RSD-Reflex Sympathetic Dystrophy, Queensland - Judy Cesari White - Contact and Support Group.
"About Me "
  to find out some information on Judy Cesari White and her husband Reg some very helpful information about R.S.D. and C.R.D.S. How to contact Judy or Reg to discuss R.S.D and information about support groups. read some of Judy's poems. Links to useful websites and email contacts that might assist you to learn and understand R.S.D. return to the homepage of Judy Cesari White's RSD support Group webpage.  
 

 

Hi my name Judy Cesari White, I am a contact for RSD and for Group Support.

I am originally from Coburg, Victoria, but have lived in Rockhampton, Queensland, for the past 36 years.

I am registered with "Self Help Queensland Inc" (Australia) as a contact for people who suffer with "Reflex Sympathetic Dystrophy Syndrome" (RSDS) also recently became known as "Complex Regional Dystrophy Syndrome" (CRDS)

 
 

Because little was known about "RSD" 10 years ago, I was actually accused of being a wardrobe drinker for 12 months and told the chronic pain was all in my mind. (This story is very familiar with other R.S.Ders that I keep in contact with).

My husband, Reg stepped in and with-in a few months I was diagnosed with R.S.D.

At that time the Doctors knew very little about R.S.D and I, like many other R.S.D sufferers, was told to go home and learn to live with it ...... end of story ...... over the next two years both Reg and I did our own research and collected a lot of information on R.S.D.

Reg wouldn't let me give up without a fight because this "THING" had invaded my body. Once we started it was like a thirst that couldn't be quenched and working together helped both of us understand what was happening to my body.

So to all you R.S.Ders out there I do know what you are going through and for spouses / family and friends, Reg is only too willing to help because he has put up with me for the past 10 years .... only God knows how, because I don't.

 
  Our local newspaper "The Morning Bulletin"
has published my story on occassions over the past few years to help promote R.S.D.

Once I wouldn't speak about my R.S.D. because those I told wouldn't believe there was anything wrong with me.
But with more and more people being diagnosed, I do know what they have been through with the medical profession and where they are coming from os please remember you are not alone and don't be frightened to speak out.

We must make the most of each day even though we have more bad days than good.

Remember we didn't choose R.S.D, it chose us.
  
 

I am a housewife who is unable to work due to my R.S.D.

I am the publicity officer for the Capricorn Darts Associaton Inc. A job I love doing and do well with all medai aspects in Central Queensland. I play darts (though it is becoming limited due to the R.S.D. being in my left shoulder, arm and hand and the fact that I am left handed) on Monday, Wednesday and Thursday nights.

I have recently become Distinguished Member of the International Society of Poets, and mainly write inspirational poems and have had a few published over the past 10 years.

Also I have been recognised as a local Central Queensland Poet, as well as a local activist because over the years I haven't been afraid to stand up to both Federal and State Politicians over many issues that I have believed in, fought and won for the betterment of women, federal recognition of R.S.D. and Chronic Fatigue Syndrome, Road Safety Issues and others too numerous to mention.

Reg is a professional firefighter of 34 years and is my unpaid carer. He plays darts in my Monday and Thursday night teams. He used to play competition pool on Tuesday nights.

Reg is always 100% behind me in everything I take on and tries to keep me active though there are some days I just want to give up.

Included in our family is "Fourex" our dog, who will be 18 in September. Stubbie as we call him when hi is good is a great comfort to us and on my bad days he is always close on hand.

  
 
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