The
Huntington's Scene In New Zealand
Site Maintained by
Graham Taylor |
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Articles taken from the JUNE 2002 Huntington's
News. The Quarterly Newsletter of the Huntington's Decease
Associations of New Zealand |
Survey
Results HD Association (Christchurch) March 2002
The
committee of the HD Association Canterbury wishes to determine whether its members
needs are met satisfactory. An 11 question
survey was sent to 83 members including family members, people at risk and
resthomes/hospitals. Results re summarised as
follows:
We had a 42%
survey return rate. Of this 452%, all members
received notices of meetings and events from the Christchurch Association as well as the
National Newsletter. 60% received
information, support and advice from the Field Worker and 54% received additional
information from other sources (Neurological Foundation, Internet, videos, library books,
conferences etc.). 93% found the information
they received helpful and 89% felt the service offered by the Association met their needs. We wanted to determine in advance what the
interest in a film evening would be as a fundraiser, with 64% indicating support in this
regard.
We asked
whether group meetings and/or social events were of interest. 8 out of 35 people indicated the need for these to
be arranged. Our survey provided the
opportunity for additional comments, which we have been able to follow up on an individual
basis.
Overall, the
feedback received was positive regarding the information and service we provide. More specific details of our survey results are
available should readers be interested.
Belinda Borst,
NZROT, Dip Rehab.Treasurer, Had Assoc. (Christchurch)