Turner Syndrome

Updated on March 2 2001

Turner Syndrome and Me

Life is an opportunity, benefit from it.
Life is a beauty, admire it.
Life is bliss, taste it.
Life is a dream, realize it.
Life is a challenge, meet it.
Life is a duty, complete it..
Life is a game, play it.
Life is costly, care for it.
Life is wealth, keep it.
Life is love, enjoy it.
Life is mystery, know it.
Life is a promise, fulfill it.
Life is sorrow, overcome it.
Life is a song, sing it.
Life is a struggle, accept it.
Life is an adventure, dare it.
Life is a tragedy, confront it.
Life is luck, make it.
Life is too precious, do not destroy it.
Life is life, fight for it!
--Mother Teresa

These were the lovely bones that had grown around my absence: the connections--sometimes tenuous, sometimes made at great cost, but often magnificent--that happened after I was gone. And I began to see things in a way that let me hold the world without me in it. The events that my death wrought were merely bones of a body that would become whole at some unpredictable time in the future. The price of what I came to see as this miraculous body had been my life.
--Alice Sebold THE LOVELY BONES
Just as a disclaimer not all Turner Syndrome girls have all the symptoms of TS.
In the 1930's a doctor by the name of Henry Turner observed that some short women where infertile, So it is named after him. When girls are tested for Turners, we give blood and the test is called a karotype test, basically a DNA test. What the doctors are looking for is to make sure we have all 46 X's that we are suppose to if we have 45 X's then we are classic Turners and with being classical Turners we might have both heart and kidney problems. Some of us also have chronic ear infections that might lead to hearing loss. We also might have a webbed neck which is where we have extra skin on our necks. If the test comes up with a partial X or a 45O X then we are mosaic, which means we have some of the symptoms of Turners but not all. Now that you know basically what Turner Syndrome (TS) is, let me tell you my story.

People often ask me about how I am dealing with being diagnosed with TS so late in life. Honestly I don't mind it. I don't even think about it until someone asks or I am taking my pills. You are probably wondering who you are reading about. This is Jadia and I diagnosed with TS when I was 18 yrs old. I have to take estrogen and progesterone pills. Soon I will only take one pill for both. Other then that I am doing well. I have no heart problems. I have only one kidney, but it works fine. I am now 22 and have to worry about acohol, but I don't drink enough to worry about it.
I have a wonderful family and a great set of friends. My baby is my cat. I adore her. Her name is Polgara. You will find out more about her and her "brother" on their own pages. Scroll down and click on the pets link. Her "brother's" name is Cedar. I called him the Old Man of the House. He is in heaven though. He left this world on November 19th of 1999.

I have many interests in my life. I love to roleplay and to play with Polgara. I love to read anything, but harloquen romances. I will watch most any movie that you put in front of me. I will listen to anything but rap.
If you scroll down you will find two links to websites that I have made. One is on the white wolf line of roleplayings games and the other one in the crow. There is a new link there. It is of a story I wrote. Its about a set of twins that is going to save the tribes from evil.

I found this qoute and thought it was cool, so I had to put it one here!

"dance as if no one is watching,
love as though you've never been hurt.
sing as if no one can hear you,
and live as if heaven is on earth"

If you want to talk to me email me at turnersyndrome@netscape.com. Thanks for coming and reading my story and I hope you enjoyed it.

Here are my furbabies
If you are a Teen with TS here is a schedule of events here in Oregon and the National confrence. Click on the calander up click on the picture

If you would like more information on TS here are some links:

National TS Society
Turner Syndrome chapter of Oregon
Turners Forum
The Magic Turner Syndrome Home
Tabitha, Our Sweetheart
Tim's Turner Syndrome Information Page

Mage the Game - my own page on Mage a RPG
The Crow - my page on The Crow
My Story I wrote a story about twins who were seperated when they were two years old and then find each other when they are 21 yrs old and what their destiny is together.

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