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First Name : sharron
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URL :
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Comment : i really did think i was on my own . iam currently waiting for breast and groin surgery.good or bad i dont know.surely cant be any worse then the pain i am in now.i have been on lots of tablets but i did refuse to take a drug to treat tb my gp agreed with
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Email Address : harvey.jones@bt internet..com
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Age : 30
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Gender : female
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Where You Live : isle of wight
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First Name : Donna
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URL :
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Comment : I have not been able to cry so much in a long time. it is nice to know that there are a lot of people who know what i am going through. i am 27 and have been dealing with HS for about 17 years but have only known what it was for about 7 thanks to a doctor
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Email Address : djm_2000us@yahoo.com
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Age : 27
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Gender : female
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Where You Live : Michigan
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First Name : Celeste
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URL :
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Comment : I have had HS for the last 16 years. I hope someday someone has some answers.
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Email Address : moore
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Age :
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Gender :
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Where You Live :
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First Name : Celeste
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URL :
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Comment : I have had HS for the last 16 years. I hope someday someone has some answers.
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Email Address : moore_celeste
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Age : 30
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Gender : Female
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Where You Live : New York
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First Name : Adrienne
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URL :
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Comment : Thank God I'm not a freak! There are other people who suffer with this monster, just as I do. Like many of you my doctor told me that there is little we can do about the disease. I do believe there is a cure out there somewhere. My fellow sufferers, God i
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Email Address : stanka22@hotmial.com
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Age : 24
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Gender : Female
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Where You Live : Houston
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First Name : Kathy
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URL : ?
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Comment : help I have H.S. and I nedd as much information as I can get from real people not stupid doctors who just don't know thankyou
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Email Address : aggy30@hotmail.com
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Age : 47
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Gender : F
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Where You Live : Perth W.A.
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First Name : pat
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URL :
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Comment : been a sufferer for 4 yrs now.stopped seeing the doctors because I didn't think they were helping much.only taking all my money.get extremely depressed at times.I just want it to go away.
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Email Address : erniebernard@aol.com
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Age : 37
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Gender : female
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Where You Live : atlanta,ga
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First Name : Kathy
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URL :
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Comment : Hi don't know what URL satns for forgive me I've only been on the net for 2 days Please explain hope you get my message HELP
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Email Address : aggy30@hotmail.com
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Age : 47
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Gender : female
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Where You Live : Australia
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First Name : Kathy
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URL :
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Comment : At last communication I would like to join your club or web page I am 47 and female and have been a h.s. sufferer for 10 years have found lots of information but can't find much in chatting please tell me how Kathy
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Email Address : Aggy6@bigpond.com
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Age : 47
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Gender : female
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Where You Live : Australia
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First Name : Kathy
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URL :
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Comment : At last communication I would like to join your club or web page I am 47 and female and have been a h.s. sufferer for 10 years have found lots of information but can't find much in chatting please tell me how Kathy
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Email Address : Aggy6@bigpond.com
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Age : 47
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Gender : female
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Where You Live : Australia
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First Name : Rickey
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URL :
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Comment : I am 50 yr old male and have just been diegnosed with h.s. I have many guestions about diet, and hormone treetments. I have been informed by my doctor, they have little to know knowledge about eather. I wonder if anyone out there has had any luck controli
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Email Address : CMHonish@aol.com
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Age : 50
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Gender : male
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Where You Live : texas
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First Name : michelle
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URL :
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Comment : Hi, I have had hs for 18 yrs. It was in control until I had my 1st child at 26yrs old. The first year of my sons life I was in and out of the hospital. The longest stay was 18 days on IV antibiotics. I was in and out of the hospital for I & D, removal of
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Email Address : carmjo@qwst.net
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Age : 35
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Gender : female
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Where You Live : Az
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First Name : joan
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URL :
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Comment :
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Email Address :
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Age :
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Gender :
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Where You Live : washington missouri
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First Name : Sands
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URL :
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Comment : I also suffer from HS and have done for 13 years since the birth of my son.It has got worse and worse.Currently on Accutance allowing diagnoses this year.Some control of the symptoms...more contained but still ever present. So nice but sad that I am not a
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Email Address : onzero@lineone.net
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Age : 37
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Gender : female
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Where You Live : Wales, UK
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First Name : Elain
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URL :
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Comment : Just found this website - I am not a sufferer myself but my young son has suffered for many years and I cannot wait to show him that he is by no means alone in this. Thanks Again for being brave enough put aside the stigma and embarrassment (wrongly) asso
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Email Address :
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Age : 45
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Gender : f
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Where You Live : London
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First Name : Elain
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URL :
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Comment : Just found this website - I am not a sufferer myself but my young son has suffered for many years and I cannot wait to show him that he is by no means alone in this. Thanks Again for being brave enough put aside the stigma and embarrassment (wrongly) asso
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Email Address :
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Age : 45
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Gender : f
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Where You Live : London
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First Name : KIMBERLY
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URL :
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Comment : WOW!!!! I THOUGHT THAT I WAS THE ONLY ONE OUT HERE WITH THIS PROBLEM...I HAVE BEEN DEALING WITH THIS FOR 14 YRS. NOW AND IM STILL TRYING TO FIND ANYTHIN TO HELP EASE SOME OF THE PAIN. CAN ANYONE HELP ME? ANY INFO. WILL BE GREAT.. E-MAIL ME. KEEP HAPPY!!!!
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Email Address : GNSDILY6969@AOL.COM
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Age : 32
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Gender : FEMALE
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Where You Live : PLATTSBURGH, NY
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First Name : KIMBERLY
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URL :
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Comment : WOW!!!! I THOUGHT THAT I WAS THE ONLY ONE OUT HERE WITH THIS PROBLEM...I HAVE BEEN DEALING WITH THIS FOR 14 YRS. NOW AND IM STILL TRYING TO FIND ANYTHIN TO HELP EASE SOME OF THE PAIN. CAN ANYONE HELP ME? ANY INFO. WILL BE GREAT.. E-MAIL ME. KEEP HAPPY!!!!
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Email Address : GNSDILY6969@AOL.COM
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Age : 32
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Gender : FEMALE
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Where You Live : PLATTSBURGH, NY
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First Name : MARY
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URL : YAHOO.COM
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Comment : I AM HAPPY TO MEET OTHERS WHO I CAN TALK WIT ABOUT THIS AWFUL DISEASE.HAD IT IN THE ARMPITS FIRST,WAS REMOVED IN 1974,BUT THEY FOUND THE GROIN AREA INOPERABLE.FIRST STARTED AS WHAT WAS CALLED BOILS;CARBUNCLES;CYSTS; BECAUSE NO ONE REALLY KNEW WHAT THEY WE
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Email Address : TRED0608@YAHOO.COM
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Age : 61
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Gender : FEMALE
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Where You Live : SOUTHPORT NC
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First Name : Susan
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URL : Harper
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Comment : I have had HS since the age of 9
I am now 42 years old. My doctor
said I would grow out of it. Well I never did and now at 42 it seems to be getting worse. If anyone has any new ideas please let me know.
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Email Address : csharp_78363@yahoo.com
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Age : 42
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Gender : female
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Where You Live : Texas
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First Name : devon
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URL :
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Comment : have severe HS, on disability-with large, deep wounds-stuck for ideas and suggestions
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Email Address : devonor508@aol.com
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Age : 50
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Gender : female
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Where You Live : Sta. Barbara,CA
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First Name : sarah
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URL :
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Comment : If anyone has any more info on what I can do to help myself cope with HS i would be grateful. I have suffered for 2 yrs and have found out in the last week that it is HS.
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Email Address : sarah1john@yahoo.co.uk
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Age : 21
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Gender : female
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Where You Live : london
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First Name : Tina
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URL :
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Comment : This disease is a very nasty one.It finds all the wrong places,and pretty much disables you.When doctors dismiss you, and employers dont beleive you,it's very depressing.I hate it so much.
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Email Address :
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Age : 34
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Gender : Female
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Where You Live : NH
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First Name : pam
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URL :
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Comment : I have at after 20 yrs been diagnosed today of suffering from hs, specialist has put me on a nine month course of minocin, will this do any good?. Glad I found your website adding it to favourites
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Email Address : pamchandler@euphony.net
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Age : 45
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Gender : female
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Where You Live : glos
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First Name : Carolyn
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URL :
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Comment :
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Email Address :
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Age :
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Gender :
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Where You Live :
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First Name : Carolyn
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URL : R.
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Comment : I have suffered since I was about 13 with this problem of the "boils" covering the marjority of my body. There isnever a day in my life now that I don't have at least one the most I have ever had at one time is nine. After years of hot baths, antobitcs, a
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Email Address : cjrollan@aol.com
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Age : 42
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Gender : female
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Where You Live : Alabama
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First Name : sharon
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URL :
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Comment : I have been suffering from HS for years now. I'm having a hard time right now and I have been doing all kinds of research. Very glad I found this site. Very interested in talking to others with HS.Just remember ONE DAY there will be a cure.
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Email Address : robscow1269@hotmail.com
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Age : 32
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Gender : female
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Where You Live : South Carolina
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First Name : Carol
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URL :
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Comment : It is time to break the silence about this underdiagnosed disease process.
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Email Address : cmgcash@aol.com
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Age : 45
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Gender : F
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Where You Live : Beaumont, Texas
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First Name : Jaime
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URL :
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Comment : This site has helped me tremendously. I do not know for sure if this is what I have, but my surgeon that removed one cyst and lanced another, has told me it is only a sebaceous cyst. I have had 4 occurences of this about the time I start my monthly period
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Email Address : jmdeal@cyberport.com
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Age : 24
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Gender : Female
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Where You Live : New Mexico
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First Name : April
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URL :
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Comment : Thanks for the info
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Email Address : aprillborton@cs.com
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Age : 40
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Gender : female
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Where You Live : michigan
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First Name : karen
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URL :
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Comment : i'm so thankful i heard about the this condition. i am one who was diagnosed at the age of 14 but the diagnosis was "foxfordyce", i'v had a terrible time with this condition and pray that total relief is around the corner. i'm at the end of my tolerance l
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Email Address : ahardy3841
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Age : 42
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Gender : fe
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Where You Live : usa
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First Name : shelly
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URL :
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Comment : H.S. victim
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Email Address : rclark@statelut.us
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Age : 42
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Gender : female
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Where You Live : utah
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First Name : shelly
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URL :
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Comment : H.S. victim, suffered 17 years.... no cure, just keep trying to contol it.
Have GREAT doctors who are educated about this disease, and give my own injections at home as part of the treatments.... if you are lost for good medical care, go to a hopsital th
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Email Address : rclark@state.ut.us
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Age : 47
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Gender : female
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Where You Live : utah
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First Name : Dee
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URL :
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Comment : So glad to have found this site! Right now suffering with 4 'lumps' in the groin area, once again. This all started at puberty for me - had first one removed surgically at 14 under the arm. Forget how many surgeries (some small, some big) I've had since (
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Email Address : halhofmeyr@hotmail.com
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Age : 46
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Gender : Female
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Where You Live : Florida
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First Name : LUCY
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URL :
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Comment : I AM SO GLAD I FOUND ALL OF YOU:-) I TOO THOUGHT I WAS ALL ALONE. I HAVE BEEN LIVING WITH HS FOR ABOUT 15 YRS AND AM NOW TOLD BY MY DOCTORS THAT RADICAL SUGERY IS THE NEXT STEP TO TAKE. BUT I CANT BRING MYSELF TO TAKE THAT STEP QUITE YET.
GOD BLESS YOU
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Email Address : Ldiane1962@icqmail.com
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Age : 39
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Gender : female
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Where You Live : Indiana
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First Name : Amber
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URL : www.gecocities.com/lemondrop_469/lemondrop.html
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Comment : I've had HS since 1992. I have had surgeries, taken anti. but nothing seems 2 help. I am fixing 2 undergo radiation as a treatment. Let's see!!!!!!!!!
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Email Address : amberor@yahoo.com
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Age : 21
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Gender : F
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Where You Live : Oklahoma
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First Name : Karen
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URL :
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Comment : Hi it's nice to know there are others out there besides me. I am looking for someone to chat with for support regarding this condition. I'm married have 3 kids and extremely frustrated. My dermatoligist isn't seeming to do a thing but tell me to come back
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Email Address : k.vandenberg@home.com
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Age : 24
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Gender : Female
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Where You Live : West Coast BC Canada
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First Name : Lorie
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URL :
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Comment : Hey finally glad i found ya'll. It's been about 14 years since i have had H.S. It is the worst and most painful thing i have experienced in my lifetime. Right now i have given up on the antibiotics and accutane because they haven't worked for me so Oct. 3
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Email Address : weston999@msn.com
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Age : 36
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Gender : female
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Where You Live : Texas
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First Name : Emma
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URL :
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Comment : I don't know whether to laugh or cry. Astounded so many people suffer from this too, I am in the middle of a bad attack and due to see a surgeon in december. Nice to know I'm not on my own though.
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Email Address : emmalane24@hotmail.com
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Age : 26
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Gender : Female
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Where You Live : Surrey
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First Name : nikki
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URL :
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Comment : hi hope everyone is well. i havent been to this site in a long time. its all new. i have suffered with hs for 13 years and still no joy it just seems to get worse. i have noticed a change in its appearance this last year and wondered if anyone was experen
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Email Address : babyblue3105@aol.com
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Age : 30
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Gender : female
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Where You Live : northern ireland
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First Name : Marcie
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URL :
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Comment : I just wanted to thank you! I just had my third one lanced today and they were stil unable to tell me what it is. I feel so mch better o put a name with it!! Thanks so much!! :o)
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Email Address : mmcginn27@aol.com
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Age : 28
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Gender : female
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Where You Live : Cape Cod Massachusetts USA
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First Name : Jo
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URL :
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Comment : Ditto, everything that has been said before - would love to hear from anyone who lives near.
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Email Address : jo@askjojo.co.uk
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Age : 33
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Gender : female
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Where You Live : surrey
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First Name : Rene
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URL :
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Comment : I am not alone. I thought I was the only one in the whole world with HS. I have suffered since I was 18 and they took glands out from under my arms. I am now 44, and still searching for answers. I have a little clue, don't eat chocolates. Not even mud cak
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Email Address : renetheo@bigpond.com
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Age : 44
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Gender : Female
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Where You Live : Brisbane, Australia
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First Name : Elaine
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URL : uk
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Comment : Excellent website. I am so glad I am not alone. Would love to hear from sufferers and how they cope day to day. Maybe have a laugh with
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Email Address : elaine_weaver@anytimenow.com
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Age : 32
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Gender : female
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Where You Live : Hampshire
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First Name : Lyn
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URL : England
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Comment : Updating my new e-mail address.
Still same old lumps & bumps & now I think they are "tracking".Stage 3??? I hope you don't mind me mentioning this Andy, but there is
a girl in the USA who has got a
petition going for more HS awareness in the media. Th
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Email Address : patricia.brooker@btinternet.com
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Age : 2 years older than when I last signed on
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Gender : Female
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Where You Live : West Sussex
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First Name : Lyn
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URL :
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Comment : Petition line:- www.petitiononline.com/1015hid/petition.html
Anything to publicise this rotten
disease so that a cure may be found. Thanks
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Email Address : patricia.brooker@btinternet.com
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Age : 57
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Gender : Greater Spotted Female
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Where You Live : West Sussex
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First Name : Susan
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URL :
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Comment : Hi, Like everyone else, you think you are alone! Thing I can't cope with is the smell!! How do you get rid of it?
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Email Address :
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Age : 43
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Gender : Female
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Where You Live : Wales.UK
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First Name : Sandy
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URL :
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Comment : I have just been offered Roaccutane. I am aware of the nasty side effects, but would like to hear from other HS sufferers who have used this drug.
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Email Address : feline2000@cableinet.co.uk
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Age : 29
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Gender : female
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Where You Live : Uxbridge, Middx, UK
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First Name : MARILYN
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URL :
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Comment : I WAS TREATED WITH IONTOPHORESES UNDER MY ARMS,YES IT CLEARED THE ABCESSES,BUT THEY MOVED TO MY BREASTS AND HAVE CMBINED WITH CANDIDA.NOT KNOWING AT THE TIME THAT I HAD SJOGRENS WHICH I HAVE FOUND OUT THAT HS IS USUAL WITH THIS CONDITION,I SHOULD NOT HAVE
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Email Address : MARILYNHOULTON360@MSN.COM
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Age : 60
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Gender : FEMALE
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Where You Live : HUYTON NEAR LIVERPOOL
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First Name : MARILYN
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URL :
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Comment : I would like to follow on my last message.The iontophoreses dried up all of my mucous membranes & I could not swallow without water for 4 day's.Please take note of this.
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Email Address : MARILYNHOULTON360@MSN.COM
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Age : 60
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Gender : female
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Where You Live : huyton liverpool
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