The
Huntington's Scene In New Zealand
Site Maintained by
Graham Taylor |
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Articles taken from September 2000 Huntington's
News. The Quarterly Newsletter of the Huntington's Decease
Associations of New Zealand |
Choosing a Nursing Hospital/Rest Home
Three years ago my HD wife was
admitted into the local public hospital, because the caregivers and myself could not
handle her and give her the care that was needed for her well being.
There she stayed for about six weeks being
assessed, treated for some aggression and had her medication changed, and at the end of
six weeks she was transferred to a Nursing Hospital which had just been built onto their
Rest Home. This hospital is just around the corner from our home and everything could not
have been better. She knew some of the staff as she used to go to the Rest Home side of it
for day care, once a week.
Her large black Labrador was allowed to
visit her, and most of the other patients thought was just great to be able to come up to
him and pat him.
The Manager of the whole complex had
approached me some time before saying there would be a bed for her in the new wing when it
was built. At that stage I told her that there was no need to have her hospitalised but
things went down hill soon after that. I checked it all out and asked if they would be
able to look after her, and the Manager (an ex-nurse), replied yes, from go to
whoa.
Things went along very well for about two
and a half years, then one day the Team Leader came up to me and said that they would like
to have her assessed again as they were having trouble with her wandering and making it
difficult for the other patients. The problem was mainly at night when they only had two
staff on for thirty-six patients and she would be on one of her nocturnal wanderings
looking for someone to feed her. Another problem that arose was that she would not sleep
for up to thirty-six hours and of course when she finally went to sleep she would sleep
for a long time. Sometimes up to eighteen hours which meant that she had not had any food
for that length of time or longer and would wake up hungry and aggressive.
She then spent ten days being assessed
and with changes of medication came out and back to the home with recommendations that
they feed her on a more regular basis, which they did. But now there was talk of shifting
her out to another hospital because they did not have the staff to handle her. On
asking the nursing staff how she was going, the answer would be that she was good and
having good days. But when it came to family meetings the information would be otherwise.
My wife is now residing in another hospital,
where she seems happy enough and well looked after. How the upheaval of shifting will
affect her is still to be seen.
The points I want to make are: -
Why do hospitals and Rest Homes say they can look
after HD patients right through, but when the going gets tough move the patient out?
Are they not obliged to have suitable staff
to handle this type of patient? (They seem to have a lot of nurse aids)
Is it a money thing at private hospitals
that dictates who they look after?
Just
something to think about when choosing a suitable place for your HD loved ones.
A Concerned Husband