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CFSupport's Art Gallery
Advocacy, Education, Expression


About and/or by People With
Chronic Fatigue Syndrome (CFS / CFIDS / M.E.)
Fibromyalgia Syndrome (FM / FMS)
MVPS/D and Similar Syndromes




John Herd
ME/CFS Advocacy Cartoons & Articles



  Cartoon ME/CFS Advocacy: Uncle Sam, "Not Now, I'm too busy to deal with a stress disorder."             Cartoon ME/CFS Advocacy: Endurance is Everything

Uncle Sam, blowing past a CFSAC Meeting                   Endurance is Everything            
"Not now, I'm too busy to deal with                                   For the ME/CFS Advocate
'A Stress Disorder'                                                                          


Cartoon ME/CFS Advocacy: Sinking Ship

Sinking ship: The State of ME/CFS of Advocacy
"And I thought someone would handle the Advocacy for me. "


An Automated CFIDS Wake-Up Service
By John Herd
The CFIDS Chronicle
May - June 1999
A tongue-in-cheek look at a government benefit you probably won't be receiving.


2009: See John Herd's poems and blog at ME-CFS Community






 
Elly's a-musings

Cartoon: Walk on Therapist 

"My doctor says it's okay to walk on a bad therapist.
I thought about stomping on him, too, so instead, I found a better one."
- Elly B, 2007
   



Fourth Chakra Force Fields


by Elly           
August 23-26, 2004

My gut guides my knowing my heart sealed by force field,
By intuition, fullness, and feelings still concealed.
As intellect’s completing its new interpretations,
Still feeling some liver, heart, and stomach stagnations.

Life had absence and confusion when small,
When fourth chakra’s corner posts I did install.
I built the fences when I couldn’t cope,
Getting ever more tired, no radio, soap.

This many years later, I’ve learned lessons intended.
Oh my God, am I finished pretendin’?
Fence around heart is now in my way,
While it helped me survive, it can no longer stay.

The timing was right, the teacher appeared. 
Knew him instantly and then I disappeared,
Into wild gyrations and physical sensations,
Familiar and hinting and haunting vibrations.

Powder or juice, I spoke an excuse.
Symptoms broke loose, is it 'erbal abuse?
But doc is a genius, knows craft north to south.
Someday I’ll talk with him, no foot in my mouth.
Each time I was seen, I regressed even younger.
Hating it, trusting it, perpetually in wonder.

I drank custom formulas, floating suspensions.
Moving off-balance, feeling my tensions.
First in the gut, but there almost done.
Shoulders to ribs, should have begun.

I’ll remember forever, the moment was busted.
Showing exactly where my thinking was rusted.
Three weeks later, after revising and revealing,
My heart still sounds like a bass drum is pealing.

I want heart to beat, beat very proud.
I just need relief from it being so loud.
Continuous thuds in chamber steel plated,
The song I can’t or won’t get translated.
At least, said doc, if you can’t make a break,
“we’ll reassess” which did me placate.
Snorkel, doc said, get in your crap.
You’re doing well, keep going; his sturdy recap.

I focused anew, inviting dissolution.
Through pounding and prayer, sans herbal solution.
High serving a ball labeled with past transgressions,
Did nothing to access my stifled aggressions.

Poe’s Tell Tale Heart has always bothered me.
The Headless Horseman I also do flee.
I now truly see, I can easily admit.
My Mind and Heart have been living same split.

These force fields make symptoms, their messages I collected.
The meanings of which, are now being corrected.

    Hands off, don’t touch my really tense ribs.
    How did I stop the atrial fibs?
    With a cute little cough,
    And hope the shoulder tightness won’t pinch my head off.

    Stiff shoulders I’d beg all not to rub,
    They didn’t get it, they took as a snub.
    I can’t get good breath, especially in hot tub.
    Its been that way since I was a cub.

    Palpitations in rest and in motion do drum,
    Now incessant, insistent, soon to succumb.
    Heart rate too high, resting is 80.
    When it stays at 120, it gets kinda weighty.

    Chest pain has plagued me, left side and right,
    Worsening with too much exercise or fright.
    Broken blood vessels wander over my chest,
    Mapping where chi not flowing its best.

    I’m wound pretty tight, I’m nervous and flighty,
    I’d given away power, closed door to almighty.
    Up past my bedtime? It did really matter.
    I became giddy and endlessly spued chatter.

    In arms and legs I got frequent numbness.
    Got good at faking I didn’t have dumbness.
    Anger I dealt with only from head,
    It didn’t go lower, which sent me to bed.

    The four major ‘lytes near zero do lie,
    Leading to cramps, tics, and spasms, oh my.
    Calcium’s not absorped when feelings held in,
    Keeping me awake to experience chagrin.
    Tears drip easily, as does nose full of snot,
    But no sobbing comes, a release it is not.
    Tilt tests and standing can provoke me to cry,
    start tachycardia, and run my blood dry.

My CFS graduation some may defy,
To that and those I must say good-bye.

Overrated has been the importance of sleep.
More awake time needed for these deep thoughts to creep.
Matter, such as blood, can move through mostly as pleases,
But energy gets stuck, and that mimics diseases.
   
My muse is available, but my music is thin.
That I listen to some, is a small win.
Deep air is scarce, it just doesn’t fit in.
The balance is off, do I have too much yin?

Singing & playing still give me the blues.
There is little air, I now get the clues.
Breathing from diaphragm was always so freaky.
It should have helped, but made me more squeaky.
My current wind instrument, is the telephone.
When lungs’ cuffs unlocked, I’ll fill up a saxophone.

Speaking of jazz,
I must mention RazzmaTazz.
She copied dysfunction.
We stay in conjunction.
She’s been my companion, my comfort, and arm exercise,
I look forward to both our conditions’ demise.

Medicine Buddha, Spirit Mothers, all healers and herb gnomes.
Come so I don’t have to hear my loud inner metronome.
Saint John of God, mender of broken hearts,
Come and we’ll restore a whole from divided parts.
Prayer always works, if asking is specific.
For the highest good, I rescind prayer to be just pacific.

Little access to heart, was denial’s last veil.
It came down last Sunday, so my whole can prevail.
Let out my anger, my fear, and my grief.
I ask now to feel it, toward bigger relief.

New info from body came in very handy,
Symbolic meanings of which with self I did bandy.
My left, right, and third eyes, made pain their selection,
To get me to look in a brand new direction.
Half a headache said contrast issues female and male,
connect them and then move forward full-scale.

Reaching toward heart is a grasp for the feminine.
I welcome her out, my inner heroine.
Her nurturing, passivity, emotion and love.
type lefty, think righty and seek peace of dove.

Thank God for Sm, in this extra long ditty.
He’s here to protect me from therapists’ stupidity.
They expose the wounds and find the wrong fault,
rarely show skill, just pour in more salt.
Setting me back, I just couldn’t bear,
Thank God for Sm, who handles with care.

Help counselor Sm, master sweet Jees,
Give him words for me, whisper in Lebonese.
Then fill us with love and connect me to Divine,
I’ll know I am there ‘cause I’ll be drinking my twin’s white wine.
My relationships will deepen, my marriage will blossom,
I’ll less likely wig out when spouse brings home a ‘possum.

Before I do that, comes an adrenal potion.
Until a sudden pop, causing a happy commotion.
While waiting, I’ll swim in the vast new ocean,
of chakra 8 archetypes, and deeper emotion.

I’m hesitant to begin, even really slow.
Chi through my middle does not evenly flow.
I might once again get beat up from within,
As soon as I drink some FM juice in.
One side of me says drink up and sense,
Where it is the chi hits the fence.
Notice new signs, tell doc the clues,
To see if there is a formula to choose.
It seems like I know, have I seen this edition?
Elly’s got yet, sigh, another condition?

Still wanting progress, I dove in the pool.
Found some more plays, where I acted the fool.
Figure out how, these wounds influence life. 
Keep working to be, set free from the strife.

I wrote this long poem to open my heart.
Revising and rhyming my story a start.
My head is hurting, with intermitant pain.
My heart is still pounding, is it really a gain?
My gut is still bearing way too much.
What will be the next special touch?

Affinity, was where found next reading apropos.
Tracing issues fore birth, progress I did undergo.
The force fields have lost much of their power.
To dark forces and fear I no longer cower.

A witness, a guide by profession,
To Sm I go for 5th chakra confession.
After express what I’ve learned, it calls even more forth.
Popping up like a Pez, to work with my 4th.

For this long time, I had to be dense.
Now its better that things make more sense.
Implications for big picture are very immense,
Not ready think about it, it is too soon, too intense.

Leading a group provides a great twist.
I get verbal jabs that I should desist.
Mine is so special, this is very galling,
Don’t you see I’ve been prepared for my calling?

When I am well, by the end of some year.
I shall answer this challenge with a heart sincere.
I’ll charge for some time and some I’ll volunteer,
I’m meant to stay on the “Help People with CFS” frontier.

When I have made it, chi will flow unimpeded,
Because of what I slowly, stubbornly conceded.
The race will be on for first to be voicing,
A favorite quote about much rejoicing.

This morning I feel a new peace, I relax.
Needy me doesn’t have to write, call, or fax.
I’ll keep going, I am afraid of no wraith.
Healing is coming, I must keep the faith!

<><><><><><><><><><><><><><><>




To Quicken in the EGG


The attitude of gratitude,
sounds full of platitude.
I don't yet have words,
will you give me more latitude?


I said in my mind a whole bunch of should,
I suppressed my true spirit with 'If only god would..."
I didn't feel good enough, 'If I only could...,'
came out of my body as 'I just don't feel good'.


All the king's horses and all the king's men,
failed the big egg, his fall was not zen.
My fall was in spirit, then mind, and then flesh,
after CFS, after POTS, after all, I rise afresh.


I have time to heal all, time to reverse it,
and reach up to remember what's real and what's shit.
My spirit is now leading, the mind next in line,
the body in rear, I trust will be fine.


I've formed a good EGG to help those with walls,
whether they sit on them like Humpty or build them with galls.
We'll notice what's flowing, Dumpty the old style,
start feeling better and really worthwhile.


I cannot heal faster, it isn't I'm chicken.
I must walk for now while still a bit stricken.
My vitality is growing, my plot is still thickening,
I lead the new EGG for my ultimate quickening.

Elly

9-2-06
Couldn't sleep. Updated this web some, then wrote the above and following typo:

Live on herbs is always interesting!



 
Resistance is Assistance

Your
Resistance
has been my
Assistance

Thank You

Neither
Your Will Nor
Your Surrender
Could Melt it Away

I needed it

Your Resistance, My Resistance
With Frustration's tenacious Persistence
Marks time 'til the Time for Each to Live in Co-Existence
'Til the Time for Each to Live Insistence on Timeless Existence

You as You Are
for me
I am as I am
for you

All
Resistance
Is
Assistance


Elly

Just after 7:22 PM EST, December 21, 2006
The Winter Solstice, when The Light grows again





2nd

A womb, a tomb
communion feels doomed
Ideas lie dead
in periods of dread

Still puzzled
being muzzled
Will it break free
will it break me

Clumpy bled blood
lumpy red mud
Disrupted flow
way down below

Look, I don't see
Feel, its the fee
Know, still nothing
too weary for cussing

Empty yet full
awake yet still
Still seeking next piece
to bring forth her peace

Honor each other
inner father and mother
through the son's slaughter
we're raising the daughter

She balancing he
he crossing she
weighting and waiting
k(no)w more debating

Aha's out of sync
in our chakras of pink
hearing same feeds
different swallowing speeds

First is the A
Finding the way
Second is B
SeeConned has "to Be"

After the shock
rejoining the flock
Keep moving and bending
Still ever role blending
Creativity of two is heaven unending

Elly
06/30/07








Brain under Stress, Healing in Mind



This is your brain.
This is your brain apart.
This is your brain apart from the heart.
This is your brain apart from the heart of the matter.
This is your brain apart from the heart of the matter, in the matter.
This is your brain apart from the heart of the matter, in the matter of health.


This is your mind.
This is your mind a part.
This is your mind a part of the heart.
This is your mind a part of the heart and body.
This is your mind a part of the heart and body, the matter of the soul.
This is your mind a part of the heart and body, the matter of the soul, for the healing of matter.


A nested meditation by Elly 9-5-07




Something Was OK Today


That very long list of
what was hard and
what went wrong
that repeats in the head...
that is what
depletes a heart


When overwhelmed
when overtired
when wrung out
and feeling dead....
it is vital
for vitality
begin anew, to start


Balancing the list
believing in benefits
of finding and noting
to self, maybe others
today
Something was OK
maybe even beautiful
maybe even art



Elly Brosius
08/28/2008


For Elly's "Over Do Ode" and "A is for Appreciation"
see Expressions page at When Pushing Stops Working

The Northern VA CFS/FMS Support Group & CFSupport are informal support groups and website led by volunteers. Group leaders Elly and Toni have the experience of chronic illness and are not medical, counseling, or legal professionals. Please seek out qualified physicians and other Practitioners for
diagnosis,  treatment, and legal advice. Thank you.

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Updated April 7, 2009
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