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Hi, my name is Danette Baker, I live in Spokane, Washington, and at the time of this writing, 2000, I am 27 years old. I hope you will find something here that will interest you and I will hear from you by way of e-mail or my guestbook.

I have a rare missing enzyme disorder called Muccopolysaccharidosis (MPS) Morquio’s Syndrome that makes me about 3’2". For more information about my life with this disease and a few other helpful sites related to it, click here. In the past it was hard to find others that had or were familiar with this particular disease but the internet is helping to close that gap. Recently 8 of us were able to meet together in Portland, Oregon and we hope to make this a yearly tradition traveling to various parts of the United States. This summer we hope to be in Minneapolis, Minnesota around the 4th of July. Feel free to send me an e-mail if you would like more information. As a result of that meeting I have formed a listserve to help us keep track of each other and stay in touch as well as answer questions any of us or new friends might have.

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I have the privilege of knowing Joni Eareckson Tada and working with the disability outreach she began called Joni and Friends. Currently I am the Washington/Pacific Northwest Representative for the program Wheels for the World. Basically what we do is collect, refurbish, and then distribute the refurbished wheelchairs to developing countries where these chairs are desperately needed but not available. Unfortunately we are not allowed to distribute wheelchairs in this country because of liability, though if you need a chair I might be able to help you find a way to get one through another organization. To learn more about the Wheels program, my involvement with it, link to Joni and Friends, and a few other places on the net that deal with disability isssues click here.

Because of the chronic nature of my disability I have had to look long and hard at alternative medicine. In late 1996 I found a nutritional supplement program called USANA and it changed my life. To read about what it did for me and how you can try it too, click here.

In the last couple of years I have become an avid scrapbooker and have enjoyed learning how to safely put my photos into albums. I consider myself fortunate because when I was young my grandmother liked to keep albums and would often send me an album during a special occasion so I could keep my special momentos. Unfortunately her favorite way to keep her photos was by using "magnetic" albums which we now know to be unsafe as they damage photos prematurely. I have thoroughly enjoyed taking apart the albums I have and redesigning the pages in a safe album. My scrapbooking pages on this website consist of a page that gives links to some of the sites that have taught me what I know about this craft and also a page that gives definition to some of the abbreviations you will hear scrapbookers use, especially on the net. Unfortunately I do not yet have a scanner so I can't yet put up any of my very simple layouts but many of the links I have given include layouts.

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