MY FIBROMYALGIA PAGE
Fibromyalgia is an autoimmune/rheumatological disorder. It causes the immune system to attack the body, causing pain and fatigue. Most sufferers of Fibro also suffer from CFS, Chronic Fatigue Syndrome.
Fibromyalgia is diagnosed by the existence of 11 of 18 "tender points" on the body as shown below:
NOTE: This page has not been updated in years; I am in the process of updating it somewhat, but some information and links are out of date
I have suffered from FMS for years, fighting doctors who didn't believe in it, doctors who believe that living in pain every moment is my fault, leaving a great school and a great job and taking years to learn just to be functional.
Fibromyalgia Links:
My Fibromyalgia ICQ list
the uk-fms email support group
Dr. Starlanyl's page
Fibroworld
Detailed FM site
Coping with Fibromyalgia
Living with FMS (Fibromyalgia Syndrome)
Warm and Gentle Hugs
Kathy's Fibromyalgia Home Page
Kealalaina's Fibromyalgia information and links for patients and family.
CFIDS Links:
News and Advocacy (CFIDS Association)
CFS Days
Chronic Fatigue Syndrome
Links for Coping Resources:
Partners Against Pain
panic
AAPM Home-The Official Site of the American Academy of Pain Medicine
Coping with Chronic Illness and Pain
It should be noted that while there are a lot of suggestions on the above pages, they are only that... suggestions to help the chronically ill patient cope. They are NOT cures and they do not end all the pain and suffering we feel.
General medical links:
RxList
Doctor's Guide to the Internet
Other Links I have found useful:
Women with DisAbilities
Cripworld
I have more links on many subjects... Stay tuned for a URL to my online bookmarks, or email me if you are looking for something specific you think I might have.
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