Steven Kim - 12/27/00 23:09:38
My Email:stevenk@chem.ucla.edu
Where are you from?: Los Angeles

Comments:
Hi Emma, I really appreciate the time and effort you put it into Alex's Web page. You probably know how comforting it is to hear about families that have similar situations. My wife Soo and I had a daughter this past July, 2000, who was born with severe complications. Our daughter, Joanne, was able to pull through those complications, but she started having infantile spasms. She was also diagnosed with hypsarrhythmia based on her past EEGs and we have started her on ACTH. She hasn't had any spasms since then. But there are other things that have occurred, and I was wondering if you could answer a few questions about your experience with Alex when he was on ACTH. Was he very irritated? Did he get sick(colds)? Did he eat well? What kind of spasms was he having exactly, such as arm and leg movements? We have noticed recently that Joanne's legs tighten and lift. Have you ever noticed this? Lastly, how did you folks manage to get through all of this? Once again, my wife and I really appreciate the time you put into your site. I hope Alex continues to improve in everything. Sincerely, Steven Kim

Ellen Sherman Todd - 06/25/99 02:17:57
My URL:http://www.bigfoot.com/~chunkymonkey
My Email:chunkymonkey@bigfoot.com
Where are you from?: Florida

Comments:
'Just testing this sucker.... How do we look?

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