|
Susan G. - 12/14/00 17:18:44 My Email:rjjgag@netzero.net | Comments: Hello, I have a son born March 1, 1996. I went into preterm labor with him at 28 weeks, and was given terbutaline. When he was 2 yrs. we experienced behavioral problems with him, he showed no initiative to help himself, and he was slower in other developemental tasks as well. I also have had troubles. I have chronic asthma and allergies, in otherwords: Cardiovascular disease. I never had this before. I have to take 2 inhalers each day. Albuterol and Provent. I can't help wondering if by being given this drug during my pregnancy has anything to do with these problems we are now having to deal with? Is it possible the drug treatment during my pregnancy could have caused developmental delays in my son, and my cardiovascular disease?? |
|
Y. MARTINEZ - 11/08/00 06:44:07 My Email:MARIOSBABY@HOTMAIL.COM | Comments: |
|
Kait - 10/23/00 16:36:20 My Email:coregn@hotmail.com | Comments: I appreciate this site. I have had 2 preterm babies, and have been on Trebutaline (and it's generic forms), Procardia (and the generic), Mag Sulfate, and now with this baby Mag Ox (oral med for home use). I hate the effect of these medications. And I was iven no information on the effects of any of them. In fact, the doctor never explained the Mag Ox to me. I am experiencing sever nausea, and my balance is very far off. Yet, I was told not to return to the hospital or Doctor's office unless it was for an pointment or due to bleeding, my water braking, or the baby not moving. My doctor, said that I would contract painfully and regularly until delivery- but that because my cervix is stitched closed it doesnt matter. I wish that I had had the pregnant patien s bill of rights available before I was discharged. |
|
Beth - 09/16/00 22:56:01 My Email:sbuzzo2@emeraldis.com | Comments: Hi Karen, I found your site in Feb. after I was released from the hospital. This was my second pregnancy which ended in preterm labor. My first child was born at 28 wks. He is a healthy 11 yr. old but has ADHD and is on med. for that. My second son was bor on valentine's day at 18 wks. gestation. I was put on Mag iv a few days before but it didn't stop my contractions. They took me off when I developed pulmonary edema and congestive heart failure. Alex weighed 1lb. 2oz. and he died the next day. After h ving time to think about things and wonder what went wrong, I remember words from your study of Mag sulfate (there is a thin line between a theraputic dose and a toxic dose). I still have heart problems now. My 1st stress test in March showed no error i blood flow. Will go next month to have another one done. No one in the hospital told me of side effects from this drug. Thanks for helping me understand. Beth |
|
karen - 08/14/00 00:59:02 My Email:karens@postnet.com | Comments: Jessica, You didn't leave an e-mail address, so I'll try to answer your guestbook post here. As far as I know, hemorrhaging is not a side effect of combining mag sulfate and terbutaline. Plus, it seems like your condition occurred many weeks after you received t ese drugs. I believe both should have been out of your system by then. |
|
Jessica - 08/13/00 22:43:23 | Comments: I went into preterm labor and a combination of mag sulfate and breathine was used to stop contractions. I was given these drugs for over a week. My lungs decreased by 40% and I had severe vomiting with headaches. This occured at my 28th week. At about 30 eeks the contractions stopped. I delivered at term without any drugs or pain relievers. My daughter was a healthy 7 1/2 pounds. An hour after my labor I hemmoraged. I was wondering could all the drugs given for preterm labor could have caused the bleeding |
|
Doug W. - 08/01/00 17:28:08 My Email:DougW@silicontechnologies.com | Comments: Hello: Looked at your site. We are 21 weeks with triplets. One prior child - full term, no complications. In hospital w/ contractions. Cervix looks great, no funneling. Dr. prescribed Brethine, one shot, now orally every 4 hours. Contractions stopped expect when blatter is full. Dr. is very conservative and wants her to stay in hospital on bedrest for remainder of pregnancy. I would like to have Brethine reduced and stopped asap. Do you agree? She had diarea for 4 days prior to contractions and I think she may have been dehidrated. She drinks a lot of fluids and they put her on one IV because of the report of diarea. However, that made her blatter fill more often requiring her to empty too often. I'm afraid that her fluids and vitamins are not eing regulated accurately. Any help? |
|
shannon farmer - 07/19/00 04:18:11 | Comments: Thanks for the info! I experinced almost the same stroy as you! |
|
Jen - 06/25/00 11:58:26 My URL:http://indigo.ie/ My Email:ttanner@indigo.ie | Comments: I came across your website and I am very interested in both sides of the argument. I went through a horrific preterm labour experience. I went into labour on a Friday in January 1998. My waters broke on the Saturday. Contractions were on, off over the next few days, until they became very intense on the following Tuesday. I was taken up to the delivery suite. Labour became very intense but the hospital didn't have a ventilator that night and after searching around the other maternity hospitals in the area, they wasn't one to be found in the county. I was then asked was I allergic to any drugs. I said a small breathing tablet and to get my husband to call my mother to get the name. They said that didn't matter. We had no idea that a breathing drug ould be used in the management of preterm labour. We I was a child I had an allergic reaction to Salbutamol, ie. severe shaking. When my mother told the local GP, he said to take me off it straigt away. Anyway I was given Salbutamol introvenously and w thin seconds had a severe reaction. I was shaking violently, hyperventilating, I thought I was going to have a heart attack. I couldn't see properly as my head was spinning and I was also vomiting. I was on the drug 15 minutes before they decided to ta e me off. During this time my husband was very distressed and was shouting at the midwife to take me off the drug. It did slow down labour until 5am the next morning. The baby went into fetal distress at 8 am and was delivered by Emergency Section at 9 30am. A ventilator was then available and he was brought up to the NICU. In the days that followed we both developed breathing problems and were both diagnosed with pneumonia. My baby developed Chronic Lung Disease even though I had steroids to develop his lungs intro utero. My son is now 2 years old and has spastic quadriplegic Cerebral Palsy. He also has Optic Nerve Hypoplasia and Cortical Visual Impairment. Although he has a huge physical disability, he is extremely bright. My husband and myself oth believe that the Salbutamol contributed to his condition and would be very interested to hear from other parents with a similar experience. Hope to hear from you soon. P.S. It is wonderfull to finally discover a website that gives a different point of view, because everything is very "hush, hush" in the medical profession. |
|
Keesha Stallings - 06/22/00 18:16:26 My Email:Keesha_80_2000@yahoo.com | Comments: I have been on "Brethine" (terbutaline sulfate) for 4 weeks now due to going into labor at 29 weeks gastation. My doctor never told me any of these details about the drug. In fact, when I asked he said " oh it will not hurt the baby " and it won't effec me any besides a little nervousness. Your web site has been extremely helpfull to me. My fiancees' father has the 2000 phycician desk reference book, in which we looked up Brethine and it says its for asthma. It also has special information for pregnan , plan to get pregnant, and breastfeeding mothers. I was planning to breastfeed and I found out I can't now that I am taking this med. My doctor never told me that. And to think of taking a medicine not approved by the FDA. All this information was so verwhelming. Your web site is very deserving. I thank you for your time and for caring. I wish youthe best of luck. |
|
roseanne seminara - 06/17/00 15:35:59 My Email:psmidwife@aol.com | Comments: |
|
jill unger - 06/16/00 17:18:52 My Email:munger@fbfast.com | Comments: |
|
shelly buynum - 05/08/00 13:57:32 My Email:buynum@msn.com | Comments: My beautiful daughter went into premature labor at 24 wks and was placed on Mag Sulfate. We were not informed of the adverse affects, and she was not monitored properly during the adminisrtation. I was told by an Rn she was given an overdose and there was an antidote, calcium carbonate. It was never ad inistered, in fact, the pulmonary resident restarted the Mag Sulfate after it had been turned off for two hours. Labor was induced and she delivered a "stillborn" the following day. She developed ARDS and died 45 days later. Karen if you can provide me wi h any information on Mag Sulfate causing ARDS please email me. I think your site is excellent and I'm sure will help many. |
|
Lori Beale - 04/26/00 16:30:35 My Email:lbeale@pomeroy-wa.com | Comments: I would be interested in any info about effects on children who were exposed inutero to trebutaline.I was given this when 26 weeks pregnant with twins. Both have muscular issues, one hightone the other lowtone(slightly). One was delayed in all areas and oth are improving with special help. |
|
Suzanne Reynolds - 04/26/00 04:20:00 My Email:grady@naxs.net | Comments: I was so glad to see all of the information you provided on this website. I was prescribed oral brethine at 23 weeks, and progressed to the pump by 26 weeks. My baby was born at 35 weeks after a long period of jitters and discomfort. My ob/gyn was not articularly communicative with me about what was going on. So glad to get some answers about this medication. I'm not alone. |
|
Ashley - 04/16/00 01:47:33 My URL:http://geocities.datacellar.net/hollywood/cinema/4817 My Email:ashley_honey@hotmail.com | Comments: Nice page! I was in preterm labor and used two of the drugs mentioned on your page. The information was useful, but how accurate is it, alot of the articles contradicted themselves. |
|
MARIE - 04/13/00 19:06:49 My Email:MARIEXMIKE@AOL.COM | Comments: MY NAME IS SHA MARIE FLANNERY. I AM 34 YEAR OLD MOTHER OF 4 CHILDREN. MY HUSBAND WAS KILLED IN AN ACCIDENT OVERSEAS WHILE ON ACTIVE DUTY NAVY. WHILE PREGNANT WITH MY LAST BABY I WAS GIVEN THE DRUG TERBUTALINE TO PREVENT PREMATURE LABOR. THE DAY AFTER DEVLIVERY I WENT INTO A.R.D.S. (adult respiratory distress syndrome) I WAS PUT ON A VENTILATOR. MY FAMILY WAS TOLD 3 TIMES THAT I WAS DYING. WELL I DIDNT DIE. BUT NOW I LIVE WITH BRAIN DAMAGE. I HAVE TO WRITE EVERYTHING DOWN. I HAVE NO SHORT TERM MERMORY WHAT SO EVER. I HAVE NO CONCEPT OF TIME. I HAVE NOT BEEN ABLE TO WORK SINCE JUST BEFOR MY DELIVERY IN 1996.I GET LOST GOING TO THE STORE OR THE DOCTOR. ESPICALLY IF I GO OUT IN THE DAYLIGHT BUT WHEN I TRY TO RETURN HOME IT GETS DARK.I CANNOT HELP MY CHILDREN WITH THEIR HOMEWORK. I CANT DO MATH. MY VAN HAS BEEN REPOSSED. I HAVE A FORCLOSURE NOTICE ON MY HOUSE I HAVE OVERDRAWEN CHECKS TOTALING ABOUT $3000.00 PLEASE HELP ME! SHA MARIE FLANNERY I FILED A TORT CLAIM ON NOVEMBER 26 1997. A TORT CLAIM IS WHAT YOU HAVE TO FILE TO COLLECT DAMAGES FROM THE US. GOVERNMENT. I WAS TREATED AT KEESLER AIR FORCE BASE. A GOVERNMENT HOSPITAL. ONE OF MY DOCOTORS DID STUDIES ON TERBUTALINE. Robert W. Naef III, MD Incidence of adverse cardiopulmonary effects with low-dose continuous terbutaline infusion October 1995 • Volume 173 • Number 4 (AM J OBSTET GYNECOL 1995;173:1273-7.) Incidence of adverse cardiopulmonary effects with low-dose continuous terbutaline infusion Kenneth G. Perry, Jr., MD, John C. Morrison, MD, Orion A. Rust, MD, Christopher A. Sullivan, MD, Rick W. Martin, MD, and Robert W. Naef 111, MD Jackson, Mississippi OBJECTIVE: Our purpose was to determine the Incidence of adverse cardiovascular effects of terbutaline sulfate When administered as a continuous subcutaneous infusion in women with arrested pretrem tabor. STUDY DESIGN: Over a 6-year period records from 8709 women prescribed this therapy for preterm labor that had preivously been arrested with other intravenous tocolytics were reviewed.These women were assessed daily for cardiovascular complaints and tolerance of the medication, while either in the hospital or at the home (by telephone). The main outcomes studied were the occurrence of pulmonary edema, sustained cardiac arrhythmias, cheat pain, or myocardial Ischemia. Any maternal death regardless of cause was also reviewed. RESULTS: Of the 8709 subjects, 47 (0.54%) had one or more cardiopulmonary problems. PuImonary edema developed In 28 patients (0.32%) while receiving continuous subcutaneous Infusion of terbutaline, 5 at home and 23 in the MOM. of the total, 17 women were being treated concurrently with large amounts of Intravenous fluids and one to three other tocolytic agents. In the 11 remaining subjects, 4 were diagnosed with pregnancy induced hypertension and/or multiple gestation. Nineteen patients experienced other advers to determine the Incidence of adverse cardiovascular effects of terbutaline sulfate When administered as a continuous subcutaneous infusion in women with arrested pretrem tabor. STUDY DESIGN: Over a 6-year period records from 8709 women prescribed this therapy for preterm labor that had preivously been arrested with other intravenous tocolytics were reviewed.These women were assessed daily for cardiovascular complaints and tolerance of the medication, while either in the hospital or at the home (by telephone). The main outcomes studied were the occurrence of pulmonary edema, sustained cardiac arrhythmias, cheat pain, or myocardial Ischemia. Any maternal death regardless of cause was also reviewed. RESULTS: Of the 8709 subjects, 47 (0.54%) had one or more cardiopulmonary problems. PuImonary edema developed In 28 patients (0.32%) while receiving continuous subcutaneous Infusion of terbutaline, 5 at home and 23 in the MOM. of the total, 17 women were being treated concurrently with large amounts of Intravenous fluids and one to three other tocolytic agents. In the 11 remaining subjects, 4 were diagnosed with pregnancy induced hypertension and/or multiple gestation. Nineteen patients experienced other adverse cardiovascular effects, including electrocardiogram changes, irregular heart rate, chest pain, or shortness of breath. CONCLUSIONS: Continuous terbutaline infusion for women with stabilized preterm labor is associated with much fewer adverse effects than previous literature regarding intravenous B-adrenergic agonist therapy would suggest. (A m J Obstet GYNECOL 1995; 173:1273-7.) Key words: Preterm labor, terbutaline, cardiovascular side effects Despite evolving patterns of management, the incidence of preterm birth has not decreased over the past several decades.' Whereas most investigators agree that both B-adrenergic receptor agonist drugs and other tocolytic agents prolong gestation for a short period of time, others maintain that such drugs, when administered appropriately, may extend pregnancies as much as 6 to 8 weeks.` -' Regardless of the length of pregnancy prolongation. such therapy appears cost-effective if given to women in preterm labor before 34 weeks.' In the United States the B-adrenergic receptor agonist agents most often prescribed are ritodrine hydrochloride and terbutaline sulfate.` '- -' Most studies find that terbutaline 'is less expensive, is slightly more efficacious, and has fewer side effects even though not labeled for Use as a tocolytic. Since approximately 5% of the total obstetric Population will be treated with B-adrenergic receptor agonist at some time in pregnancy, it is important for health care providers to be aware of potential side effects and adverse reactions. Maternal problems associated with these agents include hyperglycemia, hypokalemia, and cardiovascular effects such as pulmonary edema, cardiac arrhythmia, myocardial ischemia and hypotension. Adverse effects on the cardiopulmonary system are the most common and most serious of all complications. Serious cardiac effects such as sustained arrhythmias, pulmonary edema, or maternal death are almost always reported in (1) patients with morbid cofactors such as pregnancy induced hypertension, hydramnios, or multifetal gestation; (2) those who receive multiple tocolytics by the intravenous route; or (3) women treated with intravenous agents at maximum doses of > 24 hours with limited attention to fluid balance.` ' ' The severe cardiac problems are extremely rare with oral or subcutaneous therapy because the dose is much reduced compared with intravenous therapy.` ` ` ' Whereas oral B-adrenergic receptor agonist therapy at home is associated with few cardiopulmonary complications, the reduced dosing profiles (approximately 3 mg per 24 hours) used for subcutaneous B-agonist infusion From the Division of Maternal-Fetal Medicine, Department of Obstet and Gynecology University of Mississippi Medical Center. Supported in Part by the Vicksburg Hospital Medical Foundation. Presented at the Fifteenth Annual Meeting of the Society of Perinaial Obstetricians, Atlanta, Georgia, January 23-28, 1995. Reprint requests: John C. Morrison MD, Department of Obstetrics and Gynecology University of Mississippi Me" Center, 2500 North State St., Jackson, MS 39216-4505. Copyright 0 1995 by Mosby--Year Book, Inc. 0002-9378195 $5.00 + 0 616167330 1273 THIS WAS PUBLISHED IN 1995. I WAS PUT ON TERBUTALINE IN 1995. COULD MY DR HAVE FORGOTTEN ABOUT THIS STUDY? A COPY OF MY DISCHARGE SUMMARY MEDICAL RECORD NARRATIVE SUMMARY (CLINICAL RESUME) DATE 0F ADMISSION DATE OF DISCHARGE # DAYS HOSPITAIAZED I I JAN 96 23 JAN 96 ADMITTING DIAGNOSIS: INTRAUTERINE PREGNANCY AT 35 AND 2/7 TH WEEKS DELIVERED ADULT RESPIRATORY STRESS SYNDROME. PROCEDURES: PRIMARY LOW SEGMENT TRANSVERSE CESAREAN SECTION AND THE PATIENT UNDERWENT MECHANICAL VENTILATION. AND SWAN-GANZ CATHETER PLACEMENT. HISTORY OF PRESENT ILLNESS: 30-year-old white Female, gravida IV, para 1-0-2-3, last menstrual period was 05 May 1995, and date of confinement 13 Feb 1996, 35 and 2/7th weeks as confirnied by a 8 and 5/7 week ultrasound. Antepartum course was complicated by history of preterm labor and delivery, x's 2, chronic hypertension,and gestional diabetes,A l. tremor possibly hereditary and chronic depression. The patient was followed very close in the complicated OB Clinic here at Kessler. Estimated fetal weight via scan per Robert W. Naef in internal fetal medicine was 4,547 grams. Breech infant with an AFI of 35.6 on 08 Jan 1996. Amniocentesis performed on 08 Jail 1996 revealed an LS ratio of 2.5: 1. The patient declined the paternal version. The patient also desires bilateral tubal ligation and signed sterilization request on 12 Oct 1995. OB HISTORY: Vaginal delivery at 34 weeks 6 lbs 3 oz. infant: in 1988, vaginal delivery of 42 weeks of an 8 lb. 2 oz. infant and in 1990 a vaginal delivery at 32 weeks of an 8 lb 13 oz. infant complicated by gestational diabetes. GYN HISTORY: No STD, PID or IUD. Positive history of abnormal Pap smear. In 1991. had cryotherapy. Her last Pap smear was in April, 1995 and was within normal limits. PAST MEDICAL HISTORY: She is a housewife and is the dependent wife of active duty U.S. Navy. Military history is negative for any overseas travel. HABITS: One pack per day. Alcohol rare. FAMILY' HISTORY: Positive for diabetes mellitus. Childhood illnesses: The patient reports usual childhood illnesses, PAST MEDICAL HISTORY: Carpal tunnel syndrome and depression. PAST SURGICAL HISTORY: Carpal tunnel release in 1995. SIGNATURE OF PHYSICIAN DATE EDGEWORTH, D., CAPT, USAF, MC 25JAN96 RESIDENT, OB/GYN 045G1 PATIENT'S IDENTIFICATION REGISTER NO. WARD NO. FLANNERY, SHA - SS#: ############# 30 CIV N45 590870 3B 81 st MEDICAL GROUP, KEESLER AFB, MS ORGANIZATION: KJJ/3153 D: 0 1/25/96 T: 02/06/96 SF Form 502 COMPUTER GENERATED A COPY OF THE CLAIM I FILED ON NOVEMBER 26, 1997 CLAIM FOR DAMAGE, INJURY, OR DEATH INSTRUCTIONS Please read carefully the instructions on the reverse side and supply Information requested on both sides of this form. Use additional sheet(s) if necessary. See reverse side for additional instructions. FORM APPROVED OMB NO, 1105-0008 EXPIRES 3-31-91 1.SUBMIT To Appropriate Federal Agency. Department of Air Force Brent Richardson Claims Officer 81 TRW/JAD 500 Fisher, Ste. 208 Keesler AFB 39534 2. Name. Address of claimant and claimant's personal representative. if any. (See Instructions on reverse.) (Number, street, city, State and Zip Code) Sha Marie Flannery 1200 7th Street Long Beach, MS 39560 3.TYPE OF EMPLOYMENT ___ MILITARY ___ CIVILIAN 4. DATE OF BIRTH 11/30/1965 5. MARITAL STATUS widow 6. DATE AND DAY OF ACCIDENT 12/95 & 1/96 7. TIME (A.M. OR P.M.) Various 8. BASIS OF Claim (State in detail the known facts and circumstances attending the damage, Injury. or death, identifying persons-and-property Involved. the place of occurrence and the cause thereof) (Use additional pages If necessary) Negligence in prescribing terbutaline for tocolysis during Mrs. Flannery's pregnancy. As a result of this medication she sustained severe injuries including adult respiratory distress syndrome and anoxic encephalopathy. 'Terbutaline should not have been prescribed because it is not approved nor recommended for use as a tocolytic. Also, its use was contraindicated given the patient's condition including chronic hyper-tension, gestational diabetes, and symptoms of preeclampsia. In addition,. the patient's condition during the prolonged administration of terbutaline should have been closely monitored and was not. Moreover, Plaintiff was not adequately informed of the risks of this medication. 9. PROPERTY DAMAGE NAME AND ADDRESS OF OWNER, IF OTHER THAN CLAIMANT Number, street, city, state. and Zip Code) N/A BRIEFLY DESCRIBE THE PROPERTY, NATURE AND EXTENT OF DAMAGE AND THE LOCATION WHERE PROPERTY MAY BE INSPECTED. (See instructions on reverse side.) N/A 10. PERSONAL INJURY / WRONGFUL DEATH STATE NATURE AND EXTENT OF EACH INJURY OR CAUSE OF DEATH, WHICH FORMS THE BASIS OF THE CLAIM. IF OTHER THAN CLAIMANT STATE NAME OF INJURED PERSON OR DECEDENT Adult respiratory distress syndrome and related conditions requiring prolonged hospitalization in ICU and resulting in permanent brain damage. 11. WITNESSES NAME ADDRESS (Number, street, city, State. and Zip Code) 12. (See instructions on reverse) AMOUNT OF CLAIM (in dollars) 12 a PROPERTY DAMAGE N/A 12 b PERSONAL INJURY $2 million 12 c WRONGFUL DEATH N/A 12 d TOTAL (Failure to specify may I cause forfeiture of your rights.) $2 million I CERTIFY THAT THE AMOUNT OF CLAIM COVERS ONLY DAMAGES AND INJURIES CAUSED BY THE ACCIDENT ABOVE AND AGREE TO ACCEPT SAID AMOUNT IN FULL SATISFACTION AND FINAL SETTLEMENT OF THIS CLAIM 13 a SIGNATURE OF CLAIMANT (See instructions on reverse side.) 13 b Phone number of signatory (228) 864-6749 14. DATE OF CLAIM 11/26/97 CIVIL PENALTY FOR PRESENTING FRAUDULENT CLAIM The claimant shall forfeit and pay to the United States the sum of $2,000 plus double the amount of damages sustained by the United States (See 31 U S C 3729.) CRIMINAL PENALTY FOR PRESENTING FRAUDULENT CLAIM OR MAKING FALSE STATEMENTS Fine of not more than $10,000 or imprisonment for not more than 5 years or both. (See 18 U.S.C. 287, 1001.) NSN 7540-00-634-4046 STANDARD FORM 95 (Rev.7-85) PRESCRIBED BY DEPT. OF JUSTICE 28 CFR 14.2 |
|
- 04/05/00 12:07:57 | Comments: |
|
Karen - 03/31/00 20:02:16 My Email:karens@postnet.com | Comments: Ms. Hughes, I unsuccessfully tried to e-mail you. Procardia also is known as nifedipine, and I do have information on it on my web site. Let me know if you have any questions |
|
EXSPARONNZA HUGHES - 03/25/00 23:26:39 My Email:EWILL89452@AOL.COM | Comments: I WOULD LIKE TO KNOW THE SIDE EFFECTS AND ANY THING ELSE IMPORTANT ABOUT PROCARDIA FOR PRETERM LABOR I KNOW IT IS USED FOR HEART PROBLEMS |
|
Tracy Westmoreland - 03/07/00 02:14:20 My Email:tracymw@bellsouth.net | Comments: Your site really helped me understand the drugs the doctor has me on for premature labor. I have really been concerned for the last two weeks that I have been on them. Thank you for the information! |
|
chrissy majeski - 01/31/00 17:06:26 My URL:http://netscape.net My Email:cmaj@netscape.net | Comments: I was also on breathine when i had gone preterm with both of my children, now 7 and 9. I would like to know if anyone has heard of any longterm effects on their children? both of my children have amblyopia and other eye problems. Those of which noone in t e imediate family have. Very disturbing in my opinion. Iam very concerned about this drug. I have not been able to find any info on any longterm effects. My daughter also has curviture of the spine, which the surgeon is mystified by, since noone at all in the family has this condition. I too suffered severe shaking and I was also feeling both my children shaking badly inside if me when i was pregnant with them. I will absolutely refuse this drug in my next pregnancy! |
|
melissa tait - 01/04/00 07:22:50 My Email:taiter@the-onramp.net | Comments: I was put on mag sul. for preterm laber 2 nights ago. I was so physicly ill I had no control over any bodly functions. I vomited for 5 hours. and bagged for help. Please stop this now I told them over and over, Finally they turned it down. Well come to fi d out the nurse gave me double the dose the doc. ordered. I now wonder what my log term efficts will be. |
|
Michelle - 12/12/99 21:21:10 My Email:gartonpm@aol.com | Comments: Your info has been very helpful Keep up the good work Please e-mail me on anything, just knowing people like you are around is a great feeling. Love Michelle (26 year old ppcm sufferer) |
|
Jim Marino - 10/12/99 16:04:09 My Email:JAMPC@aol.com | Comments: Thank you for developing this site. It was very easy to get to (Yahoo) and quite straightforward without too much medspeak jargon. Good info accessible at what could be a very difficult time (wife on bedrest, fear of unknown, etc) Jim |
|
Laurie Solari - 09/21/99 02:41:44 My Email:solari7@sover.net | Comments: I too had a pregnancy from hell. It was my fourth pregnancy and I was carrying twins. I began to dialate at about 28 weeks and was put on Terb, mag and brethane and steroid shots. I went from the local hospitol to Baystate. I gave birth to identical girls at 38 weeks after being induced. They were 6lbs 30z and 6lbs 1 oz and very healthy. I delivered them naturally. I do not feel I was treatedfairly or given choices, nothing was expalined to me and when it was my opinions did not matter. During this time of crisis all I could think of was my babies. I fell into the catagory of people who thought they knew what was best. My advice to anyone in a simialr situation is be prepared ,ask questions, make your own decision and make sure you are heard.The side effect Iexperienced were nausia, jittery, sleeplessness, and heart palpations. I am still concerned about long term effects for me and my babies. Thank you Karen for this wonderful site!!!! |
|
Laurie Solari - 09/21/99 02:30:04 My Email:Solari7@sover.net | Comments: Bravo to Karen for creating such a wonderful site!!! Are there any cases where woman experience symptoms after deliveries? How long and how about the babies, are thereany long term effects? |
|
Karen Rose - 09/17/99 13:14:06 My Email:KR11566 | Comments: This is my second comment in less than a week, I must say, Thank-You again Karen, for this site! I have to say to all the other women out there, who in one way or another have suffered ill effects from taking "off" labled drugs perscribed for there preter labor......I'm sorry, for you and myself, for falling in some way victims, to doctors who perscribe drugs at a time of CRSIS, and our choices are limited by our over whelming need as a MOTHER to make sure the outcome of our pregnancies are a happy,health , full term baby!I also say to the Mom's who have had no ill effects, or health care professionals who's views are not the same....YOU ARE the lucky ones! We all need to support eachother, by being compassionate... I respect everyone's individual choices, isn't that what this is about? Choice, To "fully" understand what may be a long term decision for ourselves and our children!! Karen Rose |
|
Kristine - 09/16/99 05:24:43 My Email:mikess@sprintmail.com | Comments: COME ON PEOPLE!! to all those with the negative comments regarding this fantastically important site: I am of the belief that while terbutaline my indeed help those in true pre-term labor, it is too easily given in some situations. The risk to benefit r tio cannot be truly determined if the patient is 1. not informed 2. not screened for underlying heart factors contraindicating this drug. I was overloaded on IV terb at almost 33 weeks after 3 subQ shots if it. When the IV was ordered over the phone th contractions had become more infrequent, much less intense and no cervical changes were noted. If I had had ANY idea re' warnings associated with this drug I would never have agreed to the IV. They had to shut off the IV when I developed tachycardia, s ortness of breath, and a pronounced murmer. A year later I still have skipped beats, palpitation episodes and evidence of a trace-mild murmer. All PTL symptoms vary greatly so the dangers of this drug need to be made known to patients so they know it's ot a benign thing to take "just incase". Great job Karen and anyone please e-mail me with your stories....I'd be interested in being involved with any movement requiring more formal informed consent policies when dealing with high-risk "off-label" use of drugs. THANKS!! |
|
Karen Rose - 09/13/99 17:01:29 My Email:KR11566@aol.com | Comments: Karen, What a wonderful page! 4 yrs ago, I myself went through a preterm nightmare! I was 29 weeks pregnant, with my second child, and I too took turb., Mag.and several other drugs to prevent my daughter's arrival too early! Yes I did make it full term,after t e last 11 weeks on bed rest, 3 of them in and out of the hospital. Would I take the drugs again? I can honestly say, no. The choices I made back then were for the wrong reasons, I think if I had more education I would have done things diffrently, I appl ud your effort to help give women information and choices! No one to this day, 4 yrs. later, can tell me if this will have any ill effects on myself or my child,I know thats not the case already. Keep up the good work, and if anyone would like to write,I ould love to listen! Thanks, Karen Rose |
|
C. Renea Boyer - 09/08/99 01:43:04 My Email:CRBoyer@GTE.NET | Comments: I did not read the "guestbk" prior to sending my comments- as an update: we did not use turb during the 2nd preg as I was not far enough along when complications began. Would I use the turb again w/ this pregnancy? Even after completing a large amt of r search regarding side effects for both myself & my child (including reading med research stored @ OSU med library) I answer w/ a resounding < |
|
C. Renea Boyer - 09/08/99 01:16:33 My Email:CRBoyer@GTE.NET | Comments: I used SQTP beginning @ 24 wks in Nov '94 w/ my 1st preg along w/ a home uterine contraction devise. I responded extremely well and maintained the preg to 34 wks. I had minimal side effects, shortness of breath, shakiness, increased heart rate, but nothin serious enough to consider discontinuation of the turb. Our dtr experienced breathing apnea for approx 5mos following birth, but this was not attributed to the turb, but her early delivery. I delivered at Riverside Hosp in Columbus, OH which is known for advanced treatment methods & excellent patient health. I am currently carrying our third child, we lost a son last year at 24 weeks after complications began at 14wks, and am currently at 7wks. While we did not plan this pregnancy we are committed 100% to making every effort to having a healthy child. Your si e is one of the most informative I have located regarding the treatment of pre-term labor and the medications used. Thanks for your research that includes updated and very current information. Renea |
|
- 08/23/99 23:14:48 | Comments: |
|
shannon mcbride - 08/23/99 16:08:38 My Email:bmcbride@icx.net | Comments: Great web page for moms to be on terbutaline. Wondering if you would do it again if you were in preterm labor |
|
ANGELA HEMPSTEAD - 08/13/99 15:19:40 My Email:Hempstead@tesconet.com | Comments: I CAME UPON YOUR PAGE BY ACCIDENT AS I WAS LOOKING FOR INFORMATION ON THYROXINE AND SIDE EFFECTS BUT I DID READ IT AND FOUND IT VERY INTERESTING. THANK YOU. |
|
Colleen - 08/13/99 00:33:59 My Email:Wyldwood1@aol.com | Comments: Hi Karen, It is such a shame that you have gotten so many negative comments directed at your extensive research. Perhaps some of the people with so much to say should lay in a hospital bed fighting for their lives with an 8% ejection fraction because of a drug not even approved by the FDA to treat pre term labor, but somehow it is still used "off label". I now live with a defribillator/pacemaker implant and take 5 different heart meds to try to repair the extensive heart damage. Then they should have to explain t their 6, 5, and 21 month old daughters that no ones knows for sure how much longer Mom will be around. Perhaps after they have lived our horror stories they may have something intelligent to say. My hat goes off to you for your research and I support y u 100% !! Great to know I am not alone! |
|
Teri Calhoun - 07/28/99 17:47:35 My URL:http://geocities.datacellar.net/heartland/village/3644 My Email:tcalh359@aol.com | Comments: Thank you for the information. This is my second preterm birth and I wish I had this information the first go around! Teri |
|
Carol Harmon Whitten - 07/22/99 18:39:49 My Email:carowhit@mailstn.sarmc.org | Comments: What about Atosiban |
|
Tambra Zukowski - 07/09/99 16:58:47 My Email:tambraz@angelic.com | Comments: Thank you so much for this page. I was on the Terb. Pump for 2 1/2 months whit my daughter. After I had her I started having problems. My family practitoner found that I had "postpardum cardio myopathy". I was told I should not have anymore children. I tr ed to find out why this happened and went to several doctors but got no answers. Until recently I went to a very good Cardioligst. He told me that I got so sick because of the Terbutaline. Thank you for all the info on this drug. |
|
Angie - 07/02/99 19:26:27 My Email:Wings4Me@aol.com | Comments: Karen, I have a friend that would add to your statistics....I can't share the info without her permission, but she had a negative experience with terbutaline. Of course, I would not help your arguments myself. I was on the t-pump for about 10 weeks. I ad side effects, but my child was born closer to her due date and was very healthy. I would be glad to contact my friend, though, if you would be interested in her story. Let me know....Angie |
|
Morgan - 07/02/99 01:38:23 My Email:mdk72370@aol.com | Comments: Thank you for all your information, this is the only site that I have gotten any real info on. I have been given terbutaline and mag sulfate with both of my pregnancies and am now experiancing cardiac problems. Any info on long term effects? |
|
Elayne - 06/30/99 18:54:28 My Email:gleldem@aol.com | Comments: i found your site to be extremely frightening. you are not a doctor, you are someone who found all the negative articles she could and posted them on the internet to scare women who are taking these drugs,(myself included). its bad enough that many women ave feelings of guilt because they are constantly questioning what they could have done to cause all of these problems. now they have you telling them that if they take these drugs they will be harming themselves as well as their unborn child. you seem to have had a very bad experience, but shame on you for trying to scare women who are doing whatever they can to prolong their pregnancy and have a healthy baby! |
|
Elayne - 06/30/99 18:53:04 My Email:glelde@aol.com | Comments: i found your site to be extremely frightening. you are not a doctor, you are someone who found all the negative articles she could and posted them on the internet to scare women who are taking these drugs,(myself included). its bad enough that many women ave feelings of guilt because they are constantly questioning what they could have done to cause all of these problems. now they have you telling them that if they take these drugs they will be harming themselves as well as their unborn child. you seem to have had a very bad experience, but shame on you for trying to scare women who are doing whatever they can to prolong their pregnancy and have a healthy baby! |
|
Trishe - 06/24/99 16:08:35 My Email:melisande3@aol.com | Comments: I am 25.2wks pregnant and am now off work and on modified bed rest,and of course on terbutaline as well. I was very pleased to find this site,it is very informative, please keep up the good work. |
|
Karen - 06/24/99 01:29:37 My Email:desdot58@aol.com | Comments: Thank you for the information on this site. I must get my hospital records. |
|
Dyan Rourke - 05/31/99 21:57:26 My Email:dyanchris@aol.com | Comments: just returned home from the hospital, 4 day stay there,for preterm labor, i am only 7 months pregnant, i was given 3 mgs. of mag. for 3 days straight, it was the most awful feeling i have ever felt. i am now on breathine until i reach aprox. 35weeks of pr gnancy, i found your web page very informative. i had doubts about the saftey of mag. it was terrible to be on that for as long as i was, i cant imagine that it is good for the baby. it was a very scarey, out of control feeling. i recieved alot of helpful info. from your site, thank you. |
|
Sugar - 05/07/99 15:24:10 My Email:maggiesugar62@ameritech.net | Comments: I am sorry you had such a hard time with your preterm labor. I had much better experience. 13 years ago, with my first pregnancy I started having contractions at 28 wks. I was hopitalized and put on hydration IV. I had effaced and dilated a little. The co tractions calmed down and after about 5 days I went home. The contractions started again the next day. I was given Ritodrine and startred taking it. My doctor called me every hour to see how I was. After a few days I needed to be brought to a hospital wi h Level 3 nursery by ambulance. I had effaced 85% and was 2 cm dilated with contractions every 5 minutes. I was put in ICU and given 50 mg of ritodrine and hour. Contractions went down to 4 an hour immediately. Every time the dose was reduced my contracti ns increased. The least amount of contractions I had was 4 an hour. After a week we were able to wean me into oral ritodrine and send me to a normal room. (Mag Sulf did nothing for my labor.) I was finally sent home on total bed rest, taking two ritdrine very two hours around the clock. I never had less than 4 contractions an hour for the next 3 months. I had a home monitor which I hated. I used to turn it off before a contraction so I wouldn't have to spend and other hour attached to it. I was taken off itodrine at 38 weeks and went into full scale labor again within hours. If Ritodrine had not been available my daughter would have been born at 28 weeks. My next pregnacy ended in miscarrige. The next one was plagued with contractions, but they were contr lled with fliuds and bedrest. I am pregnant now, 14 weeks and already having contractions. It is too early for tocolytics, but I will happily take them if I go into labor too early with cervical changes, like the first time. |
|
Kathy Grant - 03/16/99 22:05:15 My Email:kgrant@akingump.com | Comments: My 5 year old is diagnosed with hypotonia. He is slow to develop. I took terbutaline for four weeks and magnesium sulfate once while in the hospital. Do you know anything about the prognosis of terbutaline babies? |
|
Sheridan - 03/06/99 23:22:19 My URL:http://www.riplink.com My Email:rsrip@riplink.com | Comments: I love your page! A lot of great information that I wish I had while I was on bedrest and taking brethine. I remember searching for hours on the web trying to find info like this!! Thanks. (Hopefully I will never have preterm labor again, but just in case, I have bookmarked your page!) Sheridan |
|
charlotte - 02/12/99 23:32:02 My URL:http://@aol My Email:blond32d | Comments: I am wondering if there are any side effects to children born whose mothers use ttutibulne? |
|
BARB - 02/05/99 18:29:26 My Email:BJWCDA@aol.com | Comments: What a wonderful page. I too went into preterm labor at 20 wks back in 1987, had injections to develop my sons lungs and was on terbutalin, until I delivered. Karen if you, or anyone you know, has any info on whether these drugs have caused any eye probl ms in these children. I have a wonderful boy who is healthy in every way but has developed eye sight problems. No one in my family has this or my husbands. I think the time you have spent in collecting your info and making this page available is truly onderful. Thank you. |
|
Karen - 02/03/99 01:56:29 My URL:http://geocities.datacellar.net/HotSprings/Villa/3604/ My Email:karens@postnet.com | Comments: In response to the two anonymous posters to my guestbook: The studies and research speak for themselves. I am not making anything up. *Anyone* can go to their nearest medical library and view this research. |
|
- 02/02/99 01:04:33 | Comments: CAUTION!!!!! This web page is providing false information. Tocolytic drugs have been used effectively for many years in the treatment of preterm labor. Please seek the advice of your physician before you make a decision on the use of tocolytic drugs. My w fe was on oral and Sub q terbutaline and oral and iv mag sulfate and we now have healthy children, thanks to her doctor for dectecting and treating her preterm labor with tocolytic therpy. |
|
- 02/02/99 00:46:17 | Comments: The information you are putting on the web is very misleading. These drugs were designed to help women carry a baby to full term, not hurt them. I have two beautiful children who I carried to 35 and 37 weeks with the help of oral terbutaline, terbutaline ump, mag sulfate and oral mag. You are instigating fear in women who these drugs are ment to help. |
|
Karen - 01/06/99 05:11:05 My Email:poohbear@breeze.net | Comments: Thank you for your information. In 1993 I was subjucted to mag sulfate when terbutaline didn't work. I was never told of side effects, I almost had a heartattack in the ambulance during transport to a level 3 hospital which was 100 miles away. While at th hospital I was also put on terbutaline, vistrial, indosine, and dexamethasone. Now I have a child that was still born a month early and she needed a ventalator. She is now 5 and a half with the mentality of a two year old! I wish that I would have been i formed then! |
|
Karen - 12/24/98 13:08:28 My Email:karens@postnet.com | Comments: Molly, Since you didn't leave an e-mail address. I will quote from the study, which I copied in it entirety at a medical library: "Pump therapy was initiated 30 minutes before discontinuation of parenteral magnesium sulfate and was continued until delivery or 3 weeks gestation (whichever came first)." |
|
Molly - 12/24/98 03:51:58 | Comments: Just some feedback regarding the new study you referred to that compares terbutlaine pump and saline. Your statement about this study does not truthfully summarize the results of the study. Thank you for providing the link to the abstract, because I was able to read what the authors really discovered. The women in the study had already had their preterm labor successfully stopped with mag sulfate. Then those women -- with labor already stopped -- were entered into the study. The fact that they were no longer in labor would explain why the saline was as effective as the terbutaline in prolonging pregnancy. I am an RN and a woman 22 weeks pregnant; I am dilating, effacing and contracting, and thanks to my OB, the terbutaline and procardia, and bedrest I hope to deliver a full term neonate. My baby wouldn't have a chance without these drugs. |
|
Daryl Morehart - 12/03/98 21:54:51 My Email:darylesq@aol.com | Comments: |
|
R.S. O'Meara - 11/29/98 22:26:46 | Comments: Your web site does a great disservice to women on tocolytic drugs. It lacks balance and accuracy. Eight years ago, Dr. Wash Hill (whom you quote out of context) was my sister's doctor. He prescribed both terbutaline oral and terbutaline pump. She and her baby are fine, thanks to his most aggressive and determined efforts. Dr. Hill along with every ther physician will tell you every single drug has side effects and potential adverse reactions. The practice of medicine involves weighing the benefits and risks. You obviously have no experience caring for an extremely preterm baby or grieving for one that did not survive. Dr. Hill has a career built on very dedicated efforts to keep pregnancies going after preterm labor begins. I don't know what your real agenda is, Karen, but as you say you are not a doctor. Presenting only one part of a complex picture can have serious onsequences for women who do not look beyond this web site. |
|
R.S. O'Meara - 11/29/98 22:23:18 | Comments: Your web site does a great disservice to women on tocolytic drugs. It lacks balance and accuracy. Eight years ago, Dr. Wash Hill (whom you quote out of context) was my sister's doctor. He prescribed both terbutaline oral and terbutaline pump. She and her baby are fine, thanks to his most aggressive and determined efforts. Dr. Hill along with every ther physician will tell you every single drug has side effects and potential adverse reactions. The practice of medicine involves weighing the benefits and risks. You obviously have no experience caring for an extremely preterm baby or grieving for one that did not survive. Dr. Hill has a career built on very dedicated efforts to keep pregnancies going after preterm labor begins. I don't know what your real agenda is, Karen, but as you say you are not a doctor. Presenting only one part of a complex picture can have serious onsequences for women who do not look beyond this web site. |
|
Kelly - 11/25/98 20:41:55 | Comments: I am currently 30 weeks pregnant and in pre-term labor. My physician prescribed oral terbutaline and weekly injections of betamethasone. I've been researching these drugs myself and was very happy to find this site. The information is very helpful to me Thank-you. |
|
Susan Moore - 11/21/98 15:49:38 My Email:JMoore1228@aol.com | Comments: Karen, Do you have any info on how these babies act when they are born? I went on Terb, first pills then the pump when I was 22 wks. pregnant. I was on bedrest for 14 weeks with the Terb and hospitalized twice on Mag. My baby is perfect and healthy, but she i colicky, fussy, oversensitive, and gets overstimulated easily still at 5 months! I wonder if it is related to all the drugs! I too started to develop toxemia before she was born and at birth they lost her heart beat on the monitor and almost delivered he by c-section. My blood pressure was up after delivery and I had a fever. I hate everything that we had to do to get her here, but after two miscarriages you'll do just about anything. |
|
Dianna & Nick - 11/19/98 05:22:54 My Email:peanut1@afcon .net | Comments: Your site was a real eye opener and a real life saver no pun intended. Thank You for posting it. |
|
Linda Hodges - 11/09/98 05:47:12 My Email:hodgesjc@ix.netcom.com | Comments: Collected Preterm Pregnancy information for my daughter, Linda. She is due in January and is having difficulty carrying to full term. |
|
Jackie Campbell - 11/08/98 04:50:45 My Email:JCsvd1097 | Comments: I'm in total agreement with you Jenna. I DO have a daughter with cerebral palsy and we will be caring for her all of her life. To think that all she needed was another 10, 9, even 8 weeks! I was having the most wonderful pregnancy and then found myself n delivery at 27 weeks. My husband was out of town and it was so devastating to go through everything alone. Our second child is 4 years old and has no health problems. I had preterm labor with her too but that time I was treated. I did have some serio s wall climbing jitters with IV mag, less so with oral terbutaline. But if I'd had the choice with my first daughter - either, here have a lasting heart problem or here, have a child with CP, no contest! My former boss is in preterm labor and told me about this page - she was furious with the obvious effort to scare - not inform - women. Any mother having second thoughts about preterm labor treatment is welcome to come by and spend a day with Sara - a be utiful, wonderful but completely dependant 12 year old who will never have the life she deserves. Frankly, it seems criminal to put this one-sided misleading stuff on the Internet. |
|
Jenna - 11/07/98 22:21:28 My Email:JennanRN | Comments: Seven years ago, I had oral terbutaline when preterm labor began at 26 weeks. Treatment was successful until preterm labor recurred at 30 weeks. After 2 days hospitalization with IV terb I went home on subcutaneous infusion of terbutaline (pump). This m thod was much better than oral in terms of side effects and control of contractions. I delivered at 36 weeks, 10 hours after discontinuing the pump. There is no question that terbutaline and bedrest extended my pregnancy 10 weeks. Had I delivered at 26 w eks, Nate might have died or survived with serious health problems. At 30 weeks, he might still have had major health problems and surely spent some time in NICU. In my 12 years as a nurse practitioner, I have yet to meet a woman with an intended pregnan y who didn't put the survival and health of her baby above all else. I would edit Dr. Hill's statement -- There is no perfect drug -- period. I chose tocolytic therapy as a far better alternative than inflicting the consequences of preterm birth (cerebr l palsy, respiratory distress, blindness, developmental delays etc.) on my child. |
|
Judy Pyle - 11/05/98 18:38:38 My Email:j.pyle@mail.bethanywv.edu | Comments: Thanks for taking the time to gather this information and put it on the Internet. |
|
David - 11/02/98 23:27:33 My Email:flpsd@aol.com | Comments: Ms Sundfords, you e-mailed me the following questions indicated within << >>. I believe it is more appropriate to put your comments and my response before your readers. << I saw your note on my preterm labor drugs page. You should also make clear that Roger B. Newman is a strident proponent of terbutaline and the subcutaneous terbutaline pump. >> His comments make it clear he is a strident proponent of tocolytic therapy. What is your point? << He has a definite bias on this matter. >> And you appear to have a definite bias against any pharmacological treatment of preterm labor which is consistent with the controversy created by the National Women's health network. Everyone has biases so one must look for the key motivator. In Dr. New an's case, I'm sure you'll agree his reputation reflects a strong motivation to preserve the health of mothers and babies. << I believe his wife took terbutaline when she was pregnant. >> Interesting -- and how do you know this? I'm sure Dr. Newman would not want his wife to take any drug that would pose serious risk to her health. << Do you treat your patients with a combination of preterm labor drugs? What's the highest dosage of terb you use in tablets and through the pump? Do you screen the women you put on terb for contraindications? Do you check their hearts with an EKG? D you monitor them throughout their pregnancies for potential complications? >> There is no standard formula or regimen for administering any drug to a patient population. Each woman, each pregnancy is unique so treatment must be individualized. Generally, we begin with the losest possible dosing regimen and increase to the point f controlling the progress of labor. When delivery is unavoidable, we hope to buy enough time to administer corticosteroid therapy to reduce consequences for the baby. What is included in our standard of care is to inform, educate and involve each patie t in her treatment plan and then assess and closely monitor her and the fetus throughout the duration of the pregnancy. << How do you address the results of the studies cited on my web site? >> You offer a partial selection of the published research. When you take on the serious responsibility of providing medical information to the public, you should (a) describe your credentials for doing so, (b) if you are not credentialed, rely on medical e perts to review the information you intend to provide to ensure it is balanced, comprehensive, unbiased, accurate and current. << If terbutaline was as safe as you say it is, why are there so many studies out there questioning its efficacy and safety? >> Terbutaline's manufacturer has no financial motivation for funding research since this drug is already the most-prescribed tocolytic agent as acknowledged by the FDA. The fact is all drugs, including those sold over the counter, have risks and very few re ever tested on pregnant women. (Understandably, drug companies do not want the liability of using pregnant women as study subjects.) However, there have been few reported adverse reactions in a very large population of women prescribed terbutaline -- and no maternal deaths have been shown to be a direct result of terbutaline administration. Long-term use in clinical practice has provided clinicians with first-hand evidence of its safety and effectiveness. << And why aren't doctors paying attention to the studies??????? >> Physicians understand that some studies are poorly-designed, some are seriously flawed and most are inconclusive. They also know that sadly some investigators have personal, financial or political agendas influencing how they construct a particular study Therefore, physicians whose first concern is their patients do not put as much weight on any particular study as a layperson might. They evaluate the research as a whole and rely primarily on their best clinical judgment and experience. |
|
Kim VanBebber - 11/02/98 22:01:30 My Email:KimmieRV@AOL.com | Comments: Your page has a lot of interesting info. My cousin is in the hospital in preterm labor at 32 weeks. They are giving her Magnesium sulfate and didn't tell her any of the complications. I found your site to be very helpful. Thanks |
|
David - 11/01/98 22:46:39 My Email:flpsd@aol.com | Comments: If your physician has prescribed tocolytic therapy, it is important for you to be fully informed. Unfortunately, the information on this site offers an incomplete and skewed perspective which may alarm women undergoing treatment for preterm labor. As a racticing obstetrician for many years and an advocate of preterm labor intervention, I have found the judicious use of tocolytic drugs a safe, effective and preferred alternative to the serious consequences of preterm birth. As reported by the highly re arded perinatologist,Dr. Roger Newman: "More than a quarter of a million women receive terbutaline annually for tocolysis. This type of use reflects the effectiveness of this therapy as perceived by individual practitioners. It is inconceivable that the p ysicians on the front lines in taking care of high-risk pregnancies can all be incorrect in their daily observations of the effectiveness of terbutaline and other tocolytic drugs." I encourage your efforts to be an informed, proactive patient and hope you will look further than this site. |
|
Karen Sundfors - 11/01/98 13:22:36 My URL:http://geocities.datacellar.net/HotSprings/Villa/3604 My Email:karens@stlnet.com | Comments: As the author of this web site, I felt I should clarify a couple of points. 1. I am not making up any of the studies and research I am citing. Anyone can go to their nearest medical library and look up this information. Nor have I fabricated my experience, or anyone else's, on preterm labor drugs. 2. Terbutaline's cardiovascular effects among asthmatics are well known and documented. My primary care doctor tells me that she *can't remember the last time* she prescribed terbutaline because there are better drugs out there (read: with fewer side eff cts). 3. I have no affiliations to any political organization, medical society or drug company. I am a Mothers of Twins Club member, but so far it has not been a political group. 4. I *never* censor any comments in my guestbook. |
|
Jean - 10/30/98 21:51:54 My Email:N9AUD | Comments: BEWARE! The information on this web site may be part of the orchestrated scare tactics intended to convince the public that preterm birth can not/should not be treated. Terbutaline has been used safely and effectively to prolong pregnancy for more than twenty years. Because of this, the FDA encouraged the manufacturer to apply for broader indications. Hundreds of thousands of women have delivered healthy babies without complications because their doctors detected and treated preterm labor. Your doctor is your best source of information on preterm labor. Many of the comments on this site are not legitimate. In my earlier comments, the text was altered by the author of this site. |
|
Brian Steward - 10/30/98 19:02:32 My Email:bcsbw@aol.com | Comments: Great page |
|
Jean - 10/28/98 18:46:14 My Email:N9AUD@aol.com | Comments: BEWARE! The information on this web site may be part of the orchestrated scare tactics intended to convince the public that preterm birth can not/should not be treated. Terbutaline has been used safely and effectively to prolong pregnancy for more than 0 years. Because of this, the FDA encouraged the manufacturer to apply for broader indications. Hundreds of thousands of women have delivered healthy babies without complications because their doctors detected and treated preterm labor. Your doctor is yo r best source of information on preterm labor. Many of the comments on this site may not be legitimate. |
|
Laura - 09/21/98 05:03:40 My URL:http://geocities.datacellar.net/Heartland/Ridge/7699/index.html My Email:LSDrcd3@aol.com | Comments: as an ASPO/Lamaze instructor in training, the questions have come up pretty regularly about the side effects of many of these drugs during my observation classes. i will be happy to provide couples with access to your research and website. very informati e. thank you. |
|
Laura - 09/21/98 05:01:45 My URL:http://geocities.datacellar.net/Heartland/Ridge/7699/index.html My Email:LSDrcd3@aol.com | Comments: as an ASPO/Lamaze instructor in training, the questions have come up pretty regularly about the side effects of many of these drugs during my observation classes. i will be happy to provide couples with access to your research and website. very informati e. thank you. |
|
Tracy Masters - 09/17/98 18:25:03 My Email:tagchssc@aol.com | Comments: My sister also received terbutaline for pre-term labor, and experienced similar side effects while taking it. Her baby, born in Feb '98, required respiratory therapy (including rescusitation) and had cardiac abnormalities. Thank you for gathering and pr viding this information. |
|
pat Fero - 08/24/98 21:52:20 My Email:shoeless-j@webtv.net | Comments: |
|
Helen Webber - 08/23/98 17:06:23 My URL:http://members.xoom.com/HKWebber My Email:helen.webber@aspects.net | Comments: Just thought I would check out your page after you visited my pre-eclampsia page! Thanks for visiting. Helen. |
|
- 08/17/98 03:38:12 | Comments: |
|
Michelle - 08/13/98 14:24:24 My URL:http://geocities.datacellar.net/heartland/bluffs/9323 My Email:luckymommy@geocities.com | Comments: I've always described my high-risk pregnancy as "horrible". But I guess I was fortunate not to have to endure preterm labor and all that goes along with it. I did however, get one dose of Mag, for my preeclampsia the day before I delivered. Very informative site...well done. |
|
erin kelly - 07/28/98 14:05:27 My Email:stjkelly@aol.com | Comments: Karen, will you email me? I am writing a story for the New York Times Science section about the t-pump and preterm labor. thank you. |
|
Yvonne - 07/23/98 00:31:32 My Email:rknaggs@inreach.com | Comments: Karen, You've done an excellent job putting this page together! Thank you for sharing all of your research with us. These drugs can work wonders, but unfortunately they are very dangerous. If only doctors would inform their patients of all these side affects, u to and including death. Thanks, Yvonne |
|
gina - 07/17/98 03:22:15 My Email:givelcal@aol.com | Comments: Your story reminded me of my own pregnancy. I love my daughter, now 3, but don't want to spend 8weeks at home and 4 in the hospital again. For all the side effects of terbutaline, i'll take that over the magnesium any day. I was barely able to speak fo the 8 days i was on it. what have you heard from others who had this experience regarding the second time around? I'm starting to think about it, but i find a ton of reasons to keep putting it off. |
|
- 07/12/98 23:36:41 | Comments: |
|
mike hynan - 07/10/98 21:51:43 My URL:http://www.uwm.wdu/~hynan My Email:hynan@uwm.edu | Comments: Wonderful!!! |
|
Marti - 07/10/98 03:24:54 My Email:murrey@nobleco.net | Comments: Dear Karen, Your story took me back to my pregnancy. I was on the Treb. pills, then the pump, then the mag. It was terrible. My daughter was born at 35 wks & went to childrens hosp for 6 days after for resp. distress, which I wonder what efect the drugs had on her. M c sectionwas delayed because I couldn't breath. She is 3 now & I still have chest pain & shortness of breath but I never thought about why until I read your site. I want another child but I don't think I can go through all that again. She was worth it bu I want to live to see her grow up. Thank you for the great info. It is a big help to me. |
|
- 07/09/98 02:15:46 | Comments: |
|
Bobbi Applegate - 07/07/98 14:56:53 My Email:dbappleg8@juno.com | Comments: Karen: |
