The
Huntington's Scene In New Zealand |
|
Articles taken from the March 2003 Huntington's News. The Quarterly Newsletter of the Huntington's Disease Associations of New Zealand |
REGIONAL NEWS
News from Waikato
Heres a
bit about the Carer Support Day. Change if
you need to!
MS Waikato
Trust held a Caring for Carers Day on 22 February at the new CCS premises in
Hamilton. The day was facilitated by Ray Murray (psychologist) and Linda Davies (educator)
who have done several carer days in Auckland and Northland.
Ten carers came together to share their experiences and learn. It was agreed that just meeting other carers and
knowing you are not alone made a world of difference.
A catered lunch and free massage topped off a great day.
It was evident
from this workshop that we need to hold regular Carer events to look more closely at
specific topics such as stress management and respite care / home support. Please phone Donna Kay at MS Waikato Trust (07)
839-5506 if you are interested in attending future carer days.
News from Canterbury
MOVIE
AFTERNOON
Your
committee are arranging another fundraising movie afternoon. This proves to be one
of our larger fundraising efforts, both in work involved and revenue collected!
Please support us.
Where:
Rialto
Cinema, Moorhouse Ave
When:
Sunday, 23rd
March
1.45pm,
movie begins at 2.00pm.
A
couple of spot prizes will be drawn before movie begins.
Cost:
$12
per ticket.
To reserve
your tickets phone:
Mary
942-5076, Belinda 383-5188, Denise 356-1049, Marnie 327-8057
Christchurch
AGM is due in May. At present we are finalising the guest speaker and as soon
as this is confirmed you will receive a notification of date and time. We look
forward to seeing you there.
Don't forget
Christchurch HD Assn now owns a wheelchair. It is available for casual use, so if
you have any event coming up where a wheelchair will make things easier for you phone
Shirley 981-0523 or Louise 381-2215.
The
Committee looks forward to catching up with you all at the picnic and/or movie. See
you there.
Louise Boyle
Chairperson
AUCKLAND/NORTHLAND NEWS
Happy New Year to all of our
Huntington families - as I write it is still in the first half of January. We trust that
you are having some great summertime experiences and positively meeting the challenges
presenting from time to time.
We look forward to the developments
expected during the year which may affect many families: Professor Faull's research
updates; Antipodean's drug development progress; Ministry of Health funded specialist
residential care services; and the positive impacts of the implementation of the NZ
Disability Strategy.
TENTATIVE ACTIVITIES & DATES FOR
2003
(Events held at the Neurological
Support Centre, 7A Taylors Road, Morningside, unless otherwise stated)
1.
HD Association Committee Meetings: Tuesdays at 7.30pm
25 March, 13 May, 17 June, 12 August, 23
September, 28 October, 9 December. These are
open meetings and the committee welcome visitors or potential committee members - new
faces most welcome.
2.
Saturday Seminars and Pot Luck Lunches: Saturdays 10.00 - 1.00
26 April, 13 September, 29 November
3.
Gene Positive Group (invitation only): Tuesdays at 7.30pm
27 May, 21 October
4.
ANNUAL GENERAL MEETING:
Saturday 28th June
(times and venue to be announced)
5.
Attended Office times: Weekly - Wednesdays 11.00 to 2.30
Other office appointments by arrangement
through the Field Officer
The HD Association (Auckland) Inc is
anticipating a full and productive year as the number of people and families accessing our
services is expected to increase further. They are very active in fundraising to ensure
that the Field Officer and office are sustained. And we welcome ALL IDEAS and ASSISTANCE
for keeping the organisation afloat. Please spread the word amongst friends and contacts.
Thanks.
Beth Gordon - Field Officer