SUFFERERS OF LUPUS IN GREAT NEED OF SUPPORT!!! This is a letter I sent to a local paper here in town to get them to do a story about the lupus quilts while I had them here for the local quilt show. I will put the article at the bottom of the page. Please if you can donate a square and love to quilt email me or if you or someone you know suffer from Lupus or another autoimmune disease please email me to get info about how to get your name on the quilt. If you know of someone that has passed away from Lupus please email me also to find out about how to get them on the memorial quilt, what a great way to honor them! I'm writing you today because I would like to suggest a topic for a story. I've been on the internet writing similar letters to different groups, talk shows and newspapers, and since I live here I thought I might be able to put a more personal spin on the story. Lupus is a life-threatening disease that attacks the immune system. About 2 million Americans have been diagnosed with lupus. More people have lupus than Aids, Multiple Sclerosis, Muscular Dystrophy and Leukemia COMBINED, but little is known about the cause or treatment because it is primarily a women's disease. Lupus destroys the lives of young women in their child bearing years. U.S. Rep. Carrie Meek, D- Florida, introduced new legislation to help step up research with the hopes that a cure will be found. The Lupus Bill, HR 1111, is extremely important to lupus patients who desperately need the funding available. Lupus patients from across the country have joined together to make some quilts, similar to the Aids quilts, to promote public awareness for lupus and tour the country and end up in Washington, D.C., to support HR 11111. I need help in representing our state on these quilts. If you know anyone who has lupus or any auto-immune disease or if you want to help represent us please make us a 7 in. X 7 in. quilt square on cotton material and mail it to me. I will send them to the person who is so graciously making these quilts for us. The square can have anything on it that you would like, a name, picture, date, favorite motto etc. This project is very important to us so please consider making us a square. If you don't know someone with lupus or any auto-immune disease we have many who are unable to make their own squares who need to be represented so we will put a name on your square. |