Cleft Resources on the Internet

There are many places on the web to find information on clefting. Here are just a few links to start you off.

Cleft Notes

Wide Smiles

Pierre Robin

Professional Organizations

• American Society of Plastic and Reconstructive Surgeons (ASPRS) and Plastic Surgery Educational Foundation (PSEF) Plastic Surgery Information Service

• American Academy of Facial Plastic and Reconstructive Surgery, Inc. (AAFPRS) 1-800-332-FACE

• The American Cleft-Palate Craniofacial Association (ACPA) and Cleft Palate Foundation (CPF)

• American Speech-Language-Hearing Association

Cleft Lip information - Description of how surgery corrects the cleft

Post-Op Care (Arm Restraints/Feeding)

Arm Restraints by Medi-Kid

Snuggle Wraps

Non-Chew Cookbook

Zip-n-Squeeze Feeding System

Websites showing images (Anatomy)

• From: Hellenic Craniofacial Center - Anatomy Page

• What is a Cleft lip and palate? From the Cleft Palate Foundation

• What is a palate? From the Univ. of Virginia Children's Medical Ctr. Contains info. on how/when the lip/palate forms in utero.

On Speech and Hearing

• Speech & Language Milestone Chart

• Apraxia Kids

• NICHCY Info about Speech & Lang. Disorders

• Ear Surgery Information Center

• Ear Infections and Ear tube Surgery from Kids Health

• Histology and Microscopic Anatomy of the Ear
  from Indiana Univ. School of Medicine - Fort Wayne

• What is the Eustachian Tube?

• Ear Infections from Texas Dept. of Health

Links to clinics/doctors:

Links checked on May 24, 2000:

• Thomas D. Cronin and Raymond O. Brauer Cleft Palate and Facial Reconstruction Institute (Houston, TX)

• Brigham Women's/Children's Hospital (Boston, MA) Plastic Surgery Dept. (Dr John Mulliken)

• Cedars-Sinai Medical Center Craniofacial Clinic

• Cincinnati Children's Medical Hospital Center

• Cleft clinic at Mayo Medical Center (Rochester, MN)

• Cleft-Palate Craniofacial Center, University of Pittsburgh

• CHOP: Children's Hospital of Philadelphia

• Dallas Plastic Surgery Institute

• Tennessee Craniofacial Center (Chattanooga)

• Texas Craniofacial Center (Houston)
  Texas Pediatric Surgical Associates

• Medical College of Georgia's Craniofacial Ctr.

• Children's Mercy Hospital (Kansas City, MO)

• Children's Healthcare of Atlanta

• Scottish Rite's Center for Craniofacial Disorders

• Operation Smile

• a TON of links on this page

• Cleft Pals (Australia, New Zealand, etc)

• Australian Cranio-Facial Unit

• Chedoke Child and Family Centre (Ontario Canada)
  Now Hamilton Health Sciences Corp.

Special Feeding Issues:

• Oral-Motor Therapy Resouces (Books you can order)

• Read some parent's issues with Oral Defensiveness

Of interest to Tracheostomies:

• Aaron's Tracheostomy Page

Interesting Reading:

• John Stephenson, founder of McGill Medical College, first cp patient of Dr. Philibert Roux

• Pharyngeal Flap

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