The
Huntington's Scene In New Zealand |
|
Articles taken from the JUNE 2002 Huntington's News. The Quarterly Newsletter of the Huntington's Decease Associations of New Zealand |
TIME TO STOP DRIVING
It was obvious to
everyone except Michael that the time had come for him to cease driving. It was reinforced
to me one Sunday when we almost ended up on the kerb when Mike was moving into the left
lane. He also began to take a long time to check that it was safe to drive across
roundabouts,and so often, as he was approaching an intersection where he intended to turn
right he would slow down to 30k a good 100m before the intersection. I thank the patience
of the drivers behind us and the fact that they never tooted at us.
Of course Mike didnt
want to stop driving. It was his
independence; his opportunity to fill in time and drive somewhere and of course giving up
driving was another reinforcement of the progress of Huntingtons Disease.
We both knew this
day was coming. We had talked about it in the
past but it was always when you give up driving
somewhere in the
future. The future is NOW.
So the arguments
started - Im fine driving No youre not, someone will get
hurt. This went on for a couple of months. I would come home from work and find the
car (and Mike) missing. At one point I thought let him go, its easier just to
ignore the issue but the thought of an accident or worse was too strong to let the
issue lie.
I began by asking
what his plans were the following day and being ready in the car at the time he wanted to
drive. I found working part-time I was able to juggle my hours to suit both Mikes
and my own needs. The first few weeks Mike would say Im alright, I can drive
and I would respond No you are not alright to drive, it is time to stop, thats
why Im here. It was hard going for the first few weeks, he would not accept
the reality and he did not want me to be his driver. We continued like this for a few more
weeks.
After two months I
became aware that Mike wasnt arguing any more.
He would get into the car and let me drive. This was a relief. I did reinforce the fact by saying how awful it
would have been if he had continued to drive and a child had been injured or killed; he
agreed with this. I also told him of some of his wobbly driving moments, which he was not
aware of. He found it quite incredulous that over the past two years there were occasions
when we were nervously gripping the seat as he did a very shaky lane change, drove at 30k
in a built up area and other instances where his driving was dodgy for a few
seconds.
It is 18 months
since Mike gave up driving. Once last year he did take the car for a short trip but that
hasnt happened since and he lets me know when he wants to be driven somewhere the
following day.
From my
perspective, it is such a relief that this issue has been completed. Whenever he used to
get into the car I would be nervous until he returned. I dont mind being the taxi
driver and it is extra time to enjoy together!!