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Hi. . .My Name is Fibromyalgia, and I'm an Invisible Chronic Illness.
I am now velcroed to you for life. Others around you can't see me or hear me,
but YOUR body feels me. I can attack you anywhere and anyhow I please. I can
cause severe pain or, if I'm in a good mood, I can just cause you to ache all
over. Remember when you and Energy ran around together and had fun? I took
Energy from you, and gave you Exhaustion. Try to have fun now! I also took
Good Sleep from you and, in its place, gave you Brain Fog. I can make you
tremble internally or make you feel cold or hot when everyone else feels
normal. Oh, yeah, I can make you feel anxious or depressed, too. If you have
something planned, or are looking forward to a great day, I can take that
away, too. You didn't ask for me. I chose you for various reasons: That virus
you had that you never recovered from, or that car accident, or maybe it was
the years of abuse and trauma. Well, anyway, I'm here to stay! I hear you're
going to see a doctor who can "get rid" of me. I'm rolling on the floor,
laughing. Just try. You will have to go to many, many doctors until you find
one who even BELIEVES I EXIST.
You will be put on pain pills, sleeping pills, energy pills, told you are
suffering from anxiety or depression, given a TENs unit, get massaged, told
if you just sleep and exercise more I will go away, told to think positive,
poked, prodded, and MOST OF ALL, laughed at when you tell the doctor I am
debilitating. Your family, friends and coworkers will all listen to you until
they just get tired of hearing about how I make you feel, and that I'm a real
disease. Some of them will say things like "Oh, you are just having a bad
day" or "Well, remember, you can't do the things you use to do 20 YEARS ago,"
not hearing that you said 20 DAYS ago. Some will just start talking behind
your back, while you slowly feel that you are losing your dignity trying to
make them understand, especially when you are in the middle of a conversation
with a "Normal" person, and can't remember what you were going to say next!
Eventually, most of them will be like all the doctors who say "It's All In
Your Head."
In closing, (I was hoping that I kept this part a secret), but I guess you
already found out. . .
The ONLY place you will get any support and understanding in dealing with me
is with Other People With Fibromyalgia.
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