I'm not famous and have never done anything extraordinary. I'm just a fifty
year old woman with a breathing problem. At the age of forty I was
diagnosed with emphysema. For the past few years I have really struggled
with my breathing problem. There are so many of us with a breathing
problem, many more than what the average person would think. I feel that
people need to be better educated on this subject. This is a growing
problem. Yes, I did get my breathing problem from cigarettes. I started
smoking when I was very young and at that time there was no such thing on a
pack of cigarettes "bad for your health". I do realize that no one made me
smoke, but then again, I didn't know they could or maybe would kill me
either. I do realize that not everyone with a breathing problem smoked. I
did and my doctor said that I got my emphysema from smoking. The price of
smoking for me was so much higher than the price of a cigarette. When I was
first diagnosed with emphysema I kept on smoking. I tried to quit several
times but my addiction was so bad that I continued to smoke. At that time I
was going to just a regular M.D. not a lung specialist. My doctor at that time
smoked himself and to him smoking was no big deal. He did not encourage
me to stop smoking, and I guess he thought that I didn't want to hear all of
that about cigarettes being bad for you and what they could and would do to
you. I don't blame him for my breathing problems.

I had my first collapsed lung in December of 1990. I was in the hospital
Christmas of that year. Since then I have spent many holidays in the hospital
with my lung problems. That was only the beginning. That was when I first
met my caring excellent lung specialist whom I go to now. I know without the
help of the GOOD LORD and my lung specialist I wouldn't be here today.
He performed a procedure and my lung stayed inflated. After that I
continued going to my regular M.D. I was in and out of the hospital several
times a year with my lung problems.
By that time I had to stop working because of my lung problems.
 

About seven years ago I had to go to the emergency
room at the hospital for a bad breathing spell. I
needed oxygen because my oxygen level had dropped.
The doctor on call in the emergency room that night
was a lady. They took x-rays and blood test, etc.
When the results came back the doctor looked at me
and my only daughter who at that time was only
sixteen and said, "Glenda," she called me by my first
name, "if you don't quit smoking and I mean stop
now, you are going to die and you won't even live to
see your first grandchild."

I can to this day recall the words she said to me. She put a nicotine patch on
my arm and admitted me to the hospital once again. I had already tried the
nicotine gum and not only did I smoke but also chewed the gum. The gum
sure didn't help my addiction. After another week in the hospital I got out
once more. I never put another nicotine patch on because I would smoke
while wearing them. I slipped around smoking as I didn't want my family to
know that I was still smoking. At that time I was still able to drive a car. I
would go out like I was going to the store and stop and buy a pack of
cigarettes. I would buy only low tar cigarettes thinking that these would not
be as bad. I would stop at a restaurant and smoke those cigarettes, but the
words of what the lady doctor said kept running through my mind. I didn't
want to die and still don't want to die. I knew my breathing problem was
getting worse and worse. After about three or four weeks of slipping around
at that restaurant smoking, I went into the bathroom of that restaurant and
throw away the pack of cigarettes that I had just bought and walked out of
that restaurant and to this day have never smoked another cigarette. I
couldn't start to tell you the withdrawals I had when I stopped smoking. It
was the hardest thing that I had ever done in my life. With the help of the
GOOD LORD I have not smoked for over six years. I'm not telling you even
now I don't crave a cigarette ever now and then because after all of this time I
do, but I would never smoke another cigarette in my life time knowing they
would probably kill me now for sure.

About five years ago I was admitted to the hospital again. I couldn't breath
to good as my breathing level was very low. I had developed a lung infection.
After my M.D. had treated me for about two or three weeks I was getting
worse instead of better. He called my lung specialist back in to help me. The
lung specialist sent me to the Jewish Hospital in Louisville, Kentucky. I live
in Richmond, Kentucky and Louisville is about a two hour drive from where I
live. After running tests they found a very rare type of pneumonia. I got
down to where I couldn't walk or do anything for myself. They didn't even
know if I was going to live or die. They called in different doctors to help
me, disease specialists and lung specialists and tried different antibiotics until
they got the right one. I had very good doctors at the Jewish Hospital. I also
have to say that I have a very good supporting family. My sister, daughter, or
my mother would stay with me at Jewish Hospital even though it was many
miles away from our home in Richmond. I was never left alone while at
Jewish Hospital. After a month there I was put in the rehab section called
Frazierwood. There they had to teach me to walk again. I was in a
wheelchair and on oxygen twenty four hours a day. I was there for six
weeks. I will also say that everyone at Jewish Hospital and Frazierwood
rehab were very nice, and caring people. I did come home in a wheelchair
and on oxygen 24 hours a day. After returning home I started going to my
excellent lung specialist. After a few months I came out of that wheelchair
and out of that bed. I even got off of oxygen some. I started having
collapsed lungs seems like one after another in a two year span. I was having
them in my left lung at that time. Finally a little over two years ago my left
lung collapsed again, by that time I think it had collapsed around 5 times and
this time it wouldn't stay inflated. They had to perform surgery and take out
the worst disease part of my left lung, a wedge part of it. They cut through
my back. It was the worst pain that I have ever gone through, a very painful
surgery. Again my dear sister, mom, and daughter were right by my side. My
sister was there most of the time. She would brush my hair and talk to me. It
seemed like she had the pain when I did, strange, isn't it? Don't think there
has ever been two sisters any closer than what we are. After a months stay in
the hospital I came home and went to my mom and dads home to recuperate.
My husband had to work nights and my daughter had a baby and her own
family by then. I could tell so much more but won't right now. But my dear
sister would stop by moms after working all day to see me and talk to me
which helped me so much. I'm so thankful for my wonderful family. Again
my lung specialist pulled me through. Now within the last year my other lung
has collapsed several times. Since November of 1997 I have been back in the
hospital three times, once with a lung infection, stayed about ten days, second
time lung infection, stayed that time for five weeks, and this last time with
pneumonia and collapsed lung, stayed another ten days. Now I'm trying to
recover from all of that but this time can't get back to where I was. I'm going
to start rehab again here next week, as we now have a rehab in our town
thanks to my lung specialist. On down the road my lung specialist wants me
to go to St.Louis, Missouri to have the reduction lung surgery. My health has
really declined at this point but I think as long as there is a breath there's
hope. I don't think people really know or understand what this awful disease
called emphysema can and will do to people. I don't claim to be an expert on
anything, but I do know what I've been through with my breathing problem.
I know there is people out there that has been through some, if not all, what I
have been through. If this could help just one person to know that there is
more people out there that is going through what they are and that there is
still hope then it would be great. Or maybe if this would just keep one young
kid from picking up that cigarette and smoking it that would also be great. I
love to write and I write a lot of poetry. I wrote this poem about my
breathing and I've dedicated it to people with breathing problems. I'm also in
the process of writing a book called "Breathing" about my lung problems and
all what I've been through because of it. I am limited to the activities I can
do, but I enjoy going out eating or going shopping with my family. I can't
walk very far due to my breathing problems. Outside of the GOOD LORD
and my family writing is the joy and love of my life. It has always been. I just
have more time to write now. I have written several other poems that you
may see by selecting the poetry button at the end of his page.


BREATHING 

If I had one wish I know what it would surely be 
That I could breath like I did when I was seventeen. 

We don't appreciate what we have until something goes wrong 
I know I didn't until my breathing was almost gone. 

I smoked those cigarettes like there was no tomorrow 
Now I live with the consequence and all the sorrow. 

Those cigarettes I didn't think I could live without 
If I only knew what those cigarettes were all about. 

Now I need oxygen both day and night 
I also have these breathing spells that are such a fright. 

I see my friends that are so healthy and strong 
But my health has been bad for so very long. 

I get so depressed sometimes I don't know what to do 
I want to get out of this chair and do things just like you.

I just take it day by day 
Only thing I can do with my breathing this way. 

I talk to the good LORD from time to time 
I tell him just what's on my mind. 

I ask him to please not let me suffer and forgive me for all my sins 
To please take me to heaven when my life ends.

Glenda Jones 
gjones@iclub.org 
October 1998 
Poem "Breathing" ©Glenda Jones 1998 Used by Permission 

 Rehab
Oxygen


Medical Links
Efforts---online support and advocacy group
American Lung Association
Costkids--kids opposed to smoking
 


 


If you have any questions about these webpages
please contact Sharon Adkins at:
jmadkins@qwest.net

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