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Thankfully,
many dedicated persons with and organizations for CFS, FMS,
& related
disorders have web resources available on a variety of
subjects. We've grouped similar items, references, and links
to
faciltate research and referencing. There are several pages, but a
complete
index on each page. Use 'Search' to
find more in our newsletters, media pages and other sections.
Past
Conferences
- 9th
International Conference on CFS, Fibromyalgia, and
Other Related Illnesses
IACFS/ME
March 12-15, 2009
Peppermill Resort, Reno, NV
Research and Clinical Conference
Agenda - Professional
Ageneda - Patient
Order the Conference DVDs, See some video online free
Summaries of 9th IACFS/ME Conference, March 2009:
CFIDS Association on Facebook
Reno Wrap-Up: A Report on the 2009 IACFS/ME Conference
By Kim McCleary and Suzanne Vernon, PhD
The CFIDS Association of America
More coverage by The CFIDS Association
- Pain Week 2007
September 6-9
877- 724-6933
Red Rock Casino and Resort & Spa, Las Vegas, NV
- MYOPAIN
2007
Seventh World Congress On Myofascial Pain Syndrome and Fibromyalgia
Syndrome
August 19-23
Washington, DC
with the
National
Fibromyalgia Association’s
3rd Annual Leaders Against Pain International Coalition Seminar
- FCI:
7th annual Fibromyalgia & Chronic Fatigue Conference
June 1-2, 2007
Overland, KS, USA
Fibromyalgia Coalition International
- Midwestern
Fibromyalgia Conference
May 18-20, 2007
Matteson, Illinois.
(773) 936-4183
Speakers include Drs. M Yunus, L Jason, J Teitelbaum.
Co-hosted by
Fibromyalgia
Association Created for Education and Self-help [FACES]
Helping Our Pain
and Exhaustion [H.O.P.E.]
Mercy
Fairfield Fibromyalgia Group
- Advances in
Understanding and Treating
Chronic Fatigue Syndrome and Fibromyalgia Syndrome
May 4-5, 2007
Salt Lake City, UT
Organization
for Fatigue & Fibromyalgia Education & Research (OFFER) -
- 8th
International Conference on CFS, Fibromyalgia, and
Other Related Illnesses
IACFS
January 10-14, 2007
Ft. Lauderdale, Florida
Patient Conference:
January
10th - January 11th Agenda
Professional Conference:
January
12th, Friday Agenda
January
13th, Saturday, Agenda
January
14th, Sunday, Agenda
Poster
Presentations
International Association for Chronic Fatigue Syndrome (IACFS/ME)
& PANDORA
Summaries of 8th IACFS Conference, January 2007:
IACFS February 2007 Newsletter & From IACFS.net
- Video: Windows Media Player
- Anthony Komaroff,
MD, Conference Summary
- Lucinda
Bateman, MD, "Making the Most of Your Doctors' Appointments"
- The
8th IACFS Conference: Summary by Rosamund Vallings, MB, BS
- Brief
reviews of selected posters and presentations by David S. Bell, MD
- A
Retrospective on the 8th IACFS Conference by Virginia Teague
- 2007 Conference
Images
More IACFS 2007 Summaries
- David Bell,
MD, in The Lyndonville News
- Charles
W. Lapp, MD at drlapp.net
- Lesley
Ann Fein, MD, MPH, Research Summary at CFIDS Report
- The
CFIDS Association of America IACFS Recap in CFIDSLink
- Pat
Fero of Wisconsin CFS Association at ImmuneSupport
- Cort
Johnson's Phoenix Rising
Newsletter - Laymen's Guide to Conference
(Mac Users: use Firefox browser, not Safari.)
Conference DVD ROM, MP3, Windows Media Player
Insta-Tapes,
1-800-669-8273, fax: 1-888-346-8273
P.O. Box 908, Coeur d'Alene, Idaho 83816-0908 USA.
http://www.instatapes.com/IACFS/
Video:
DiGiVision DVD ROM or Downloadable Windows Media Player Files.
$199 for patient conference
$249 for clinical conference
$349 for both, and includes free
downloads of all mp3 for both and
free Audio CD of Keynote Address by Paul Cheney, MD.
This option is a video that shows the speaker on half the screen and
the Power Point slides used on the other half, and of course includes
the audio. Unlike viewing regular movie-type only DVDs, DigiVision DVD
ROM are watched on a computer. Print the slides of the talks, search
for key words, copy and paste lecture content into an email, and more
easily skip around. This kind of DVD does not play on TV.
Mp3
audio, $199 for both patients and clinical conferences.
Great for your iPod or other portable listening devices. (As of
02/08/07, This option not shown on the website yet. Source: a
conversation with Greg at Insta-Tapes.)
Audio CDs, that were advertised at the
conference, will not be available.
Note, as of 02/08/07, there is no link
to the IACFS
page from "Insta-Tapes
Home."
- DYNA
Summer Chill 2006
Conference
DVD
July 7, 2006
Dysautonomia
Youth Network of America
- FCI: 6th
annual Fibromyalgia & Chronic Fatigue Conference
Conference
Video/Audio Tapes/CDs
June 2-3, 2006
Overland, KS, USA
Fibromyalgia Coalition International
- FAME
2006 Patient Conference: FM Then and Now, The Path to Improved Health
March 17-19, 2006
Los Angeles, California, USA
CME
Conference Materials/Book
National FM Association
- OFFER 2005 FM &
CFS Conference
Provider
Conference DVDs
Patient
Conference DVDs
- 7th
International Conference on CFS, Fibromyalgia, and
Other Related Illnesses
October 8-10, 2004
Madison, Wisconsin
American Association for Chronic Fatigue Syndrome
(AACFS)
- Summary
by Dr. Charles W. Lapp - removed from internet; was at
http://www.drlapp.net/Templates/AACFS%20Meeting%20Summary.htm
- Summary
by Dr. Rosamund Vallings
- Summary
by Paula M. Carnes
- Conference
Materials from WI CFS-ME, Conference
DVD at AACFS
- Conference
Art Exhibit
- International
Fibromyalgia Symposium
August 20-22, 2004
Scottsdale, Arizona
Fibromyalgia Recovery Group
- Neuro-Immune
Mechanisms and Chronic Fatigue Syndrome
June 11-12, 2003
Bethesda, Maryland
National Institutes of Health -
Office of Research on Women's Health
- Nancy
Klimas on Immune Dysfunction in CFS
- Gail
Adler on the HPA Axis and Autonomic Nervous System in Fibromyalgia
- Firdhaus
Dhabhar on Stress & the Immune System in CFS
- Esther
Sternberg on Health Consequences of Dysregulated Stress Response
- Juan
Lopez on Stress and Antidepressant Modulation of the Limbic-HPA Axis
- David
S. Goldstein on Autonomic Nervous System & OI
- American
Association for Chronic Fatigue Syndrome
Sixth International Research and Clinical Conference
January 31 - February 2, 2003
Chantilly, Virginia
American Association for Chronic Fatigue Syndrome
- Summary by Dr.
Rosamund Vallings
- Summary
by Dr. Charles W. Lapp
- Report
by Dr. Neil C. Abbot, MERGE
- 10th
World Congress on Pain
Aug. 17-22, 2002
San Diego, California
International Association for the Study of Pain
- 2001
Sydney ME/CFS Conference
December 1-2, 2001
Sydney, Australia
Alison Hunter Memorial Foundation
- American
Association for Chronic Fatigue Syndrome
Fifth International Conference
January 26 - 29, 2001
Seattle, Washington
American Association for Chronic Fatigue Syndrome
- CFS
State of the Science Conference
October 23-24, 2000
Arlington, Virginia
Chronic Fatigue Syndrome Coordinating Committee
U.S. Department of Health and Human Services
- FAME
2000 International Conference
May 19-20, 2000
Los Angeles, California, USA
National FM Awareness Campaign
- Fatigue
2000 International Conference
April 23-24, 1999
National Centre for ME and Fatigue Syndromes
- 1999
Sydney ME/CFS Conference
February 25-27, 1999
Sydney, Australia
Alison Hunter Memorial Foundation
- Second
World Congress on CFS and Related Disorders
September 9-12, 1999
Brussels, Belgium
- American
Association for Chronic Fatigue Syndrome Conference
October 10-11, 1998
Cambridge, Massachusetts
American Association for Chronic Fatigue Syndrome
- 1998
Sydney ME/CFS Conference
February 11-13, 1998
Sydney, Australia
Alison Hunter Memorial Foundation
- NIH
Conferences and Lectures - VideoCast Archives
1998 - Current
Bethesda, Maryland
National Institutes of Health
Nutritional, Metabolism, Digestion, Oxidative Stress Testing
Functional Testing - Interpretation by someone very familiar with CFS
very important!!
Hormone/Endocrine Testing
Mind/Brain Evaluations
Mind/Brain Evaluations
Immune System, Other Testing
Articles on Testing
The
Role of Laboratory Tests in Diagnosis of CFS Lapp / CFIDS Association,
Updated
The
Role of Laboratory Tests in Diagnosis of CFS Lapp / CFS Research Review,
2000, w/graphics
Tests, Explained
Complete
Blood Count (CBC) Explained WebMD
A-Z
Health Guide of Medical Tests WebMD
Inexpensive/Screening Tests - General
Getting Around with CFS/FMS, places to go
DC, MD, VA Travel and Transportation Resources
National Travel Services, Resources, Discounts
General Travel Advice
Getting Around with CFS/FMS
- GPS
in cars to help PWCs get around - CFSupport Email #1481
- Tips for flying, training,
taking the bus etc. with CFS/FMS/OI
Support Hose
Have Medical
Identification
Have a plan in case of a few emergencies you can imagine
Program lots of phone numbers into cell phone AND bring paper list, too.
Have a cell phone
Ride the carts for disabled people at airports.
The walk is
usually farther that you think and you carryons heavier.
Amtrak offers 10% off disabled fare
Washington DC Metro has 50% off with medicare card
Ear plugs for sensitivity to noise. Expandable foam ones can be
tolerable.
Wiggle in seat when not moving around.
Pack the OI General Info Brochure
or other favorite articles in carry on bag
Perhaps have the tomato drink for salt and potassium in between waters.
Be willing to use public bathrooms so you can hydrate more.
A water spritzer to spray face so can breathe hydrated air, keep cooler
(tell people its water! - use distilled).
Have safe snacks with you and eat small amounts frequently.
Board last to limit sitting / upright time.
Embracing the flying experience! -
keeps the anxiety lower
DC, MD, VA Travel and Transportation Resources National Services, Discounts for Traveling
General Travel Advice
Disclaimer:
NoVA CFS/FMS Support Group representatives are not medical or
counseling professionals. Please see a qualified health professional
for diagnosis and
treatment.
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