SATURDAY 15 OCTOBER

0830-0930

Registration

0930-0945

Welcome

0945-1015

Conference Opening:  “Human Rights Challenges of the New Genetics”.

Ms Rosslyn Noonan, Chief Human Rights Commissioner

1015-1115

Behavioural Aspects of Huntington’s Disease

Prof Jane Paulsen, Professor of Psychiatry, Neurology, Psychology and Neurosciences, University of Iowa, College of Medicine, USA

1115-1145

Morning Tea

1145-1245

Stem Cells and Huntington’s Disease

Prof Richard Faull, Professor of Anatomy, University of Auckland School of Medicine

1300-1430

Lunch

1430-1530

From bench to bedside: progress towards new treatments for Huntington’s Disease

Dr Peggy Shelbourne, Lecturer in Genetics, University of Glasgow, Scotland

1530-1600

Adapting to change – A caregivers perspective

Pauline Duncan-DeLury

1600-1630

Afternoon tea

1630-1730

Sharing our Experiences – Personal Stories of Huntington’s Disease

Family members and caregivers

1930

Conference Dinner - Renouf Foyer, Michael Fowler Centre

Dinner Speaker, Prof Richard Faull,  My Journey with HD

SUNDAY 16 OCTOBER

0900-1000

HD and Insurance

Dr Louise Kane, Medical Advisor, Tower Health and Life

1000-1030

Amaryllis House – One Year On

Ms Margaret Simmons, Manager, Amaryllis House, Lower Hutt

1030-1100

Morning tea

1100-1130

Diversional Therapy for Huntington’s Disease

Ms Jane Jackson, Diversional Therapist, Amaryllis House

1130-1230

PREDICT-HD  :  A Research Update and Opportunities to Participate

Prof Jane Paulsen, and Ms Elizabeth Penziner, Recruitment and Retention Coordinator

Predict-HD, Huntington’s Disease Center of Excellence, University of Iowa, USA

1230-1315

Panel Discussion

Main speakers reply to questions received during the Conference

1315-1330

Closing Remarks

1330

Lunch

              For Registration Forms and further information, contact:

Carol Dring, Conference Secretary

Huntington’s Disease Association (Wellington) Inc

28a James Cook Drive, Whitby 6006, Porirua

Tel: (04) 234 7742

Email: cdring.wellingtonhda@xtra.co.nz