of the time it I who looks after her and will do so to the end
Name: Dottie Johnson
Nickname: DotDot
ICQ Number: #4709884
My Location: Lexington, KY
My father who is 79 years old has been diagnosed with Alzheimer's. My step mother insists on keeping him home but will do nothing that his doctor has advised her to do to keep him at home. She lets him go for a week at a time without bathing. If he says he doesn't want anything to eat she leaves it at that. I would like to for anyone who has any suggestions on how to deal with this to contact me.
Name: Jean
Nickname: Jean
ICQ Number: #5802041
My Location: N.Z.
Name: Carlene
Nickname: Carlene
ICQ Number: #6767494
My Location: Rock Springs, Wyoming
My father has AD and lives with my husband and I. I have a sister wholives just down the street so she helps all she can with our dad.
Name: Katherine Kaminski
Nickname: Dixie
ICQ Number: 8083490
IRC Server: Alzheimer's Support
My Location: Baltimore, Maryland
I've finally gotten away from computer phobia and decided to join the rest of the world. My husband had mid-stage Alzheimer's and is quite a hand full. I work full-time during the week as a health professional and my son, Brian takes care of him during that time. He escapes as soon as i walk in the door as well as on weekends. I try, but patience is not always unceasing as a virtue.
Name: Fred
ICQ Number: 7913379
Location: Near St. Louis, MO
Hi, my name is Fred, yes I am a male, (45 years old)
and I have been caring for my mother (80 years old) for
the past 5 1/2 years. She has Alzheimers and has also
become disabled. If anyone is thinking of caring for
his or her loved one with Alzheimers, but, isn't sure,
contact me.
Name: Linda
Nickname: Starchild
ICQ Number: 4050625
Location: Hamilton, Ontario
My father has Alzheimers, is 70 years old, is being cared
for by my 64 year old mother who works full time. I live
in Canada and they are in New York State. I get to see
them as often as I can, however I am not able to provide
support as much as needed (which I'd like to). I am having
a lot of trouble coming to terms with the fact that my father
has this illness. I want to learn more about it, more than I
can read in a book.
Name: Tami Watson
ICQ Number: 9486739
Location: Westland, Michigan
I am an in-home respite volunteer for the Alzheimer's Association. I formerly worked in a nursing home as an Asst. Activity Director. After having my daughter I decided to stay home, but felt the need to help in some SMALL way.
Name: PAM
Nickname: PAMP
ICQ Number: 10596942
My Location: ROCKDALE, TEXAS
I AM A DIRECTOR OF NURSING IN A 45 BED FREE STANDING ALZHEIMER'S FACILTY. I WOULD BE GLAD TO TALK TO ANYONE THAT NEEDS INFO OR SUPPORT. IF I DON'T HAVE THE INFO I WILL HELP YOU GET IT. WE HAVE A DELIGHTFUL FACILITY THAT MAINTAINS DIGNITY OF THE RESIDENTS AS THIS DISEASE PROGRESS.
Name: Shannon
Nickname: Shann
ICQ Number: 10693195
My Location: Rockdale Texas
I am working in nutrition in long term care in an Alzheimers facility.Ihad a very good friend whos mother died from Alzheimers. I am very proud of the work I do and the people that I work with.It takes special people to be able to care for the elderly and Alzheimers is even more specialized. Sympathy to all families who have to deal with this disease. It is nice to see this page and hope it makes a difference.
Name: Rebecca Harrison
Nickname: Becci
ICQ Number: 4956129
My Location: Oroville CA.
My mother is 82 years old. She is in the final stages of AD. She has had AD for approx. 14 years. She is in a Rest Home. My father was primary caregiver until Oct. 1996. They have been married 64 years. I would like to talk to people with simular situation
Name: AMY
ICQ Number: 9102371
My Location Portland Maine
I am a R.N. in a long term care facility which specializes in SDAT (senile dementia of alzheimers type}. Bravo to all of you family members who have "done it all". I currently lecture to health care providers on the subject of SDAT. I have worked in LTG for >7yrs, and would be willing to listen to your stories, and methods of coping.
Name: Nadine
ICQ Number: 1746022
My Location: Michigan
My father and I care for my mother who has alzheimers. We recently placed her in a nursing home. She has went down hill ever since. We were told 2 days ago she has less than 6 mts to live.
Name: Gaby
ICQ Number: 14862629
My Location: Germany
My mother has Alzheimer's Disease and I would like to make contact with others
Name: Lynn Sheldon
Nickname: PatientSpirit
ICQ Number: 1461004
IRC Server: PatientSpirit on DalNet
My Location: Stevensville, Michigan
My husband, Spencer, and I own two assisted living homes in southwestern Michigan, six beds each. We specialize in dignified Alzheimers care. Please see our two web sites at: http://www.qtm.net/~lsheldon/ and http://www.qtm.net/~lsheldon/annamay/
Name: Monica
Nickname: Kajun
ICQ Number: 13928666
It is my dad who has alzeheimers. Am curious about some things that I can't find. He is 63 years old and I believe in the last stages of it.
Name: nellie willoughby
Nickname: just nell
ICQ Number: 17358721
IRC Server: cordoba5@tir.com
My Location: flint,mich.
I am a caregiver for my mother, almost 89,I am a widow
and it is my choice to care for her the rest of her life.
I have put my life on hold, to care for her. it is so hard,my mother is not in the
shell of this body now.It is what I want to do but it is so hard. My husband died of cancer
17 years ago and the next year she got cancer and had to have her bladder
removed so I have been with her every since,years it wasnt bad but now ,,,,its awful......
so sad,,,,,,,,,,,,,,could use someone in same situation to talk to..............thanks ,,nell
Name: John Hardy
Nickname : Evilseed
ICQ Number: 4548273
IRC Server: none
My Location: USA
My father has been diagnosed with AD, I'm surprised we never saw it before. My mother recently died, so I'm my father's caregiver.
Name: Ryan Armey
Nickname: crda
ICQ Number: 20029009
My Location: Terre Haute Indiana
I am an activity assistant in the Alzheimer's unit. I am a student at Indiana State University studing speech-language pathology
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