Certificate Renal Course 1999
Psychological support for the End Stage Renal Failure Patients
Ms Bonnie Tam
Introduction
Pre-dialysis and Pre-transplant group
- depression
- anxiety
- relationship difficulties
- body image
- sexuality
- lethargy and tiredness
- inability to cocnentrate
- irritability
- apathy / depression or circling
- reduced ability to show affection or sexual interest
- withdrawal and lack of communication
- constant complaints about symptoms such as itching, less of appetite or breathlessness
- The subjects that need to be addressed vary according to age and circumstances but may incldue:-
- importance and purpose of drugs and diets
- choosing the treatment best suited to patient’s social situation and lifestyle;
- problem of the employjment and finances due to illness
- problem of housing, taking treatment needs into consideration
- role change within relationship and effects on f amily memebrs / carers
- difficult in sexual and affectionate relationships
- effect of ESRF effect on leisure activities and weekdays.
Method of psychological support
- Straightforward teaching
effects of renal failure, treatment modalities : drugs, dialysis and transplantation.
- Group support e.g. patient support group
- Reassurance - ensure patient’s concern are realistic, focusing on the real problems rather than rumours or hearsay
- Encouraging active
Co-operative interaction between patients and staff, rather than passive acceptance.
- Introducing topics and encouraging questions, especially on subjects that may patients feel inappropriate to raise with busy medical staff at clinic appointments.
How much information ?
- introduce dialysis / and the transplant patient
- honesty - important part of contract between patient and team.
- time of session is important - since adjustment of at least 6 moth is desirable e.g.
a) negotiating with employers
b) making adaptation to housing or moving house, especially for elderly patient.
c) early application for relevant social security benefits to minimise financial problems
Factors underlying sexual inadequacy in renal patients
1. Pathophysiological factors
- anaemia
- post-dialysis lethargy
- uraemic neuropathy
- drug induced side effects
- hormonal imbalance
- aging process
2. Psychosocial factors
- changes in self-esteem and body image
- depression
- role reversal in marital relationship
Renal Transplantation
- fear of grafted kidney failure
- worry about the side effects of immunosuppressive therapy
- uncertainity of the functions of the grafted kidney
Psychological issues
|
Self-image |
Dependency |
Stigma |
Abandonment |
Anger |
Death
|
Factors to consider
v
Illness intrusiveness
v
Developmental stage
v
Personality
v
Culture
Increased self-directedness
1. Introduction of the rationale to the patient
- Improvement as the focus
- Potential advantages introduced
- Choice and active decision-making emphasized
2. Promotion of effective decision making
- Decision balance sheet
- Awareness of rationalizations
3. Establishment of a behavioural contract
- Expectation, plans and contingencies specified
- Negotiated
- Focus on process, not just outcome goals
4. Promotion of self-monitoring by Patients e.g. self-care dialysis checklist
5. Sustained use of staff support and problem solving
- regular review
- modify plan is necessary
- support instead of reprimand
Helping the family
1. Provision of immediate emotional comfort
- legitimize the family’s feelings
- identify the family’s distinctiveness and strengths
- model open and accepting ways of behaving and feeling
2. Help to build up resources
- informational
- facilitate communication
- introduce services / resources
Challenges to the family
1. Cognitive
- information
- expectation
- existential queries
2. Emotional
- acceptance of ‘changed’ member
- acceptance of limitation of treatment
- dependency
- coping with anxieties and uncertainities
3. Behavioural
- treatment regimes in family life
- extra help to patient
4. Interpersonal
- relation with health care professional
- relation with old and new friends, peer groups
Tasks for health care professionals :
- appreciate the individuality
- listen
- recognise that the loss is real
- help the patient give expression to his feelings
- normalise the fears and emotions
- clarify and objectify the problems
- identify the rehabilitated role model
- help the patient decide to ‘take charge of his life’
- strengthen the patient’s ability to ask for and accept help
- blanced nutritional and dietary counselling
- support the investment in lfie
- encourage the well-adjusted to continue striving
- refer and interdisciplinary effort