Contributions
This is for information people have sent thru the form above. I've done some minor editing: if you include an email, I'll check with you before i post it. I'll add my own commments in italics
Here's a pointer to the last comment.
An Index for this volume :
I may not able to find you any specific link for CP. The improvement for almost every kind of sickness has been seen in the past 3000 years, dealing with Chinese Medical Way in healing.
They are many ways in Chinese Medical Way in Healing.
Western Medical Way always focuses on every tiny detail. Chinese Medical Way treats the whole body as a whole.
According to the "CP" sickness as I have known I would say it is related to "Kidney Chi deficiency in both before birth and after birth." Somehow it is related to reproduction problem, over active with sexual life, or injury...etc according to my past experience, the real Chinese Acupuncture and Moxibustion treatment will make a definite improvement to a certain degree. Of course, in addition to Chinese Herbs, Herbal food, Chi Kung, Tai Chi, and Chinese Massage would be the best combination.
To me, I would say "Chinese Medical Way is the answer for a lot of sickness which the Western Medical has no way out at all."
E-mail: Mail Francis Mok
My web sites:
Geocities
Angelfire
My form processor ate the name,. so the following is an anonymous contribution:
My three year old daughter has CP and I have learned that as much as I do I will not be able to "cure" her. She is a beautiful little girl who happens to have CP. I don't have to frantically search for alternative therapies and sweat so much about her getting all that she can. If I relax and live a loving life with her all will be well. Of course I will give her all that modern medicine and money can offer, but its the stuff that happens while I'm fretting that really is life.
William N. Cervantes
http://www.angelfire.com/ca/Rehabilitation/index.html
comments
Physical Medicine and Rehabilitation
All who have develomental as well as degenerative
diseases must continue ROM exercises for flexibility,
and strength exercises for mobility. Seek out a
Kinesiotherapist who specialize in these fields,not a
Physical Therapist.
I wondered what the difference was bewteen a Physical Therapist and a Kinesiotherapist. The URL has a description
Bruce j. Connus
BJCONNUS@AOL.COM
writes:
Hi all!!
I am a 44 yr old swm with mild cp. I do not need anything special, but this aging and CP is one of my concerns for yrs.. I have asked many "experts" Doctors and they start asking me questions that I had. I felt like they needed my info more then they had info.. Then it hit me, The baby boomers with CP are the first generation to survive the birth defects associated with CP.. Ever see many CP-ers with grey hair?? not me!! NO one knows what is going to happen to our bodies.. Do we wear them out quicker then others? what is our life expectancies?? Are there any medicines that can help?? ETC...
Thanks and hope to hear from you soon...
Steven: When I read something in ALL CAPS it feels like the person is SHOUTING at me. If that was your intent, let me know and I'll change it back.
Eleanora N. Gambino writes:
My name is Eleanora Gambino. I am a 48 year old "retired" Special Education teacher. I taught for 21 years. One reason that I am retired is because I have Ataxic Cerebral Palsy which has exacerbated to the point that I must use a walker and my scooter to get around. I am of the C/P generation who was taught in youth that C/P is a disABILITY that would never get worse. Not true. I have experienced severe pain with my spasticity, surgeries that were failures, and much atrophy. As a young girl, I was mobile, simply walked with a toe-in gait. No need for a cane nor any other aids. I have been seeking information on Aging and C/P. How sadly limited it is.
Please, visit my website
~ The Godmother ~ a site with links to areas on a variety of disABILITIES. The goal of my site is to help people become aware of the meaning of the word ABILITY within the word disABILITY. There is a Chatroom there if anyone would like to have a support group meeting place. There is a message Board, too, called The Godmother Assembly. I, also, do research for peers with disABILITIES and parents of children with Special Needs. No fee charged.
ICQ number is 1680165 under the name Godmother
Email:
Eleanora:Many thanks.
The Godmother is a great site.
I edited this a little, and you're also
on my Link list.
Anat Barnea writes:
Hi!, I am writing in behalf of my brother who has CP in his
right leg and arm
He's 45, and we live in Israel.
My brother has recently had great deterioration in his condition:
Much more spasming then ever. We are looking for information, about age
and CP. Also we are looking for experts in Europe who can give advice.
E-mail address:
anatbr@mofet.macam98.ac.il
I did some linguistic editing, Anat.
George A. Barker Jr. writes:
I'm 72 years old and quite active, despite severe tension athetosis.
Try my sites:
I've visited the first site George mentions. Impressive bit of writing.
www.mycerebralpalsy.com
www.tiny-trickle.com
Suzy writes:
I am a physical therapist and am very interested in the aging
process with people with CP - i have primarily been involved
in pediatrics but have recently been doing wheelchair evaluations
for adults as Medicaid/Medicare now require PT evaluations for
all people getting a new wheelchair - i have been meeting people
between the ages of 20 and 75 with CP - i am very concerned at
the lack of intervention and help people with cp are getting
once they are no longer in school - i am particularly concerned
at the stress that the joints are undergoing from long term
use of crutches and pushing wheelchairs and
walking with various "limps" - i have found it interesting
that the kids i work with say they have no pain their body
but the adults i have seen are telling me about pain
as well as weakness - it is very important that we look
toward all the adults with cp to learn about the
mistakes we made - unnecessary surgeries or those that made
it worse as well as helping people!
to be as active and independant through their entire life
- i hope this is an area that gets much more attention in the future!!!
Joan Berman's article talks about some of these issues,
Michael Morimoto writes:
I'm a 32 year old with Cerebral Palsy Spastic Diplegia.
I too am rather disappointed and concerned over the
lack of research in the area, especially by doctors
and organizations like UCP. If CP usually does not
have effects on lifespan I would have expected more
data in this area.
In my case I have experienced some decrease in ability
but I would put this down to 3 main reasons. One would
be a rather unsuccessful operation I had during my
Junior High School days. But I was able to come most
of the way back from that so its probably because of
the last 2 reasons. Second would be that since
college because of my workplace I haven't had the
chance to walk as much. Perils of working in computers.
Thirdly is just being too busy/lazy to do my exercises.
I would suspect that lack of exercise at work or at
home is probably something I share with many office-
workers, both abled and disabled alike, its just that
since walking is closer to the 'edge' for us, we feel
it more.
At this point in my life I'd be interested in hearing
from others about relationships and CP, I'm starting to
feel like I should settle down and start a family soon.
Email: Japan Snail:
morimoto@rerf.or.jp
Michael Morimoto
11-16-201 Tsurumi-cho, Naka-ku,
Hiroshima, Japan 730-0045
June Isaacson Kailes writes:
[ I am a ]Disability Policy Consultant
http://www.jik.com
Contains information on aging with disability, including CP.
[ Also look at ]
RTC Aging with Disability
Email:
URL:
jik@pacbell.net
http://www.jik.com
Salvin Ficara writes:
Hello I don't know if my previous attempt to reach you was successful
none the less I am writng to ask permission to use some quotes from
your cp and aging chatroom in a proposal I am putting together with
the hopes that our program can get funding to do research on the
impact of aging in relationship to excercise and theraputic modalities in delaying or preventing the onset of secondary disability in adults with cerebral palsy and other neuromuscular conditions. thanks and hope to hear from you soon.
Email:
URL:
Salvin_Ficara@spfldcol.edu
U.S. Sports and Fitness Center for the Disabled General Information -The Programs
