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First Name : Cherie
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URL :
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Comment : I have read several web pages re: HS and fortunately I have found this site where there are other people who are not wallowing in self pity. The self-remedies are interesting and of course like the rest of you - I will try anything. My doctor has recommen
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Email Address : LChe3@aol.com
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Age : 26
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Gender : Female
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Where You Live : Washington
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First Name : japhia
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URL :
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Comment : ive had this seem like for ever.seems like i going to have to live with it for the rest of my life if there is a cure for this let me know.?
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Email Address : harmony1718@aol.com
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Age : 37
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Gender : male
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Where You Live : portsmouth,va
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First Name : Cheryl
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URL :
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Comment : Im glad i found this site. Suffered for over 18yrs had 20 operations and constantly living on anitibiotics an painkillers.Its good to know there are others like me, im not a freak!
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Email Address : cmullin@lineone.net
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Age : 35
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Gender : female
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Where You Live : Manchester/England
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First Name : Carole
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URL :
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Comment : Ive had hs since I was eight but was only diagnosed when I was 30 after the birth of my second child.Things have escalated since children - I have tried chinese remedies,homeopathic (royal london hospital), aloe vera, operated on once (back of leg - poiso
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Email Address :
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Age : 38
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Gender : Female
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Where You Live : England
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First Name : LJ
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URL :
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Comment : I have been suffering for over ten years with this, which until three days ago, I didnt even know the name of. I have been examined, proded and poked by three or four GPs, and seen a dermatologist and a cosmetic surgeon and not one of them could tell me w
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Email Address :
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Age : 25
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Gender : Female
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Where You Live : England
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First Name : Kat
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URL :
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Comment : Thank you. Finally, a place to find information for the many people who do not understand the suffering associated with HS. I have suffered since my late teens. But only now do I feel confident to live my life!
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Email Address : catbabe2@hotmail.com
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Age : 27
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Gender : Female
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Where You Live : Cleveland, UK
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First Name : dan
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URL :
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Comment : This is my first day at this site...great job....I have been bothered with this for what seems my whole life...and my four kids as well..
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Email Address : dkunnath@hotmail.com
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Age : 45
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Gender : male
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Where You Live : michigan,u.s.a.
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First Name : shannon
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URL :
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Comment : thanks for the site. had no one to talk to who would understand.
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Email Address :
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Age : 31
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Gender : f
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Where You Live : cape breton
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First Name : Allis again
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URL :
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Comment : Was cut short, the text ends with: you might want to show it to your doctor, especially if he/she is not that updated on HS.
Thanks for the site, hope to get support and advices here!
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Email Address :
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Age :
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Gender :
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Where You Live :
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First Name : Allis
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URL :
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Comment : After trying just about EVERYTHING I found a doctor in Stockholm who recommends laser surgery. If anyone is interested and has as bad HS as I have, do look up the name Jan Lapins. Heīs written a thesis about HS and itīs in English so you might want to sho
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Email Address : allisblom@hotmail.com
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Age : 32
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Gender : Female
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Where You Live : Sweden
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First Name : susan
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URL : tbirdsue@webtv.net
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Comment : Im hurting sooo bad right now.Had HS for 25 years.Just found out what I have 1 yr. ago.Any sugestions? What has helped you? Please reply. Thanks
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Email Address : tbirdsue@webtv.net
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Age : 48
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Gender : female
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Where You Live : Maryland
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First Name : K
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URL :
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Comment : Have had hs for 14 years, 3 yrs ago I had surgery..it helped immensely but not 100%. I think everyone needs to think about all of the things out there that are far worse than this problem and live their lives. Be happy you are alive and relatively healthy
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Email Address :
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Age : 31
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Gender : F
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Where You Live : US
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First Name : Callie (part 2)
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URL :
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Comment : general malise and discomfort. Sleeping is hard, eating sometimes is useless and clothing is painful to wear. Would love to email/chat with others who have suffered thru some of the treatments. Please Email me and Andy--keep up the good work!
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Email Address : vitaequeen@earthlink.net
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Age : 29
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Gender : Female
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Where You Live : Ohio, USA
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First Name : Callie
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URL :
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Comment : I have had HS for almost 10 years. I found out my father has the same thing only not as severe as I do. Its everywhere on me even behind my ears and knees, The pain is awful, the poison this is causing in my body makes me very sick with flu like symptoms,
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Email Address : vitaequeen@earthlink.net
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Age : 29
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Gender : Female
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Where You Live : Ohio, USA
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First Name : Darla
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URL :
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Comment : It is nice that i finally am allowed to talk to people that have this awful thing............. I have been suffering for only about 1 year. I have had 2 surgeries and a very painful year. I feel like my life is over by this.... I am very upset by all this
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Email Address : dkanton
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Age : 30
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Gender : female
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Where You Live : Astoria, oregon usa
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First Name : D
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URL :
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Comment :
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Email Address :
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Age :
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Gender :
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Where You Live :
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First Name : Darla
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URL :
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Comment : It is good to know there are people out there that knows what i am going through.The pain is terrrible and i feel like this is destroying my life...........
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Email Address : dkanton
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Age : 30
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Gender :
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Where You Live :
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First Name : Jennifer
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URL :
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Comment : I have been suffering from this since puberty. It's worse before my period. I'm affected in all the places mentioned. I am extremely embarrassed by it. It's really bad in the groin area. Please help me with any advice.
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Email Address :
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Age : 23
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Gender : female
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Where You Live :
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First Name : SignMan
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URL : www.knoxsigns.com
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Comment : 24 year suffer!
Very nice job Andy Dann.. I have added your link to my website..
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Email Address :
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Age : 38
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Gender : male
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Where You Live : Indiana
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First Name : Cathy Gustafson
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URL : http://users.rcn.com/mainemike
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Comment : I've had HS since I was 19 and I am now 33. I was only diagnosed in April of 2002. I am now active in the HS awareness community and have a couple of links to pass along. http://www.hs-usa.org is a newly developed site dedicated to finding a cure and spre
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Email Address : mainecathy@rcn.com
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Age : 33
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Gender : Female
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Where You Live : Bowdoinham, Maine, USA
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First Name : sharon
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URL :
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Comment : I too have suffered from HS for about 10 yrs. I have had 2 operations to remove the sweat glands in my armpits, but it has'nt worked and i still get these abcess on a regular basis. I have heard about a treatment called 'collidal silver' has anyone tried
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Email Address : shazwall@hotmail.com
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Age : 30
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Gender : female
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Where You Live : N.London ENGLAND
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First Name : Brenda
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URL :
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Comment : I have had HS for 25+ years. I found I don't have it nearly as bad since I discontinued taking hormones after menopause. The hormones really escalated the lesions severity and frequency.
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Email Address : zelkelcar@hotmail.com
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Age : 54
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Gender : Female
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Where You Live : E. TENN, USA
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First Name : Mae
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URL :
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Comment : I have had HS since I was about 10 but never bad enough to go to the doctor, I was finally diagnosed 2 days ago. Now it is all I can do to wear pants because the pain in the groin in so bad. It is comforting to know that there are others. Thanks so much f
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Email Address :
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Age : 20
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Gender : female
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Where You Live : virginia
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First Name : judy
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URL :
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Comment : i have had hs for at least 30 yrs.i would like to have a pen pal that also has this problem. maybe someone will create a chat room for us. judybe41@hotmail.com
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Email Address : judybe41@hotmail.com
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Age : 51
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Gender : female
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Where You Live : maryland
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First Name : Elizabeth Hope
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URL :
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Comment : I have been diagnosed with HS and as it was so aggressive I had to have surgery right away in my groin & armpit. Thank you for this site. It truly helps to know that you are not alone!!!
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Email Address : e.hope@cpdtotal.com.au
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Age : 23
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Gender : Female
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Where You Live : Sydney, Australia
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First Name : Andrea
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URL :
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Comment : I just posted a comment with no email sorry
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Email Address : davidandrea@desertlinc.com
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Age : 26
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Gender : female
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Where You Live : Nevada
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First Name : Andrea
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URL :
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Comment : I have suffered with this for 4 years with docs telling me I have had herpes. not only does this anger me, but my health has declined. My inner groin scalp and sometimes armpits suffers from this disease. I need help with suggestions on treatments badly.
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Email Address : davidandrea
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Age : 26
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Gender : female
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Where You Live : Nevada
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First Name : Dimosthenis Tsatsos
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URL :
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Comment : Please look at the newsgroup:
alt.support.skin-diseases.hidradenitis
I have posted a message there that my help a lot. BELIEVE ME
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Email Address : dimosthenis@vol.forthnet.gr
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Age : 24
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Gender : Male
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Where You Live : GREECE
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First Name : Roz
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URL :
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Comment : Well, I had the surgery and pushed and fought the insurance company and they agreed to pay! Yeay, the first battle is done. Had plastic surgery 3 weeks ago and already have new place. Hope the laser hair removal will reduce frequency of new sites.
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Email Address : roz@cstone.net
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Age : 34
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Gender : femal
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Where You Live : Virginia
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First Name : Stacy
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URL :
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Comment : I can't believe I've had this for years and I was just diagnosed today. I'm so glad I'm not alone though.
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Email Address : theporpoise81@yahoo.com
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Age : 21
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Gender : female
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Where You Live : Nebraska
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First Name : Jennifer
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URL : jen1844@comcast.net
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Comment : I have had this disease for the last 3 years. I'm always feeling flu like symptoms or tired, is this right?
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Email Address : jen1844@comcast.net
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Age : 40
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Gender : Female
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Where You Live : Michigan
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First Name : Will Botsford
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URL :
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Comment : My fiancee has H.S., can anyone tell me are there worse symptoms? Is it crippling? She doesnt really tell me alot, and I would like to know. Thanks!
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Email Address : fivealarmguy@hotmail.com
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Age : 23
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Gender : Male
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Where You Live : Modesto, California
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First Name : Christine
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URL :
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Comment : I have suffered for over 25 yrs. from HS. Anyone wanting to talk please Email me
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Email Address : lajaunic@bellsouth.net
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Age : 40
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Gender : female
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Where You Live : Louisiana
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First Name : Becky Hunter again
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URL : http://groups.yahoo.com/group/Hidradenitis/
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Comment : Subscribe to the ~ FREE ~ online HS newsletter, the hidraReport: http://geocities.com/hidra_000/report.html
View past issues of the newsletter at:
http://www.yourmailinglistprovider.com/pubarchive.php?HidraReport
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Email Address : countrygirl5511@aol.com
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Age : 46
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Gender : female
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Where You Live : Houston area, TX
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First Name : Becky Hunter
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URL : http://groups.yahoo.com/group/Hidradenitis/
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Comment : I have HS and live in the Houston, TX area. Email me at:
countrygirl5511@aol.com
We have a TX-OK-AR-LA support group. Send me an email to get more information or visit: http://groups.yahoo.com/group/HSinTXOKARLA/?yguid=35364684
Subscribe to the ~ F
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Email Address : countrygirl5511@aol.com
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Age : 46
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Gender : female
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Where You Live : Houston area, TX
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First Name : Joelene
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URL :
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Comment : First I must say thank you. About two weeks ago I had a really bad lump under me arm. Something I have been living with for about 7 years.With this lump I had had enough. I started to talk about it to others(who didn't understand) and wonder. Doctors had
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Email Address : Joelene768
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Age : 22
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Gender : female
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Where You Live : USA
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First Name : Lanetta
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URL :
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Comment : MY sister found this page for me and i think her i have suffered with HS for as long as i can remember. they havee done lots of stuff to me and now i have problems moving my arm and lefting with it thANK
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Email Address : sassie900@yahoo.com
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Age : 23
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Gender : female
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Where You Live : Little town, arkansas usa
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First Name : Richard
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URL :
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Comment : My friend has this condition please could you e-mail me if any ones tried colloidal silver? steptoenelson@aol.com THANKS
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Email Address : steptoenelson@aol.com
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Age : 35
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Gender : male
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Where You Live : Brighton
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First Name : Erin
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URL :
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Comment : I was wondering about colloidal silver, which I heard might help HS. I have not yet been diagnosed, but reading info about all of this, I know I have this disease. I am scared about my future, I have been living with this for about 6 years. I remember the
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Email Address : ecleven@yahoo.com
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Age : 25
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Gender : f
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Where You Live : chicago
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First Name : JESS
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URL :
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Comment : This page is great. I havent be formally diagonsed but i know i have it. Im 19 and have had it for a long time. Cant remember how many years. I hate them. Thanks for all the information
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Email Address :
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Age : 19
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Gender : female
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Where You Live : maryland
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First Name : RC
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URL :
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Comment : Thank you for this page. It's like I'm reading my own words. My insurance company won't pay for my surgery. Anyone have suggestions or know how severe it has to be to be covered generally?
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Email Address : roz@cstone.net
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Age : 34
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Gender : F
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Where You Live : Virginia
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First Name : Jasmine
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URL :
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Comment : I got HS when I was about 9 years old,I am now 18 years old, and still suffering from it. I have been on antibiotics numerous times and have had three surgeries, but they keep on reappearing. It has impacted my life a great deal, I wish it would just go a
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Email Address :
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Age : 18
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Gender : Female
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Where You Live : Toronto
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First Name : georgina
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URL :
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Comment : does benzyl oxide gel work for hs I just had it prescribed
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Email Address : chambers11a.Fsnet.co.uk
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Age : 34
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Gender : female
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Where You Live : surrey
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First Name : Madalina
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URL :
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Comment :
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Email Address : patrascu_mada@yahoo.com
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Age : 25
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Gender : f
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Where You Live : RO
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First Name : Jill
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URL :
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Comment : I have had HS for 7 years now and I just got diagnosed a week ago. I have it on groin, armpits, breast and now stomach. Anybody else have it all there??
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Email Address : bjillbetts3@aol.com
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Age : 28
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Gender : f
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Where You Live : mississippi
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