The
Huntington's Scene In New Zealand |
|
Articles taken from the March 2002 Huntington's News. The Quarterly Newsletter of the Huntington's Decease Associations of New Zealand |
WAIKATO NEWS
My name is Donna Kay, and Ive
been appointed by MS Waikato as Information / Service Co-ordinator. This is a new position developed by the MS Trust
to develop services and resources for their members.
Currently I am developing a library which will include up-to-date books
and videos for members to use, as well as a web site for those of you who like to get
information on-line. Im also
setting the years calendar with various education / training days such as Carer
Support Workshops, Volunteer Training, and Information Evenings. Let me know if there is a particular topic or
speaker you are interested in.
If you are in need of information or service co-ordination, contact me at (07)839-5506, or
email at mswaikato@zfree.co.nz . Although I am
not able to make home visits, I can assist by making referrals or accessing resources.
I look forward to meeting and working with you in the year ahead.
Donna
This documentary charts the hopes and fears of two families and a pioneering team of
British scientists as they embark upon a revolutionary and controversial brain operation,
which could lead to a cure for Huntingtons Disease.
A Cruel Inheritance tells the personal stories of Peter, a farmer in his 40s,
and Gaye, a mother in her 50s, who both have HD, a debilitating brain disorder which is
passed from parent to child, affecting generations. HD
usually lies dormant until midlife, when it slowly begins to destroy a part of the brain
that controls the way we think and move. Peter
has already lost his speech and Gaye her memory.
Until now there has been no hope for sufferers of this illness, however that is about to
change. Peter and Gaye are patients at the
pioneering Cambridge Centre for Brain Repair. Here,
for the last three years, an elite team of British doctors and scientists have been
planning a revolutionary and controversial operation, implanting fresh tissue into the
brains of HD sufferers. This is among the
first treatment of its kind designed to actually repair the damaged brain.