| Medical Links |
Three national societies exist that I know of:
National MPS Society - You can find useful information here.
Canadian MPS Society - Similar to the National MPS Society Site in informational content but very much worth checking out.
The Society for Mucopolysaccharide Diseases - The UK's society. Similar in content to the above sites.
Information on Hurler Syndrome is available from:
MPS Discussion Forum - This is a forum sponsored by the University of Minnesota. A wide variety of topics have been approached over the last few years.
PEDLYNX - This is a database of numerous childhood illnesses. Hurler Syndrome is one of the illnesses described.
MPS Disorders - This is an explanation of some of the MPS disorders from East Carolina University. The description contains several sections and approaches several issues.
MPS Information - Information by OMIM (Online Mendelian Inheritence in Man).
BMT Slide Presentation - This slide presentation is from the University of Minnesota.
Rare Genetic Diseases in Children - This site is a layman's approach to genetics. The glossary is a big help.
Medical Terms - This is a list of medical terms that we put together.
Personal experiences and other sources of information:
Tyler Bales - NEW ADDITION AS OF 6/1/00. Tyler underwent a BMT.
Holland's Hope - This site presents information on MPS and tells about Spencer's participation in enzyme replacement therapy trials.
The Ryan Foundation for MPS Children - This site provides information and tells about Ryan Dant, another participant in enzyme replacement therapy trials.
Christina Leighton - This page tells about Christina Leighton, another participant in enzyme replacement therapy trials.
Maddy Wigglesworth - Maddy underwent a Bone Marrow Transplant (BMT).