In my adventures in caregiving, I have discovered many helpful sites for my continuing education. Originally this was going to be comprehensive, but then there are lots of unreliable sites in cyberspace. I am wary of all that floatsom and jetsome claiming to have THE TRUTH.
Sites that do not have an address or phone number are automatically suspicious. Naturally if they do not quote creditable sources for their information then a red flag also goes off.
There are good business sites devoted to health and or caregiving. Some team up with a university or non profit health care organization. Sites maintained by Universities or think tanks or the news networks tend to be reliable. I always verify information from more than one source, must be the librarian in me. There are hundreds of thousands of personal web sites, but I really do not have a favorite. Many other sites have links to personal web pages and I will point them out.
These sites are my favorites.
AGING & ELDERCARE LIST
National Association of Geriatric Care Managers can provide referrals to geriatric care managers nationwide who are members of this organization. These care managers help families get needed services such as medicaid or hospice etc.
Medicare Rights is a non profit organization that assists medicare beneficiaries with general questions and concerns about coverage. It is sponsored by the NYC Office for Aging but the information is not exclusive to NYC residents.
Elderweb is an online sourcebook with more than 4,000 reviewed links to information about health, financing, housing, aging and other issues related to care of the elderly. It also offers a free monthly EMAIL newsletter.
Elder Care OnlineLike elderweb it is an online sourcebook and it does have a biweekly EMAIL newsletter but it also offers links to reference books, PubMed, book reviews written by members and membership is free. It has a bulletin board, chat rooms with directory of topics, online discussion forums but my favorite are the downloadable software assistants. Some of them are in zip format, some in pdf(adobe acrobat)but all are helpful. The ones I have are the pamphlets on health care fraud and the medical asistant. The latter has forms for the doctors'names, phone number, specialty, medications, and other important items that might be needed in an emergency. Other software includes tax forms and nursing home guides. For those caregivers of dementia patients, there is an activities of daily living form in the medical planner.
National Academy of Elder Care Law Attorneys, Inc. Is a professional website for its members, however this link takes you to its directory of elder care specialists. It can be searched by name, business name, by state or city. Inclusion of a name or exclusion is not an indication of a lawyer's ability, I just happen to prefer a lawyer with professional memberships, as they offer continuing education and can be helpful to the lawyer and hence the client. I used an elder or rather still use an elder care attorney for the financial issues as they are the hardest to understand for me. As my mother's caregiver, not only do I have to re certify with medicaid every year but I have to deal with social security's oversight. But think twice if you think you can go it alone.
Coalition for Aging It is a NYS database for seniors. Information on services, court decisions affecting them, links to related sites. AARPis the official website for the American Association of Retired Persons. It is actually just as helpful for others as we will all be elidgeble some day. It offers newsletters for keeping up with legislative issues affecting the elderly. It is still one of the most well funded of advocates for seniors.
Links to other sites on the Web
Alzheimer's Stages-Reisberg Scale
back tositeindex