1. TO
HAVE AS MUCH INFORMATION AS YOU WISH ABOUT THE ILLNESS.
You see the doctor in order to
gain an understanding
of your health. It is a service you pay for. You have the right to know
your diagnosis, prognosis, about alternate forms of treatment, what your
doctor recommends and why he believes his recommendations are the best
course of action. If you continue to have problems with your health and
a diagnosis has not been reached, you should have an explanation of why
not. Also, if further tests are
needed they should
be explained to you. It your body and your health that are at stake here.
You wouldn't take your car in to a mechanic and let him begin tinkering
around in the engine without telling you what he was doing and why first.
You shouldn't allow a doctor to do the equivalent with your body without
being informed of what's going on.
2. TO
BE ALLOWED ENOUGH TIME FOR QUESTIONS AND CONCERNS ABOUT PROBLEMS.
When we first hear our diagnosis or have new medical terms thrown at us,
we are often taken off guard. We tend to forget
some of the information
we are told, or don't think of the questions we want to ask until later.
You should have an opportunity both at the initial visit and at subsequent
times to discuss your problems. It is helpful
to write your
questions down as you think of them, and take them with you to refer to,
and as a reminder,
on your next
visit.
3. TO
HAVE REASONABLE ACCESS TO YOUR DOCTOR.
You and your doctor should agree on what you consider "reasonable access"
in advance. Your idea of what constitutes reasonable access may widely
differ from his.
If so, you may be able to reach a compromise. If not, it's good to find
this out early so that
you can find
another doctor.
4. TO
PARTICIPATE IN MAJOR DECISIONS IN YOUR CARE.
Participation is not only the right but also the responsibility of the
patient. It is important to be well educated about your illness and you
must ask
questions so
your decisions are as informed as possible. You and your family are the
main persons
affected by your
illness, not your doctor.
5. KNOW
YOUR DOCTOR'S NONOFFICE-HOUR AVAILABILITY AND PROVISIONS FOR COVERAGE OF
PATIENTS DURING
THOSE TIMES. Emergencies, accidents, and
crises don't always occur during office
hours. Who is
available to cover for your own doctor during nights, weekends, and holidays?
It is a
good idea to
meet the covering doctors so you can decide whether you can work with them.
If there are special conditions, treatments, adverse reactions, preferences,
be sure to have your own doctor
write them clearly
in your chart so that the covering doctor can refer to them. Remember the
substitute
may be your doctor
during your most vulnerable and neediest times.
6. DETERMINE
WHO OTHER THAN THE DOCTOR SHALL HAVE ACCESS TO INFORMATION ABOUT YOUR
HEALTH.
The relationship of the physician and the patient is confidential. Normally
you will be asked to
sign a release
form authorizing your files to be released to your insurance companies,
or in special
instances to
compensation boards, or other physicians. In some cases where a disease
is infectious or otherwise might affect the health of others (e.g. hepatitis),
the doctor is legally obligated to report the condition to governmental
authorities.
7. KNOW
IN ADVANCE THE APPROXIMATE AMOUNT OF CHARGES AND POSSIBLE ARRANGEMENTS
FOR
PAYMENT.
It is necessary to determine if you can afford the charges and to find
out if your insurance will cover them. It is not poor taste to ask about
charges in advance. If you cannot afford the charges, ask your doctor if
they will work out a sliding scale based on your ability to pay (many will).
Determine exactly what
the charges include,
and whether things such as laboratory tests and x-rays are included in
them. Also, check in advance what your insurance will cover as well as
the amount of the deductible.
8. BE
SEEN WITHIN A REASONABLE TIME OF THE SCHEDULED APPOINTMENT.
Sometimes unexpected problems and emergencies come up with other patients
that may cause a delay in your appointment time. These situations can't
be helped and aren't the doctor's fault. A half-hour wait probably isn't
unreasonable
as long as you
are informed of the delay. If your doctor is chronically late you should
decide if this is just
too much of a
waste of time or annoyance to you, and if so, choose another doctor who
is able to keep his apointments within a reasonable amount of time.
9. CHANGE
PHYSICIANS IF A BREAKDOWN IN YOUR RELATIONSHIP OCCURS AND HAVE YOUR RECORDS
TRANSFERRED
TO YOUR NEW DOCTOR. Sometimes things happen.
As in any other relatonship there can be
personality conflicts,
or perhaps your opinions on how your case should be treated just don't
agree. Or maybe the needed confidence just isn't there. If this happens,
do not allow it to continue. Find another doctor who you can trust and
get along with.
2. KEEP
OFFICE APPOINTMENTS OR CANCEL WELL IN ADVANCE.
Just as it's unfair for your doctor not to
keep his appointments
promptly, it's unfair for you to be late or to just not show up. If you're
going to be
late, please
call ahead and let them know. If you need to cancel, please try to do so
24 hours in advance so that someone else will be able to make an appointment
in your place.
3. PLAN YOUR VISIT WITH THE DOCTOR. Think about and write down any questions you may have in advance so that you can refer to them during your visit. Think about your symptoms carefully, so that you can give informed answers to the doctor's questions.
4. STOP
THE DOCTOR WHEN YOU DON'T UNDERSTAND WHAT HE IS EXPLAINING AND ASK FOR
A SIMPLER
EXPLANATION.
The doctor won't know you don't understand
unless you tell him. He won't think you're stupid
if you ask him
for clarification, and will probably appreciate the fact that you want
to be informed about your health. Doctors are used to thinking in obscure
medical terms, and tend to forget that not everyone knows what they are
talking about. It's okay to slow him down and get the information in terms
you understand.
5. ASK
QUESTIONS. This is both a right and
a responsibility. You need to ask the questions you want answers
to. The doctor
can't read your mind.
6. FOLLOW
THE DOCTOR'S ADVICE AND REPORT QUICKLY ANY ADVERSE EFFECTS OF THERAPY,
COMPLICATIONS
FROM TESTS, OR WORSENING SYMPTOMS. If
you aren't going to follow the doctor's advice, why are you seeing him
in the first place? If you disagree with the treatment suggested, you should
discuss this with the doctor, rather than just going home and not following
his advice. If there are problems with the treatment, the doctor needs
to be informed so that changes can be made.
7. LIMIT PHONE CALLS BETWEEN VISITS TO PROBLEMS WITH ADVERSE EFFECTS OF THERAPY, COMPLICATONS, OR WORSENING SYMPTOMS, OR OTHER MATTERS WHICH YOU HAVE AGREED ON IN ADVANCE. It's important to keep the doctor informed of problems with your treatment. It's also important not to "bug" him. Often doctors will wait several hours to return nonemergency calls so as not to interrupt ward rounds, patient visits, and so on. Don't be too impatient if the secretary has taken a message; the doctor will get it and return your call. If the doctor does *not* return your call at all, then you have every right to be upset about it and need to discuss your concerns about this with them.
8. PAY
AGREED-UPON CHARGES PROMPTLY OR IN A WAY MUTUALLY ACCEPTABLE TO BOTH PARTIES.
Just as
you are obtaining
a service from your doctor, he has the right to expect payment from you
or your insurance company. Make arrangements for payment before your visit.
If your response to treatment is less than you expected, or if you are
not "cured", it should not be taken out on the doctor by not paying him.