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First Name : AMANDA SAUNDERS
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Disease : LPHS
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Comment : I WAS DIAGNOSED IN 1999 WITH LPHS
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First Name : Lynette
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email address : buckeyefumi@webtv.net
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Disease : LPHS
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Comment : What a ride this has been!! I was diagnosed with LPHS over a year ago. I would be happy to share my story or listen to anyone who also has this rare "condition"...Please email me anytime.
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First Name : Erin
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email address : SunRed6487@aol.com
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Disease : Loin Pain Hematuria Syndrome
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Comment : Hi My name is Erin and I am a 22 year old who has recently been diagnosed with Loin Pain Hematuria Syndrome. This disease is very pain full and it seems as there is no real answer(at least none that I know of), to make the pain a little easier to deal wit
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First Name : Cynthia
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email address : lasycyn@yahoo.com
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Disease : Loin Pain Hematura Syndrome
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Comment : I have had LPHS for 16 years, only one kidney is left. I do have a implanted morphine pump, which does help. I would love to hear from others with this disease and share their stories in dealing with LPHS. Please email me....I will be more than happy to e
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First Name : June
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email address : JuneandEddy@aol.com
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Disease : LPHS
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Comment : I was diagnosed with LPHS about 2 years ago, iv'e never been able to find any info. I also have a son with a metabolic storage disorder and hubby has end stage renal failure
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First Name : Ruth Pierce
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email address : RthPrce@netscape.net
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Disease : Daughter with LPHS (new) and Lupus
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Comment : Please send info. She has suffered for the past 2 1/2 yrs. Currently being worked up for loin pain hematuria syndrome. Intractable pain
in left flank area. On methadone and percocet with little relief
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