| Hurler Syndrome (MPS I-H) Information Page |
| Medical Links | Information about Hurler Syndrome. | Last updated: 07/09/00 |
|---|---|---|
| Education Links | Every child is entitled access to education. | Last updated: 05/26/00 |
| Medical Info | Abstracts from medical publications and press releases (information concerning BMT & ERT. | Last updated: 12/10/00 |
| Enzyme Replacement Infomation | Press releases from Genzyme (makers of Aldurazyme for MPS I-H) and other Enzyme Replacement Information. | Last updated: 03/21/01 |
| Elizabeth Pics | Pictures of our daughter. | Last updated: 06/24/00 |
| Contact Us/About | Questions and suggestions are welcome. | Last updated: 05/16/00 |
The purpose of this web page is to provide information to caregivers of children with Hurler Syndrome. The information here is meant to be pertinent for persons that need basic or scientific/medical information. Be sure to contact us if you have any questions, comments, or if you know a good site we could link to. This site replaces the Parents of MPS I Forum that we originally started. That site is still available but not updated.
DISCLAIMER: The information on this site does not substitute for the knowledge and advice of medical professionals.
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This page was last updated on 12/10/00. ©2000 PACE Web Creations.