All Things Great and Small

<HTML> <HEAD> <META HTTP-EQUIV="Content-Type" CONTENT="text/html; charset=iso-8859-1"> <META NAME="KeyWords" CONTENT="Kidneys"> <META NAME="Author" CONTENT="Jordan Geist"> <META NAME="GENERATOR" CONTENT="Mozilla/4.04 (Macintosh; U; 68K) [Netscape]"> <META NAME="Content-Type" CONTENT="text/html; charset=iso-8859-1"> <TITLE>All Things Great and Small</TITLE> </HEAD> <BODY> <BODY TEXT="#000000" BGCOLOR="#FFFFFF" LINK="#0000FF" VLINK="#73738C" ALINK="#ED181E"> <UL> <CENTER> <H1> <A NAME="All Things Great and Small"></A><U><FONT COLOR="#187534"><FONT SIZE=+4>All Things Great and Small</FONT></FONT></U></H1></CENTER> <CENTER> <DD> <B><FONT FACE="New Century Schlbk">This page is dedicated to our son, Jonathan, who was born in March of 1997. He was one month premature and was diagnosed as having a congenital kidney defect on his fourth day of life. We are so thankful for the incredible joy and meaning he has brought to our lives. We hope you enjoy this page and find the information enlightening and helpful.</FONT></B></DD></CENTER> <CENTER> <H4> <FONT COLOR="#187534"><FONT SIZE=+1>Please consider being an organ donor!</FONT></FONT></H4></CENTER> <CENTER><FONT COLOR="#000000">You are visitor #</FONT></CENTER> <CENTER><IMG SRC="/cgi-bin/counter" HEIGHT=20 WIDTH=60></CENTER> <CENTER>Since 1/15/98</CENTER> <CENTER><IMG SRC="bluebar.gif" BORDER=0 HEIGHT=11 WIDTH=490></CENTER> <CENTER></CENTER> <IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><A HREF="#Jonathan's Story"><FONT SIZE=+1>To learn more about Jonathan</FONT></A> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><A HREF="#Kidney Links"><FONT SIZE=+1>Kidney Links</FONT></A> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><A HREF="#Growth and Development"><FONT SIZE=+1>Growth and Development</FONT></A> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><A HREF="#Birth Defects"><FONT SIZE=+1>Birth Defects</FONT></A> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><A HREF="#Medical Sites"><FONT SIZE=+1>Searchable Medical Databases</FONT></A> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><A HREF="#Support Groups"><FONT SIZE=+1>Support Groups</FONT></A> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><A HREF="#Alternative Medicine"><FONT SIZE=+1>Alternative Medicine</FONT></A> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><A HREF="#Renal Nutrition"><FONT SIZE=+1>Renal Nutrition</FONT></A> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><A HREF="#Books"><FONT SIZE=+1>Books</FONT></A> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><A HREF="#Home Pages"><FONT SIZE=+1>Other Home Pages</FONT></A> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://books.dreambook.com/jkgeist/guest.sign.html">Sign our guestbook!!</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14> <FONT SIZE=+1><A HREF="mailto:jgeist@capecod.net">Drop us a note!</A></FONT> <BR> <UL></UL> <IMG SRC="bluebar.gif" BORDER=0 HEIGHT=11 WIDTH=490> <BR> <CENTER> <H1> <A NAME="Jonathan's Story"></A><FONT COLOR="#187534"><FONT SIZE=+4>Jonathan's Story</FONT></FONT></H1></CENTER> <CENTER><IMG SRC="jhosp.gif" ALT="Picture of Jonathan" BORDER=0 HEIGHT=50% WIDTH=50%></CENTER> <CENTER> <DT> </DT></CENTER> <CENTER>Jonathan at 1 week</CENTER> <P> Jonathan was born one month early in March 1997. He suffered from respiratory distress syndrome due to his prematurity and was transported to the NICU at New England Medical Center. On his fourth day of life, Jonathan was diagnosed with a congenital kidney defect: bilateral renal dysplasia/hypoplasia. Of course, at that time we had no idea what this meant or what the future held for Jonathan. We were devastated and shocked; we fully expected to have a healthy baby. <P> The pediatric nephrologist told us that his kidney function was "very poor" and that the next few days would be critical for Jonathan. His creatinine was high, the reason they decided to scan his kidneys in the first place, and it would need to come down if Jonathan was going to win this fight. We watched it rise slowly over the next few days; not a good sign. His nephrologist told us that it could go as high as 4.5 before we would need to put him on dialysis. It got all the way to 4.1 before it started to turn around. <P> He was discharged from NEMC after one week and was transferred to South Shore Hospital to work on his feedings. He was on a g-tube for part of his feedings and he would need to take them all by breast or bottle before he could come home. This was the most frustrating process! All we wanted to do was to get him home and away from the hospital! Finally, they said he could come home. At this time his creatinine was around 3.3 I asked if it could go much lower and they told me no, probably not. They told us to expect him to be on erythropoiten by the end of his first week home. We were thrilled to get him home but still had no idea what the future would hold. <P> Jonathan is ten months old now and is continuing to absolutely thrive! He is small and we get a lot of comments about that (<B>HE'S</B> TEN MONTHS OLD?! :) ) but everything else couldn't be better. His creatinine has fallen to 1.1 and is stable. He is nowhere near needing erythropoiten or dialysis treatments. He is crawling and starting to cruise on the furniture. He is babbling and saying "dada", much to the delight of his father! <P> We had an appointment with the nephrologist this week and the subject of predicting when his kidneys would fail came up. He said that he really didn't like to predict just because they have been so wrong so many times:) He said, " you just never know with these kids". It used to be important to us to try to predict everything but now we are content to take our lives one month at a time (our blood work schedule:)) and not worry about failing kidneys. You know, there is lots to worry about with a ten month old and we'll stick to that for a while! Don't get us wrong; of course we believe that knowledge is power or we wouldn't have this site for other parents. All we are trying to say is let the disease take a back seat whenever you can. We still don't know what the future holds but for today everything is good and we are grateful for that. <CENTER>Jonathan at 9 months</CENTER> <CENTER><IMG SRC="jchristmaspic.gif" BORDER=0 HEIGHT=50% WIDTH=50%></CENTER> <CENTER></CENTER> <A HREF="#All Things Great and Small">All Things Great and Small</A>/<A HREF="#Jonathan's Story">Jonathan's Page</A>/<A HREF="#Kidney Links">Kidney Links</A>/<A HREF="#Birth Defects">Birth Defects</A>/<A HREF="#Growth and Development">Growth and Development</A>/<A HREF="#Medical Sites">Medical Sites</A>/<A HREF="#Support Groups">Support Groups</A>/<A HREF="#Alternative Medicine">Alternative Medicine</A>/<A HREF="#Renal Nutrition">Renal Nutrition</A>/<A HREF="#Books">Books</A>/<A HREF="#Home Pages">Other Home Pages</A>/<A HREF="http://books.dreambook.com/jkgeist/guest.sign.html">Guestbook</A> <BR> <P><IMG SRC="bluebar.gif" BORDER=0 HEIGHT=11 WIDTH=490> <CENTER> <H1> <A NAME="Kidney Links"></A><FONT COLOR="#187534"><FONT SIZE=+4>Kidney Links</FONT></FONT></H1></CENTER> <UL><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.kidney.org/">National Kidney Foundation</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.arbon.com/kidney/">American Kidney Fund</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://cybermart.com/aakpaz/aakp.html">American Association of Kidney Patients</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.niddk.nih.gov/NIDDK_HomePage.html">National Institute of Diabetes and Digestive and Kidney Disorders (NIDDK)</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.niddk.nih.gov/KidneyDocs.html">Patient Information on Kidney Diseases</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.renalnet.org/Renalnet/renalnet.cfm">RenalNet: Kidney Information Clearinghouse</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.nephron.com/">Nephron Information Center</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://shrike.depaul.edu/~dlockhar/Kid.html">The Kidney Cafe</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://nhic-nt.health.org/Scripts/Entry.cfm?HRCode=HR2310">National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.cc.utah.edu/~cla6202/Pts.htm#HIL">Health Information Library: Kidney Information</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.cc.utah.edu/~cla6202/KPR.htm">Kidney Patients' Resources</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.hdcn.com/">Hypertension Dialysis Clinical Nephrology</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www-medlib.med.utah.edu/WebPath/RENAHTML/RENALIDX.html">Renal Pathology Index (graphic images of kidneys)</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.richmond.infi.net/~donation/">Organ and Tissue Coalition on Donation</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.transweb.org/">TransWeb: Transplantation and Donation</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.orlando-b-d.com/notf/index.html">National Organ Transplant Foundation</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.asf.org/">American Share Foundation: Transplantation and Organ Donation</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.startext.net/homes/transplant/resource.htm">Transplant Internet Resources</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.ultranet.com/~ktda/">Kidney Transplant/Dialysis Association, Inc.</A></FONT></UL> <BR><A HREF="#All Things Great and Small">All Things Great and Small</A>/<A HREF="#Jonathan's Story">Jonathan's Page</A>/<A HREF="#Kidney Links">Kidney Links</A>/<A HREF="#Birth Defects">Birth Defects</A>/<A HREF="#Growth and Development">Growth and Development</A>/<A HREF="#Medical Sites">Medical Sites</A>/<A HREF="#Support Groups">Support Groups</A>/<A HREF="#Alternative Medicine">Alternative Medicine</A>/<A HREF="#Renal Nutrition">Renal Nutrition</A>/<A HREF="#Books">Books</A>/<A HREF="#Home Pages">Other Home Pages</A>/<A HREF="http://books.dreambook.com/jkgeist/guest.sign.html">Guestbook</A> <BR> <BR> <BR><IMG SRC="bluebar.gif" BORDER=0 HEIGHT=11 WIDTH=490> <CENTER> <H1> <A NAME="Birth Defects"></A><FONT COLOR="#187534"><FONT SIZE=+4>Birth Defects</FONT></FONT></H1></CENTER> <UL><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.pcnet.com/~orphan/">National Organization for Rare Disorders (NORD)</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://nhic-nt.health.org/Scripts/Entry.cfm?HRCode=HR1928">Association of Birth Defect Children</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.birthdefects.org/NBDR.HTM">National Birth Defect Registry</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://medhlp.netusa.net/agsg/agsg115.htm">Exceptional Parent Magazine</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.chmcc.org/pep/pep1038.htm">VATER (a specific birth defect)</A></FONT></UL> <BR><A HREF="#All Things Great and Small">All Things Great and Small</A>/<A HREF="#Jonathan's Story">Jonathan's Page</A>/<A HREF="#Kidney Links">Kidney Links</A>/<A HREF="#Birth Defects">Birth Defects</A>/<A HREF="#Growth and Development">Growth and Development</A>/<A HREF="#Medical Sites">Medical Sites</A>/<A HREF="#Support Groups">Support Groups</A>/<A HREF="#Alternative Medicine">Alternative Medicine</A>/<A HREF="#Renal Nutrition">Renal Nutrition</A>/<A HREF="#Books">Books</A>/<A HREF="#Home Pages">Other Home Pages</A>/<A HREF="http://books.dreambook.com/jkgeist/guest.sign.html">Guestbook</A> <BR> <P><IMG SRC="bluebar.gif" BORDER=0 HEIGHT=11 WIDTH=490> <CENTER> <H1> <A NAME="Growth and Development"></A><FONT COLOR="#187534"><FONT SIZE=+4>Growth and Development</FONT></FONT></H1></CENTER> <CENTER><FONT COLOR="#187534"><FONT SIZE=+1>Children with renal problems may have impaired growth. Growth Hormone is now an option for children with chronic renal insufficiency. We have added a parenting community here because it is a great place to learn about development. We will be adding more in the future.</FONT></FONT></CENTER> <UL><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.magicfoundation.org/">Magic Foundation for Children's Growth</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.genetic.org/hgf/index.shtml">Human Growth Foundation</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://outcast.gene.com/local-bin/pphtml/ae/backgrounder.html">Genentech </A>(pharmaceutical)</FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.medforum.nl/html/node44.html">Novo Nordisk</A> (pharmaceutical)</FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.storksite.com">Storksite</A> (parenting community)</FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.pathfinder.com/@@JKh@wwQAsGIO0jmb/ParentTime/homepage/homepage.all.html">Welcome to ParentTime!</A></FONT></UL> <BR><A HREF="#All Things Great and Small">All Things Great and Small</A>/<A HREF="#Jonathan's Story">Jonathan's Page</A>/<A HREF="#Kidney Links">Kidney Links</A>/<A HREF="#Birth Defects">Birth Defects</A>/<A HREF="#Growth and Development">Growth and Development</A>/<A HREF="#Medical Sites">Medical Sites</A>/<A HREF="#Support Groups">Support Groups</A>/<A HREF="#Alternative Medicine">Alternative Medicine</A>/<A HREF="#Renal Nutrition">Renal Nutrition</A>/<A HREF="#Books">Books</A>/<A HREF="#Home Pages">Other Home Pages</A>/<A HREF="http://books.dreambook.com/jkgeist/guest.sign.html">Guestbook</A> <BR> <P><IMG SRC="bluebar.gif" BORDER=0 HEIGHT=11 WIDTH=490> <CENTER> <H1> <A NAME="Medical Sites"></A><FONT COLOR="#187534"><FONT SIZE=+4>Medical Sites</FONT></FONT></H1></CENTER> <CENTER><FONT COLOR="#187534"><FONT SIZE=+1>All of these sites are searchable databases chock full of information. Type in what you are looking for and a list of matching documents will appear.</FONT></FONT></CENTER> <UL><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.cmhc.com/selfhelp/">Self Help Sourcebook</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://nhic-nt.health.org/">National Health Information Center</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.ama-assn.org/home/amahome.htm">American Medical Association</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://ww2.med.jhu.edu/peds/neonatology/search.html">Pediatric Points of Interest</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.healthanswers.com/">Health Answers</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.medhelp.org/">MedHelp International</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.docguide.com/">Doctor's Guide</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="HTTP://www.coloradohealthnet.org/">Colorado Health Net</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.vh.org/">Virtual Hospital Home Page</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://vch.vh.org/">Virtual Children's Hospital Home Page</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.njc.org/markethtml/NJCmore.html">National Jewish Medical and Research Center - General Information</A></FONT></UL> <P><A HREF="#All Things Great and Small">All Things Great and Small</A>/<A HREF="#Jonathan's Story">Jonathan's Page</A>/<A HREF="#Kidney Links">Kidney Links</A>/<A HREF="#Birth Defects">Birth Defects</A>/<A HREF="#Growth and Development">Growth and Development</A>/<A HREF="#Medical Sites">Medical Sites</A>/<A HREF="#Support Groups">Support Groups</A>/<A HREF="#Alternative Medicine">Alternative Medicine</A>/<A HREF="#Renal Nutrition">Renal Nutrition</A>/<A HREF="#Books">Books</A>/<A HREF="#Home Pages">Other Home Pages</A>/<A HREF="http://books.dreambook.com/jkgeist/guest.sign.html">Guestbook</A> <BR> <P><IMG SRC="bluebar.gif" BORDER=0 HEIGHT=11 WIDTH=490> <CENTER> <H1> <A NAME="Support Groups"></A><FONT COLOR="#187534"><FONT SIZE=+4>Support Groups</FONT></FONT></H1></CENTER> <CENTER><FONT COLOR="#187534"><FONT SIZE=+1>It is very important to find support when you have a child with a chronic illness. It is even better when you can communicate with parents who are going through the same (or similar) things. We have found great support from the last two links on the page. We highly recommend them.</FONT></FONT></CENTER> <UL><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://nhic-nt.health.org/Scripts/Hitlist.cfm?Keyword=SUPPORT+GROUPS">A-Z Listing</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.med.umich.edu:80/trans/transweb/support_index.html">Kidney Support Groups</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://medhlp.netusa.net/agsg/agsgsup.htm">Alliance of Genetic Support Groups Directory</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.nppsis.org/">National Parent to Parent Support and Information</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.he.net/~brumley/renal/patientboard.html">Patients Forum</A></FONT> (Forum on Kidney Disease) <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.48friend.org/">Friends Health Connection</A></FONT> <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://privat.schlund.de/kidney-children/index.htm">Child Kidney Disease mail group</A></FONT> (subscribe from this home page) <BR><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.storksite.com">Storksite</A> </FONT>(go to special needs board for support from experienced parents) <BR></UL> <BR><A HREF="#All Things Great and Small">All Things Great and Small</A>/<A HREF="#Jonathan's Story">Jonathan's Page</A>/<A HREF="#Kidney Links">Kidney Links</A>/<A HREF="#Birth Defects">Birth Defects</A>/<A HREF="#Growth and Development">Growth and Development</A>/<A HREF="#Medical Sites">Medical Sites</A>/<A HREF="#Support Groups">Support Groups</A>/<A HREF="#Alternative Medicine">Alternative Medicine</A>/<A HREF="#Renal Nutrition">Renal Nutrition</A>/<A HREF="#Books">Books</A>/<A HREF="#Home Pages">Other Home Pages</A>/<A HREF="http://books.dreambook.com/jkgeist/guest.sign.html">Guestbook</A> <BR> <P><IMG SRC="bluebar.gif" BORDER=0 HEIGHT=11 WIDTH=490> <CENTER> <H1> <A NAME="Alternative Medicine"></A><FONT COLOR="#187534"><FONT SIZE=+4>Alternative Medicine</FONT></FONT></H1></CENTER> <CENTER><FONT COLOR="#187534"><FONT SIZE=+1>Caution upon entering here! We would strongly advise you to discuss any alternative treatments with your primary physician. Even a simple herb such as Echinacea can have over 100 compounds in it. We will be adding more sites here as we find them.</FONT></FONT></CENTER> <UL><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://cgi.pathfinder.com/drweil/">Dr. Andrew Weil</A></FONT></UL> <UL><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://chili.rt66.com/hrbmoore/HOMEPAGE/">Southwest School of Botanical Medicine</A></FONT></UL> (This link has a listing of plant constituents; all of the common herbs seem to be here) <P><A HREF="#All Things Great and Small">All Things Great and Small</A>/<A HREF="#Jonathan's Story">Jonathan's Page</A>/<A HREF="#Kidney Links">Kidney Links</A>/<A HREF="#Birth Defects">Birth Defects</A>/<A HREF="#Growth and Development">Growth and Development</A>/<A HREF="#Medical Sites">Medical Sites</A>/<A HREF="#Support Groups">Support Groups</A>/<A HREF="#Alternative Medicine">Alternative Medicine</A>/<A HREF="#Renal Nutrition">Renal Nutrition</A>/<A HREF="#Books">Books</A>/<A HREF="#Home Pages">Other Home Pages</A>/<A HREF="http://books.dreambook.com/jkgeist/guest.sign.html">Guestbook</A> <BR> <P><IMG SRC="bluebar.gif" BORDER=0 HEIGHT=11 WIDTH=490> <CENTER> <H1> <A NAME="Renal Nutrition"></A><FONT COLOR="#187534"><FONT SIZE=+4>Renal Nutrition</FONT></FONT></H1></CENTER> <CENTER><FONT COLOR="#187534"><FONT SIZE=+1>This is an area we are currently researching so we hope to have a lot more soon. If you have an infant, and your child is on a special diet, you can call the baby food companies and get the nutritional contents of their foods (i.e. potassium amounts).</FONT></FONT></CENTER> <UL><IMG SRC="bluedot.gif" BORDER=0 HEIGHT=14 WIDTH=14><FONT SIZE=+1><A HREF="http://www.nal.usda.gov/fnic/">Food and Nutrition Information Center</A></FONT></UL> <BR><A HREF="#All Things Great and Small">All Things Great and Small</A>/<A HREF="#Jonathan's Story">Jonathan's Page</A>/<A HREF="#Kidney Links">Kidney Links</A>/<A HREF="#Birth Defects">Birth Defects</A>/<A HREF="#Growth and Development">Growth and Development</A>/<A HREF="#Medical Sites">Medical Sites</A>/<A HREF="#Support Groups">Support Groups</A>/<A HREF="#Alternative Medicine">Alternative Medicine</A>/<A HREF="#Renal Nutrition">Renal Nutrition</A>/<A HREF="#Books">Books</A>/<A HREF="#Home Pages">Other Home Pages</A>/<A HREF="http://books.dreambook.com/jkgeist/guest.sign.html">Guestbook</A> <BR> <P><IMG SRC="bluebar.gif" BORDER=0 HEIGHT=11 WIDTH=490> <CENTER> <H1> <A NAME="Books"></A><FONT COLOR="#187534"><FONT SIZE=+4>Books</FONT></FONT></H1></CENTER> <CENTER><FONT COLOR="#187534"><FONT SIZE=+1>At this time we would recommend you go to <A HREF="http://www.amazon.com">www.amazon.com</A> for an amazing selection of books. We typed in "kidney disease" and a good sized list of books came on the screen. We have been assured it is secure to order from them. The books can be returned if you are not satisfied.Our bookstore is currently under construction!</FONT></FONT></CENTER> <CENTER><FONT COLOR="#187534"><FONT SIZE=+1></FONT></FONT></CENTER> <CENTER><A HREF="http://geocities.com/HotSprings/Spa/5864/index/bookstore.html"><IMG SRC="smlogo.gif" BORDER=0 HEIGHT=65 WIDTH=68></A></CENTER> <CENTER></CENTER> <A HREF="#All Things Great and Small">All Things Great and Small</A>/<A HREF="#Jonathan's Story">Jonathan's Page</A>/<A HREF="#Kidney Links">Kidney Links</A>/<A HREF="#Birth Defects">Birth Defects</A>/<A HREF="#Growth and Development">Growth and Development</A>/<A HREF="#Medical Sites">Medical Sites</A>/<A HREF="#Support Groups">Support Groups</A>/<A HREF="#Alternative Medicine">Alternative Medicine</A>/<A HREF="#Renal Nutrition">Renal Nutrition</A>/<A HREF="#Books">Books</A>/<A HREF="#Home Pages">Other Home Pages</A>/<A HREF="http://books.dreambook.com/jkgeist/guest.sign.html">Guestbook</A> <BR> <P><IMG SRC="bluebar.gif" BORDER=0 HEIGHT=11 WIDTH=490> <CENTER> <H1> <A NAME="Home Pages"></A><FONT COLOR="#187534"><FONT SIZE=+4>Other Interesting Home Pages</FONT></FONT></H1></CENTER> <BR> <CENTER> <FONT Size=3> <a href="http://geocities.datacellar.net/HotSprings/Spa/3247" target="_top"> <img src="http://geocities.datacellar.net/HotSprings/Spa/3247/webring.gif" align="left" WIDTH=125 HEIGHT=80></a> <a href="http://www.webring.org/cgi-bin/webring?ring=specialangels;36;next" target="_top"> <img src="http://geocities.datacellar.net/HotSprings/Spa/3247/ringnext.gif" align="right" WIDTH=125 HEIGHT=80></a> This <a href="http://geocities.datacellar.net/HotSprings/Spa/3247" target="_top">Special Angels Ring </a> site is owned by <a href="mailto:jgeist@capecod.net"><FONT SIZE="2">Kelly Geist</FONT></a>. <BR><BR> <FONT SIZE="3"> Want to join the <A HREF="http://geocities.datacellar.net/HotSprings/Spa/3247/specialangelring.html" target="_top">Special Angels Ring</A>?</FONT> <BR><BR> <FONT Size=3> <B> [<a href="http://www.webring.org/cgi-bin/webring?ring=specialangels;id=36;sprev" target="_top">Skip Prev</a>] [<a href="http://www.webring.org/cgi-bin/webring?ring=specialangels;id=36;prev" target="_top">Prev</a>] [<a href="http://www.webring.org/cgi-bin/webring?ring=specialangels;id=36;next" target="_top">Next</a>] [<a href="http://www.webring.org/cgi-bin/webring?ring=specialangels;id=36skip" target="_top">Skip Next</a>] [<a href="http://www.webring.org/cgi-bin/webring?random;ring=specialangels" target="_top">Random</a>] [<a href="http://www.webring.org/cgi-bin/webring?ring=specialangels;id=36;next5" target="_top">Next 5</a>] [<a href="http://www.webring.org/cgi-bin/webring?ring=specialangels;list" target="_top">List Sites</a>] </B> </FONT> </CENTER> <BR> <A HREF="#All Things Great and Small">All Things Great and Small</A>/<A HREF="#Jonathan's Story">Jonathan's Page</A>/<A HREF="#Kidney Links">Kidney Links</A>/<A HREF="#Birth Defects">Birth Defects</A>/<A HREF="#Growth and Development">Growth and Development</A>/<A HREF="#Medical Sites">Medical Sites</A>/<A HREF="#Support Groups">Support Groups</A>/<A HREF="#Alternative Medicine">Alternative Medicine</A>/<A HREF="#Renal Nutrition">Renal Nutrition</A>/<A HREF="#Books">Books</A>/<A HREF="#Home Pages">Other Home Pages</A>/<A HREF="http://books.dreambook.com/jkgeist/guest.sign.html">Guestbook</A> <BR> <P><IMG SRC="bluebar.gif" BORDER=0 HEIGHT=11 WIDTH=490> <BR></UL> </BODY>  <SCRIPT LANGUAGE="JavaScript">  </SCRIPT> </HTML>