Loving a child with a Brain Disorder. How do you love this child who hates How do you love this child who tears at your heart How do you love this child whose world is a cold empty place How do you love this child whose every moment of life is a struggle How do you love this child whose mind won't be accepted by the world How do you love this child whose thoughts are not accepted by his own mind How do you love this child who only loves when his mind will let him love How do you love this child who has voices that only he can hear How do you love this child who claws at his own skin to try to get away from himself How do you love this child that depends on you to fix the pain they feel inside How do you love this child when he is in fits of rage How do you love this child who hates you for saving him from himself hoe do you love this child with such demons most of us will never know How do you love this child with a mental illness I will love this child till the hate is gone I will love this child with all that my heart can give I will love this child when he can't love himself I will fill this child's cold empty darkness with love till he can finally see I will fight every moment of this child's life so one day he will not have to struggle I will acccept this child for who he is no matter what the world thinks I will teach this child to love and accept himself despite his differences I will speak quietly of love when this child's voices are telling him to hate I will run to this child who wants to run from himself I will teach this child to look beyond the pain I will hold this child in fits of rage till the storm inside begins to subside I will love this child til my dying day no matter the consequences I will hope to someday love the demons away I will love a child with mental illness with all my heart and soul and never let go I love you my precious child please never let go I will have have hope and love when you have none. |
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Peace And Hope | |||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
From Ron to my friend Hilda | |||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
As we enter this new season I would like to share some personal thoughts. One year ago last fall I went back home to support my best friend whose son died. Ronnie was 36 and he suffered from Bipolar disorder. He never achieved stability, even though he had been in treatment since the age of 11. During the days that followed his death some wonderful things happen to me. Through out this time my faith and belief in something bigger and better than us was solidified. I was shown a peace that few will ever understand or know here on earth. It was through his life and death that many peoples lives changed. My son is 17 he also has Bipolar Disorder. He was diagnosed at the age of 10. He has had many years of instability, even though he has been in treatment since the age of 4. Like Ronnie he had never received approiate treatment or medications. I was told last year that he would never be the same again.That he would never return to public school, live alone or hold a job. I was told to "put him in a home, for kids like him." Through faith, education, perserverance and hope this has changed for him. He is now in public school and doing well. I see that twinkle in his eye, I hear him laugh and see him smile.He has achieved stability for the first time in many years. So many things have changed in the last 10 years in the mental health field and new treatments are being developed as I write this. As we enter this holiday time I would like to take the time to thank God for all the blessings. For friends and family. For health and happiness. for pain and suffering, for without this we wouldn't appreciate the good things. For the special people who have touched my life I would like to remind us that we must have hope for through hope and faith you will find peace. Remember that sometimes you must keep the hope when everyone around you has lost it, sometimes we are the only hope our children have.. |
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Renewed Growth | |||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
As we enter the holiday season I would like to take this time to update you on my son Erik. He has now had stability with his disease for well over 1 year through the grace of God. He now He now works at a supermarket 4 days a week. He is so proud of himself and getting his own paycheck. He is saving for when he graduates high school and moves out on his own.He is making A,s B's and C'c. He is making plans for his future that are very realistic and include acceptance of his disease and the support that he will need. We are now looking at a transitional school for him that will help accompish these goals. As we enter this season of new growth and recomfirmation of our faith, My prayer for all our families is to find hope and brightness for the future. One of my favorite songs is The rose by Bette Midler, I would like to remind everyone as Bette sings: underneath the winter snow lies the seed that with the suns love becomes the rose. When you feel like you are buried by this Brain disorder that our children have remember, that even 10 feet of snow can not destroy the roses and through God's blessing, our love, perserverance ,education and advocacy there is hope. | |||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
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THIS PAGE IS DEDICATED TO THE MEMORY OF RON LEWIS AND ALL THE LIVES HE TOUCHED |