My story

Below is my story, living with ALS.

September 1993: Problem walking. Impossible to run. I was then 26 years old. Went to doctor in october. He tested my legs and referred me to a neurologist. In november i went to see him. He wanted me to get a CT scan of my back and legs. The scan gave no answer.

December 1993: Doctor referred me to a new neurologist.

January 1994: MRI scan on Ullevål hospital in Oslo.

February 1994: EMG and spinal cord fluid taken out.

Note: The neurologist had many theories: Brain tumor,
MS or a virus infection. After the EMG i was diagnosed with ALS.

August 1994: Got my first wheelchair (Quickie).

February 1995: Got my first electrical wheelchair (Ortopedia).

March 1995: Lost my ability to speech in the way people could understand me.

December 1998: Got new electrical wheelchair (Zenit 4000) with Rolltalk pc. See more at Rolltalk home page

December 1999: Pneumonia, hospitalized at Diakonhjemmets hospital. Got a trach. Needed ventilator 24 hours.

February 2000: Got PEG (feeding tube) to easily get nutrition and fluids.

March 2000: Ventilator only at night. Doctor warned me about quitting using ventilator.

May 2000: Moved home to my apartment. 15 may quit using ventilator after several blood tests and oxymeter showed sufficient oxygen in my blood. Doctor said that i must be aware of the warning signs if i need oxygen.

May 2002: Living at home without ventilator and with excellent helpers.

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