Please ignore the ads on the side of this page. Yahoo/Geocities puts them up to make money and since they provide free web hosting, I don't have any say about it. Some day, I'll get ambitious and move my page but until then just realize I in no way endorse them.
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the text only version of this page.
Old PKD Poll Results�
You are not alone!
Polycystic Kidney Disease affects 600,000 people in the U.S. alone, and 12.5 million world wide. There are more people with PKD than cystic fibrosis, muscular dystrophy, hemophilia, Downs syndrome and sickle cell anemia combined. There are a lot of us out there!
My father died of PKD in 1981 when very little information was available about this disease, even to the doctors. The nephrologist ( kidney doctor) thought he got it from his grandfather who had had medical problems and it had skipped a generation that I've since found out isn't possible. He was also never told that limiting his protein would help reduce the symptoms of uremia ( blood poisoning from kidney failure) which I think would have made his life much more comfortable.
This is a big part of why I've put up this web page. I want people with PKD to be able to look up research about this disease, talk to each other, ask each other questions and be there to encourage one another.
If you have PKD, please contact the Polycystic Kidney Disease Foundation. This is the best source of information on PKD I've found. They have a newsletter which features the latest promising research on PKD, information booklets about PKD and they help fund most of the start up grants for research about it in the U.S. Their phone no. is (800) PKD-CURE or for those of us who don't spell well using the telephone (800) 753-2873. You may also mail them for information at
4901 Main St., Ste 200
Kansas City, MO 64112-2634 USA