The Huntington's Scene In New Zealand
Site Maintained by
Graham Taylor
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available from the Homepage |
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About The Associations ..... Newsletters |
| Articles taken from
the Huntington's News. The Quarterly Newsletter of the
Huntington's Disease Associations of New Zealand |
DECEMBER 2005 Newsletter
- Personal Story From
Hell to a Cruise and Home Again By George Pallet
- Pioneer Delighted at 'Oscar for
Science' Richard Faull used tissue
samples to prove diseased brains fight back.
- HD and Driving A
Physicians View: Evaluating HD Persons for Driving Allen J Ruben, MD
- Caregivers’
Payments Reviewed The paper ‘Payments to and Support of Family
Caregivers of Disabled People: the work of the Office for Disability Issues’ can
be accessed at www.odi.govt.nz. There is also
information on the background to the review and its development to date. Information will
be updated as the review progresses.
SEPTEMBER 2005 Newsletter
JUNE 2005 Newsletter
The Annual Young Peoples Camp April 2005 A Report By Dorothy Tortell
The eleventh Annual Young Peoples Camp was held from 19-23 April at the El Rancho Holiday Park, Waikanae,
which is situated about one hour north of Wellington. All young people from Huntington’s families throughout
New Zealand, between the ages of 12-26 years, were welcome to participate.
MARCH 2005 Newsletter
DECEMBER 2004 Newsletter
SEPTEMBER 2004 Newsletter
- Sarah
Winckless One half of the British Women’s Double
Sculls At Athens Olympic Games
JUNE 2004 HD
Newsletter
MARCH 2004 HD Newsletter
DECEMBER 2003 HD Newsletter
SEPTEMBER 2003 HD Newsletter
- Secrets of the brain
revealed By Simon Collins Science reporter NZ Herald 11-07-03
- Regional News
- Huntingtons - A Family Perspective
Contributions Wanted
- Encouraging Preliminary Results about LAX 101 By
Shawn Mitchell, Director of Communications and Volunteer
Development, Huntington Society of Canada, (with source information from Amarin
Corporation pie and the Web
site for the Huntington Study
- Group Language Therapy in Huntington Disease
The following is an edited version of "Maximising Participation in Huntington Disease
Through Group Language Therapy" by Maria Berarducci, Speech Pathologist, Sacred Heart
Rehabilitation Service, St Vincent's Hospital; Emma Power and Alison Anderson, Speech
Pathologists, NSW Huntington Disease Service, Lottie Stewart Hospital; and Dr Leanne
Togher, Postdoctoral Researcher, School of Communication Sciences and Disorders, Faculty
of Health Sciences, The University of Sydney.
JUNE 2003 HD Newsletter
MARCH 2003 HD Newsletter
- Final Papers from the HD
Conference held in September
2002
This contribution is an overview of the presentation given at the HD Conference in
September last year, and is a brief summary of the research conducted by Kristy in the
course of completing her PhD.
- Caring for those with HD in Specialized
Houses by Dorothy Tortell Social Worker
(Read in conjunction with MOH Presentation and Specialised Homes below )
- MOH Presentation to
HD Conference By Sandie
Waddell Senior Locality Manager Wellington Locality Disability Services Directorate
Ministry of Health
- Caring for People in Specialised
Homes By Graeme
Taylor General Manager NZCare Group Limited
Genetic Testing
for Huntington’s Disease.
Presenter: Danielle
James Genetic
Associate. Central Regional Genetic Services. Wellington Hospital. Presented at the 2002 HD
Conference, Wellington Town Hall. September 22nd, 2002
Regional News
Question and Answers
DECEMBER 2002 HD Newsletter
SEPTEMBER 2002 HD Newsletter
JUNE 2002 HD Newsletter
MARCH 2002 HD Newsletter
- Auckland News
- Waikato
News
- Research
News Hereditary Disease Foundation Scientists Find
Possible Treatment For Huntington's Disease Show for the First Time How Existing Therapies
May Arrest and Prevent Nerve Damage in
GeneticBrainDisorder Acknowledgement: Hereditary Disease Foundation Web Site, www.hdfoundation.org. October 2001.
- Huntington's
Disease Research Shows Promise New York, NY, February 7, 2002 - In the February issue of Nature
Medicine, HD researcher, Marcela Karpuj in Larry Steinman’s laboratory at Stanford
University Medical Center reported on a potential treatment for Huntington's Disease.
Using mouse models of the disease, researchers were able to reduce the uncontrollable
movements that characterize HD and extend the lives of the mice.
Emotional Support for Carers by Adam McLean Counselling
Co-ordinator, Carers NSW
The ninth
annual Young People’s Camp organized by the
Huntington’s Disease Association (Wellington) was
held from 1-6 January at the Outdoor Pursuits Centre of New Zealand (OPC). The Centre is situated on the western side of
Tongariro National Park in the Central Plateau of the North Island.
NEW ZEALAND HD CONFERENCE 2002 21-22
SEPTEMBER at the AIR NEW ZEALAND SUITE, WELLINGTON TOWN HALL Guest
speakers will include : Dr
David Craufurd from the University of Manchester, St Mary’s Hospital, UK Professor
Richard Faull from the Department of Anatomy, University of Auckland, and Dr Lynette
Tippett from the Department of Psychology, University of Auckland
DECEMBER 2001 HD Newsletter
Report on the 14th International Meeting of the
International Huntington Association, held in Denmark, August 2OO1
by Dorothy Tortell, Social Worker, Wellington Huntington's Disease
Association
- Understanding Challenging Behaviour in Huntington's Disease
Julie Snowden
Cerebral Function Unit, Greater Manchester Neuroscience Centre, Hope Hospital,
Salford, M6 8HD, UK.
- Nutritional Needs
of People with Huntington Disease
Karen Keast Manager of Dietetics and Food Service, Lottie Stewart Hospital, Sydney
From Gateway, Australian Huntington's Disease Association (NSW) Inc, Sept/Oct
2001
- Editorial by
Virginia Nees
- How It All Began
- Canterbury News by
Judith Baker
- Auckland News by
Beth Gordon, Field Officer
- NZ CONFERENCE
2002
MARCH 2001 HD Newsletter
- THE ANNUAL YOUNG PEOPLE'S CAMP 2001 by Dorothy Tortell Social
Worker
Huntington's Disease Association Young Persons Camp National Park - 2001 The
experience of a camp helper by Mark Chapple
Camp-Thoughts
by some of the young people attennding the annual Camp
HYDROTHERAPY
FOR HUNTINGTON'S DISEASE This article is written by Ros Batcheler who has
taken our swimming therapy classes. Her patience and understanding of Huntington's Disease
has made these sessions very important and worthwhile to our clients.
AUCKLAND
AREA NEWS YEAR
Research Jellyfish
may help Scientists Decipher Genetic Mysteries By Michael Waldholz, Staff
Reporter of The Wall Street Journal, September 2000 ........From HDA Newsletter UK Issue
58 Winter 2000
Research The LAX-101
Research Project in Huntington's disease Summary of Conference Presentation
by David Horrobin October 2000 ........ From HDA Newsletter UK Issue 58 Winter
2000
SECRET
TREASURE .....A song by Paul Duncan
SEPTEMBER 2000 HD Newsletter
JUNE 2000 HD Newsletter
DECEMBER 1999 HD Newsletter
- 18th International meeting of the World
Federation of Neurology Research Group on Huntington’s Disease 28th–31st
August 1999 and 13th International Meeting of the International Huntington Association 28th
August to 2nd September 1999.
Conferance report by Shirley Elliott-Galloway of the Christchurch HD Assocation
JUNE 1999 HD Newsletter
MARCH 1999 HD Newsletter :-
Conferances..
- Emotional Support for
Carers. By Kathy Wood NSW Australia
DECEMBER 1998 HD Newsletter
- Huntington’
Disease responds to grafts of embryonic tissue A article by Dr Tom Miller
Scientific Secretary
- The Forgotten
Person in HD....The Spouse by Dr Seymour
Kessler
The following article was taken from ‘Gateway’ the Newsletter of the
Australian Huntington’s Disease Association (NSW) Inc September Issue.The
presentation was given by Dr Seymour Kessler at a Family Support meeting of the
Association.
Dr Kessler is an Associate Professor at the University of California, SF and is one of a
very few who has paid attention to the needs of the spouse of the person with HD.
- Passing Through
A Poem
SEPTEMBER 1998 HD Newsletter:-
JUNE 1998 HD Newsletter:-
- My Experience A
story by Kathryn Pual about her Predictive Test for HD
Also included My Experience A Year Down The Track
MARCH 1998 HD Newsletter :-
DECEMBER 1997 Newsletter
SEPTEMBER 1997 Newsletter:-
JUNE 1997 Newsletter:-
- Behavioural
Problems in Huntington’s Disease by Dr Julie S Snowden
The following article by Dr Julie S Snowden has been taken from Issue 50 - Winter 1996
edition of the Huntington’s Disease Association Newsletter (London)
DECEMBER 1996 Newsletter:-
-
Wellington Report by Virginia Nees (Chairperson)
and Dorothy Tortell (Social Worker)
-
A Crabbit Old Woman ( This appeared when the old lady died in
the geriatric ward of Ashludie Hospital, near Dundee, that she had nothing of any value;
then the nurse, going through her possessions found a poem. The quality of this so
impressed the staff that copies were distributed to every nurse in the hospital.)