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MY STORY
AS WRITTEN 10/97, UPDATED 9/99
In the mode of people in programs of recovery, this story is not dressed
up to paint pretty pictures, but contains the sometimes blunt and unvarnished
facts about my imperfect life, both in my acive addiction, and in my still-unfolding
recovery. It may be difficult for my close friends and family, co-workers,
or even for casual readers and visitors to understand some of the things
included herein.
There can be no victory without struggle - and sometimes the only slim
victory is in the continued will to take on that struggle, never giving
up. If you're still reading at the end of this long , convoluted story,
you're either family, or masochistic. If you decide to bail - don't sweat
it - I know I'm a champion blowhard. : )
The short version is: an addict stopped using, lost the desire
to use, and found a new way of life, one day at a time, through the program
of NA.
I am a survivor, and I say it
with pride.
In my short life, I have seen
much.
I left home at such an early
age, and hit the streets. I had knives held to my throat, and guns held
to my temple, learned to beg without shame, and had been dragged into emergency
rooms in the paranoid delusional grip of bad drugs. I had played music
in front of big crowds, written a book of lyrical poetry, stood at the
very feet of Jimi Hendrix - so close that I felt the heat on my face as
he burned his guitar on stage. I had slept in churches in Urban Denver,
communes in Santa Fe, under bridges in Arizona, in the fields of
Western Colorado, in condemned tenement slums in Oakland, in shooting galleries,
and crash pads, and in the arms of young lovers.
I had worked in 'Boiler
Rooms' - watching burnt out phone sales guys drinking coke and Vicks inhaler
cartridges for breakfast, had worked in-between the headstones of Crown
Hill Cemetery with old wetbacks who lunched on mescal and weed - even seeing
a body go up in the furnaces of the crematorium there.
These were my experiences
between my fourteenth, and sixteenth years of life.
Before that, I had been
fed booze from the time I was an infant, had been beaten by my mother,
step fathers, caretakers and peers; countless, endless times. I had been
dragged through every casino in northern Nevada, every 'Bucket-o Blood',
and 'Glory Hole' Saloon from Central City Colorado to Virginia City Nevada.
I had run free on the Nevada desert, and in the Pinon foothills of the
Eastern Sierras. I had (accidentally) shot myself at age five, and been
hauled into the Carson City Jail for nearly (accidentally) shooting a neighbor
at seven. I could (evidently) shoot a gun, set a snare, catch fish and
frogs with my bare hands, shimmy up any tree, and navigate by the stars,
sun and moon.
I had hung out in the
stock car pits at Reno's racing tracks - even ridden laps with Buddy
Baker in his blue #4 Ford coup.
I had even spoken before
400 people in the mess hall of the Nevada State Penitentiary, sharing my
gratitude at ten years of age for my mother's one year of sobriety in AA.
These were the things
of my earlier childhood.
I spent fifteen months
confined to a mental hospital, because of my inability to be controlled
by anyone. There I learned about old drunks and Paraldyhyde, ‘forensic
patients' (criminals), and attempted jailhouse rape (better fight for your
booty!), I learned to paint, bang out self styled songs on piano, play
a mean game of chess. In my budding addiction, I'd steal from senile old
ladies for money to buy drugs from the hospital staff. I learned how to
slip wads of paper into door latches so that late at night they could be
used for egress onto the streets of the city
where I would run with dealers and car thieves. I learned how to endure
solitary confinement, sensory deprivation, 'mileau therapy', and the dread
of watching dazed and vacant zombies returning from shock treatments in
the sinister ‘North Wing' - fearing that one day it might be me.
I got an FCC broadcaster's
licence, and had a radio show - a news-talk/interview show on a college
FM station, spinning underground records in the studios of the same
college's AM station. And read the works of Jerzy
Kosinski, DuMaurier, Malmud and Theoreau.
I was with a very close
friend (she had once been a girlfriend) through her pregnancy, after she
was knocked up by another friend (a bass player from one of my early bands)
and abandoned by him. I held her hand and sweated in the waiting room during
her delivery, just as if I was the father of that baby - whom she relinquished
for adoption and never saw or held.
I had jumped out of moving
cars to escape the advances of greasy old molesters - drooling on my young,
blond, hitchhiking knees at 60 mph.
These were the things
of my life before my eighteenth birthday.
I struck out for redemption
and a new life, and found Bolinas Ca., where I slept in bushes & trees,
and eventually built my little cabin. I worked for two dollars a day, beer
and meals, willing to do anything to find dignity and a place in that world.
I met my lifelong sidekick Dolomite (Doly), became a true musician on the
old Nicholl & Gross upright in Scowley's pool room, rubbed elbows with
accomplished people from all walks - Arthur Okimura, Lawrence Ferlingetti,
Richard Brautigan, Rosalie Sorrels, Alan Watts, Bobby Louise
Hawkins, Robert Creely, Jesse Collin Young, The Rowens, Huey Lewis, Slick
and Kantner, Jerry Garcia, John Cippolina, Steve Miller, and on, and on,
and on.
I laid up through the
long, rainy winters reading the Russian masters - Tolstoy, Dostoyevsky,
and Solshenytsin as I coughed my way through the bronchitis of those damp
months with fat, hand rolled cigarettes. I stayed up all night watching
classic movies on the UHF stations that my little Zenith B&W tv pulled
in with a coat hanger antenna.
I played jigs on my harmonicas
on the little boat dock in the channel to the Bolinas Lagoon, serenading
the sunsets and the rising flocks of birds off the estuaries.
I pondered through soft
nights in the redwood rainforests of Muir, took in the sunrise from above
the clouds in the Tamalpias Headlands.
These were the things
of my life before my twenty second year.
I was Tutored by a French
chef, went to live in an upscale little resort village near Sant Cruz,
got a job as a lead chef - drove around in a fancy little sports car, played
music with acquaintances at the local college, wrote songs and songs and
songs. Had my first true love and heartbreak, lost a best friend to suicide,
failed at my own drunken suicide attempt (wanted to gas myself & blow
up the building I lived in),eventually left California and reconciled with
my family in Denver.
I stopped drinking alcohol
for the most part (aside from periodic benders), but went deeply into 'Marijuana
Maintanance'.
I went to work helping
'retarded' (Developmentally Disabled) people, and
fell in love with the field. I worked with enthusiasm, got noticed and
promoted quickly. I became an Administrator, took on responsibility and
authority, managed large projects, budgets and staff.
I changed my life in nearly
every way. I established a home, got married to a hard working Iowa girl,
and became engrossed with coral reef aquaria.
I played music with friends whenever I could, formed a band, and built
a little rehearsal studio in my basement. I became a Team Leader for State
of Colorado survey teams, going into care facilities and evaluating compliance
with standards, and the quality of services there.
I took in a terminally
ill retarded man, and made a commitment to give him love and friendship
until his last living day.
I wrote songs, and wrote
songs, and wrote songs.
I bought a 34 foot bus
- gutted it, built it into a double-deecker motor home, and launched out
with My family (Heather then being only 6 weeks old) on a 5000 mile tour
of the south - spending weeks snorkeling, adventuring, and diving off of
Sugarloaf Key.
I took time away from
my work in Human Services to go to work with an importer of tropical fish
and exotic animals - managing the coral reef animals and systems for that
enterprise.
I took other Adult Foster
Care people into my home.
I lost my 'tenure', and
returned to my work in human services at an entry
level (administrative positions were few and far between). I drove truck
for a sheltered workshop program, working with trainees of the program
as something of a hybrid between a grunt worker and a vocational trainer.
I languished at this job for four long years, feeding my family,
playing music, and waiting for a break.
I got that break (I thought)
when I was asked to become the director of a pilot residential program
for persons with Developmental Disabilities coupled with very severe behavior
disorders. It was a nightmare - I was brought in to right a sinking ship
- but it had already suffered too many fatal
breaches, and after a year I left to work as a nursing supervisor in an
agency providing community & home based care to a patient population
consisting mostly of indigent AIDS patients. This I did for one tormented,
exhausting year, until my addiction brought
my career in human services administration to a halt.
I had been using continually
through
all my years, trying to keep up a life that required more of me than I
felt I was. I achieved and achieved and achieved, all to prove that
I wasn't the worthless piece of garbage that I felt I was deep inside.
I began to crack under
the weight of all the responsibility that I had taken on.
My free-spirited life
had been stifled under the immense weight of my outsized commitments.
I had played music all
my life, and had managed to keep gigs going & songwriting projects
in my little studio all along, but now was losing my creative spark. I
hid out, and used every chance that I could - spending endless hours isolated
and short of sleep as I tried to get a harder, deeper high.
I quit my job, and went
on unemployment, and stayed home with my foster care clients (who, by bthen
were taking better care of me than I was of them), free then to do nothing
but isolate and use. And ultimately, in my pain , confusion, and shame,
I bottomed out and made the decision to surrender to the program of NA.
I charged back at life
with renewed enthusiasm - financing and building a small recording studio
with a musician friend, immersing myself in music, writing songs, reincarnating
my band, and setting up shows. As I got clean, and my ego began to get
tempered, I began to look less toward being a front man and the star of
the show, and more toward being a pragmatic musician (there's an oxymoron!)
- setting up a production company thatt brought me into contact with a broad
range of artists and industry people as I provided sound, recording, and
video support for my clients.
I was becoming free to
live in my world of music, still a foster care provider, still helping
people, freed from the yoke of drugs, my mind was clearing and I was becoming
more strong and straight and focused. I was a sponsor to many people, whom
I had learned to allow to teach me, rather than appointing myself as their
teacher. I was finding a deep love of a God I was awakening to, the people
in my life, and my own faulty, eccentric self.
I had lived all of this
in the span of forty two years.
Then the Bottom seemed
to drop out of my life. I endured the death
of my lifelong best friend and brother, Doly, the long agony of my mom's
illness & death (both died in my arms within eighteen days of each
other, as well as a beloved uncle who died in California during this same
span), & the creeping in of my own chronic illness - COPD (Chronic
Obstructive Pulmonary Disease).
Though I was told many
years ago that I had this illness, I denied it for
the most part - wanting only to believe that if I quit smoking (as Idid
finally on March 5th of 1990 after four years of trying) I would be ok.
I pushed myself to the
limit - taking on big contracts without more than a single helper - starting
out in the early morning de-bugging gear, loading it into the trailer,
then into the venue - doing all the setup for mains, monitors, and any
lights, video or recording that might also be involved. I ran the system
through the shows - hustling from booth to monitor station to amp stacks,
keeping it all going with a big red 'S' on my shirt.
I'd strike the stage,
pack up & load out, not dragging my weary ass to bed until 4 or 5 a.m.
most nights - only to get up & do it again, three - four nights a week
during my busy seasons.
Between this frenzied
schedule, I put on shows for the fellowship - donating my gear and time
to do DJ dances, talent shows, and benefit concerts..I started an NA clubhouse,
I remodeled my house, bought a big beautiful Crewcab Dually 454 Chevy truck
and a 30 foot fifth wheeler to tow with it, and took my dysfunctional family
on vacations that made Chevy Chase's seem like
backyard bar-b-ques. Went to Yellowstone, the Olympic Rain Forests(loaded
the whole rig onto a ferry & crossed Peugeot Sound as orcas danced
alongside!). Took the family to Mexico, and toured the Southwest deserts.
I rode my motorcycles
whenever I could - especially loving rides in the San Luis Valley, and
out on the back roads of the eastern plains of Colorado. I loved to fish
for brook trout, scrambling up mountain stream-sides with a short rod poked
through the thick brush - trying to get into that little swirl or deep
hole where those crafty little brookies like to hide.
I fell sick in the fall
of my 42nd year, and all the things of that life seemed to suddenly
be put behind me. I was wrong to deny that I was ill when the doctors told
me so back in 1988, after I couldn't shake yet another of my 'bad colds'
and bronchitis.
"COPD? Doesn't sound too
bad - and when I'm well, I'm really well - there ain't no stopping me!
Hell, I've beaten everything else that's ever been thrown in my path."
This was the voice of my denial. But in my grief and exhaustion following
the deaths of my loved ones, I got very sick, couldn't catch my breath,
and over a two month span realized that something
more menacing than bad allergies and a cold
was upon me.
A couple of years after
my intial diagnosis, I followed the advise of my step mom, who has a chronic
lung disease, and went to National Jewish
for treatment and evaluation. There, I was told
that My COPD was mild, that I was having reactive episodes that were manageable,
but were warning signs that I needed to take care of myself & take
medications.
I got to feeling better,
and the longer I felt better, the less relevant that advise seemed. The
medications were expensive, and I didn't feel any real discomfort other
than 'bad allergies' and an occasional episode of shortness of breath.
Did seem to get tired a little easier, but hey - it's a big life!
I went to smokey meetings,
hung out in smokey clubs, and lived in a dusty old Denver brick home with
a menagerie of pets.
I took a job helping my
friend rebuild his house in Southern Colorado, that put me to work through
an entire summer in a very small, fiberglass-filled attic crawl space,
far too hot to keep on a mask in for any period of time.
On November 1st of 1996,
I got a 'cold'. It became bronchitis quickly.
I went to the doctor, who became
quite alarmed. I was in full blown COPD - had reactive airways that were
badly obstructed. He ordered me onto the meds I should have been on all
along. I was coughing out of control, and discovered that I had torn the
wall of my abdomen, creating an umbilical hernia that was nearly strangulated.
I had no medical insurance, and found myself with a major medical condition
that threatened to wipe me out from the expenses of care, medication and
surgery.
It was the holidays. I
had just lost my best friend, and my mom, and now was sick and broke. I
eventually managed to get on my wife's Kaiser plan, which lifted the financial
stress but as the months wore on I got sicker and testing & evaluation
revealed that I now had a chronic, progressive lung disease, that was unresponsive
to most treatment, and was rapidly destroying my pulmonary functions.
I lost more than
50% of my lung capacity in a year, despite aggressive
treatment from a very good pulmonology team.
I was on an average of
9 - 14 medications daily, and tolerated the side
effects of them poorly. I slept poorly, was deeply fatigued and intolerant
of the whirlwind of my household most of the time. I was married to a woman
who seemed unable to give me the comfort and emotional support that I needed
in these very dark times, wonderful person though she is. We had drifted
apart so many times over the years, but I felt that now, when the chips
were down was a litmus test of the strength of our marriage.
She would bring me food
and medicine, but seldom touched me - never held me, and I felt like a
leper - a drag on her already overtaxed emotional resources. She too felt
the strain of our life - the pain of death's visits upon our loved ones
- the load of caring for the entire faamily, a sick husband, working her
very demanding job. She was not mean or cold - but there I lay in pain
and illness, and feeling the gaping void left by our conflicting needs.
Finally, craving quiet
and feeling maimed by my life's recent course, I moved into my studio(in
a detached building on my property), where I was very self contained, but
also very isolated.
I could sit in a chair,
on an average day, for about 45 minutes at a time before I got tired &
had to lay down. Although for a while I was on something of an exercise
routine, I developed new tears in the muscle walls of my abdomen, &
had to be very conservative about strenuous
activities. My voice was pretty much gone, as
a musical instrument anyway - became very hoarse & raspy.
I drew close to a woman friend,
Jennifer, whom I met on the internet, and through voice telephony, came
to rely on her as a light in my sinking life. I was in deep dispair - though
I tried my best to keep going, and look for meaning. She and I developed
a bond of mutual support and understanding, and she ultimately saved my
life - I do believe.
During those long months,
I struggled pretty hard - I was on bursts of prednisone, and it played
havoc with my nervous system. I was a tangle
of moods and emotions and perseveration - hanging on
through anxiety and muscle spasms and twitches and itches - all the side
effects of steroids which I needed to keep breathing, but which made me
so miserable that I often didn't want to . I was prescribed sedatives to
try to keep me on just this side of psychosis - though I took them very
conservatively, and only after asking for direction
from my medical staff on each and every occasion. I would go for
a day, into two, and then three without sleep, then finally surender to
the need to take something.
It was especially hard
on my closest loved ones, who got sprayed by
the emotional surf as waves broke within me. God how I hated being weak,
frail, and labile.
I had been a squirrely
mess at times during this period - losing focus, getting
into self pity and fear, taking off on tangents. Life was going to take
a little figuring out. I couldn't self-will my way out of this, and needed
to face the future in a new way. I'd always lived under the illusion that
the future was going to be something of my own shaping, somehow. I mouthed
the words the program teaches us about powerlessness and being in the hands
of a Higher Power, but like many of us, I secretly held onto my reservations
that I was in control, that I could make things happen.
I had to learn to truly
give my life over to the care of God.
I was alone a great deal
of the time during that period, somewhat by choice as I got worn out quickly
by the activities and energies of others. I was profoundly lonely
at times, and leaned on a select few people too much,
to shield me from facing that loneliness. I formed unrealistic
expectations that my online friend would be like a button I could push
for companionship, fixing me when I was scared or alone. Self centered,
self seeking me.
I know that in those long
months, I was at times erratic, proud, vain,
arrogant, angry, demanding, usury, and evasive with my friends, family
and associates. This disorder (COPD) can serve, like so many other things,
as a source for my betterment or my downfall.
I had to learn that I
couldn't use it as an excuse for lapsing into the defects of character
that have always been sources of misery and unmanageabitily in my life.
I have a responsibility
for my recovery, no matter what.
I concluded in October of '97
with:
"I look back on my life
with amazement. I suppose that having squeezed so much into so few years,
I sometimes feel past my quota of life experiences, & may have to be
very miserly about how I ration out many more.
I am adjusting to my new
life, trying to become a better player, and
taking advantage of the wonderful toys & tools that I have in mystudio.
I try to grow in my recovery,
and seek contentment, though in honesty, I
have had some troubles with grief and anger at my losses. Allowing
myself to be human, I expect that will be so, but I need to keep striving.
I know that there is much
to be gained from finding a more quiet, accepting
relationship with myself. Learning not to measure myself by frenzied accomplishment
and 'doing', trying to get ok with just BEING - breathing, and sensing.
Life is sweet, though often painful. I have no clue if I will be here tomorrow,
or in another fifteen years (none of us really do!), but if and when I
am gone, I hope to have lived this intense flash of experience well, and
found some contentment before it was done.
I love Narcotics Anonymous
for giving me tools and a chance for that - for
showing me that way to a more spiritual life, and giving me steps to live
by.
I doubt if many folks
are still with me at this stage of this looooong tract,
but have written it for the sake of writing it, so no matter. If anyone
is still with me here, I will close by saying :
I Love You! - and thanks for
being here.
Steve
10/97"
Update, 7/98:
...In January '98, I decided
I'd had enough of life in my studio, and of the isolation I was feeling
there. I ended my marriage of 19 years, though without great animosity
or bitterness. We both knew that it was done, and that we needed to be
free. Niether of us could continue as we had been. I was laying there,
feeling life slowly slipping away from me - craving the comfort of love.
If there was a life out there to be lived, I felt it passing me by.
I left Denver, and went
to Long Beach Ca., where the climate and the weather were much more agreeable
for me. I knew that I needed some purpose for being, and had come to love
my friend Jennifer very much. I wanted to try to start life over with her,
or at least die trying.
After a six month period
at that altitude & milder, more stable climate, I broke through the
revolving cycle of broncospasms and medication side effects. With less
medication I began to sleep and rest better, and gradually found a level
of energy closer to what had been normal for me in the past - not cured,
but much better. But as I got better, the relationship with Jennifer seemed
to become more difficult, and we both had difficulty adjusting to so much
radical change. I was so very homesick for Denver, and missed my daughter
terribly. Jenni and I struggled as we discovered that our differences were
greater than we had ever realized from 1000 miles away. I decided that
I wanted to come home - back to my daughter, to Denver which I realized
once more is such a jewel, back to the fellowship which was there for me
when I first got clean.
Becoming well enough to return
home was a gift of profound grace - moving back away from Jen was a thing
of profound sadness.
I returned to Denver in
early June (more adventures in that trip!) and have settled into a garden
apartment in a house in Southeast Denver. My new landlord (who is
a retired literature professor) and I seem to have a great rapport, and
I am in the process of building a full scale recording facility on the
premises. Eargasm Sound Co. rides again!
Though I need to take
extra care and closely monitor my level of fatigue and my respiratory function,
I have nearly regained my normal voice, am active in my fellowship, riding
motorcycles again, and have great hopes for the future.
- SN, 7/98
Update 9/99:
I am as settled in to
my life as a person could ever hope to be - the apartment that I moved
into in '98 was a fixer-upper, and much of my rent was exchanged for my
work here. I have built a new kitchen and bath, have completed the making
of my living areas into a colorful and comfortable home.
I am again a Host Home
Provider, working with a guy named Michael here. Mike is a challenge, and
suffers from the aftermath of a horrific upbringing. I am blessed to have
the resources to bring to him, helping him learn new ways to approach life.
I also have bought myself
some luxuries - a nice Blazer Tahoe, home theater gear, and have completed
most of the components of my studio - adding a networked computer to my
control room and converting a storage area into a nice little recording
room, which doubles as a small (and still a little primative) guest room.
I am good friends with
Shari, and Heather and I are closer than we've ever been.
I work during the afternoons
with Lue, my sidekick of 22 years who shows that Down's Syndrome may be
considered a disability, but a person's character lives in the indominability
of their spirit. It's a privilege to work with Lue, who keeps me sharp
just trying to keep up with him.
In the mornings I do community
participation with an autistic man named Carl. Carl is a gentle giant,
and amazingly for a person with his kinds of challenges - he's a hug machine.
He is the converse of Will Rodgers who never met a man he didn't
like - I've never met anyone who doesn't like Carl.
I have done some recording
projects, have been doing some DJ gigs here and there, and actually PERFORMED
publicly for the first time in a very long time this summer. I actually
SANG (!) without driving people from the building and wowed 'em with a
rendition of Heather's Song.
I ride my motorcycle as
often as I can get away with - usually a little faster than I should, but
not too fast to miss the warming sun, or the limitless world all around
me. Have gone to two consecutive annual biker runs - the International
Serenity Run held at the end of July at the foot of the Grand Mesa in Western
Colorado. It's a blast to ride with several hundred 'clean and sober' scooter
folk - still leather clad and politically incorrect, but so welcome in
the nearby town of Cedar Edge that the local VFW throws them a traditional
Saturday breakfast, and gives over the streets for a parade - hundreds
of big, loud bikes, with bikers throwing candy to the local kids.
My life is no less than
a miracle from the God who loves me, and who does that which is beyond
the reach of any human being.
I still need some medication,
and still have times when I need to slow down and rest - but every day
I feel stronger. Each day is full and challenging, and it's sometimes hard
for me to believe how far I've come from those months of wrestling with
an illness that often seemed bent on bringing my life to a close. No, I'm
not cured, and can't get too cocky - but I am LIVING with it, and life's
so very good.
I stay in my program,
and know that at the heart of it all, I owe everything to NA. Without being
clean, and having a set of benevolent, guiding principles I would have
no life, and I would have no hope.
Much love to all, and
I'll update again.....
SN 9/99
Steve the Soundman's. . . HOME
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