{ Holiday Suite } { Living Room } { Kitchen }
{ Den } { Sarah's Photo Album } { Wood Shop Designs }
{ Bathroom } { Bedroom } { Personal Lupus Story }
{ Closet } { Top Shelf } { Library } { Patio } { Crafting Shed }
{ Miss Issy's Background Boutique } { Issy's Diner ~ The Cafe' Chronicles ~ }
{ Lupus Survey } { Lupus Stories } { Lupus Information Center }
Name: Kari Barnhill | My URL: Visit Me | My Email: Email Me | Date of Visit:: 10/19/99 |
Do You or Someone You Know Have Lupus?: I have Lupus | If so, would you please fill out the Lupus Survey?: yes | Your Favorite Hobby:: decorating | Your Favorite Room In My House:: I haven't gone through them all yet |
How Did You Find Me?: by the Lupus sites | Can I Expect You To Return?: yes |
Comments:
10/17/99 15:14:09
Name: Starbird55 | My URL: Visit Me | My Email: Email Me | Date of Visit:: Oct. 17, 1999 |
Do You or Someone You Know Have Lupus?: No, I have FMS&Raynauds & IBS | If so, would you please fill out the Lupus Survey?: N/A | Your Favorite Hobby:: My Web Pages | Your Favorite Room In My House:: All of them |
How Did You Find Me?: FMS message board | Can I Expect You To Return?: You bet! |
Comments:
Hi,
You have a wonderful site. Thanks for all the hard work and sharing it with others. I intend to share it with others that I know as well.
10/16/99 06:51:23
Name: Jewels | My URL: Visit Me | My Email: Email Me | Date of Visit:: 10/16/99 |
Do You or Someone You Know Have Lupus?: yes | If so, would you please fill out the Lupus Survey?: yes | Your Favorite Hobby:: My puter | Your Favorite Room In My House:: My puter room |
How Did You Find Me?: surfing | Can I Expect You To Return?: yes |
Comments:
Very nice page.And please keep up the great work.Educating those that don't know and helping those that do, is a great gift.
10/15/99 21:03:19
Name: Debbi MacPherson | My URL: Visit Me | My Email: Email Me |
Date of Visit:: October 15, 1999 | Do You or Someone You Know Have Lupus?: Yes | If so, would you please fill out the Lupus Survey?: Yes |
Your Favorite Hobby:: Gardening | Your Favorite Room In My House:: Haven't explored it all yet | How Did You Find Me?: search engine on the internet |
Comments:
I am a 43 year old woman that has lupus. I have found your site to be very informative and interesting. I would like to express my experiences with lupus since I was diagnosed and was wondering how I could tell my story on your site. Would you please a
vise me how I can tell my story & maybe give someone my personal experiences with lupus. I would appreciate this immensely as I find it helps to hear other people talk about their experiences.
Thank you for your consideration to my request.
Debbi MacPherson
E-Mail-trent97@telusplanet.net
10/12/99 05:00:36
Name: Suzanne Paul | My URL: Visit Me | My Email: Email Me | Date of Visit:: 10-11-99 |
Do You or Someone You Know Have Lupus?: I Do | If so, would you please fill out the Lupus Survey?: yes | Your Favorite Hobby:: reading | Your Favorite Room In My House:: stories |
How Did You Find Me?: surfing | Can I Expect You To Return?: yes |
Comments:
I find it very helpful to read what other people
are going through and that I'm not loony about
what is happening to my body . I have had to
change my whole lifestyle and this is very sad
to me I've gone from being a full time casino
bartender to someone unable to even hold a job.
I love people and function very well being
around people all the time; now I can't be
around people because of all the drugs I take
because I could become ill. So I try to go
one day at a time and try to stay alive.
10/10/99 10:29:16
Name: adam | My URL: Visit Me | Date of Visit:: 10/10/'99 |
Your Favorite Hobby:: painting | Your Favorite Room In My House:: I donno. every thing is cool. | How Did You Find Me?: found it by my self |
Can I Expect You To Return?: yes |
Comments:
varah fakkaa
10/01/99 05:54:59
Name: Cheryl Lamon | My URL: Visit Me | My Email: Email Me | Date of Visit:: a long time ago LOL |
Do You or Someone You Know Have Lupus?: me/maybe | If so, would you please fill out the Lupus Survey?: yes | Your Favorite Hobby:: painting | Your Favorite Room In My House:: not yet still trying to find some with my exact symptoms |
How Did You Find Me?: surfing | Can I Expect You To Return?: SURE LOL and me to email you too lol I promise I wasn't trying to discredit you that ONE time ROFL |
Comments:
09/21/99 04:00:21
Name: Orinda | My URL: Visit Me | My Email: Email Me | Date of Visit:: 9-20-99 |
Do You or Someone You Know Have Lupus?: yes | If so, would you please fill out the Lupus Survey?: yes | Your Favorite Hobby:: Webtv | Your Favorite Room In My House:: all |
How Did You Find Me?: From Marcia's | Can I Expect You To Return?: yes |
Comments:
This is such a good site that I will be back over and over. God bless!
09/20/99 00:15:10
Name: Lynne | My URL: Visit Me | My Email: Email Me | Date of Visit:: 9/19/99 |
Do You or Someone You Know Have Lupus?: yes | If so, would you please fill out the Lupus Survey?: yes | Your Favorite Hobby:: crafts | Your Favorite Room In My House:: living room |
How Did You Find Me?: search | Can I Expect You To Return?: i don't know |
Comments:
This is a very informative site. I just found out that a friend of mine was diagnosed with lupus. The Dr's didnt know what it was. They thought Lukemia and Diabities, but then said lupus. She is 26 yrs old, married just 2 years and her husband is in the s
rvice stationed in Korea.He comes home in Nov and then they move to Colorado. She already has seen a Dr. there for a 2nd opinion and they agree. She is the 1st person I have known with this desease. It has effected her organs so far. I want to be as supp
rtive as possible. What can I do?
09/19/99 21:09:30
Name: Linda | My URL: Visit Me | My Email: Email Me | Date of Visit:: 09-19-99 |
Do You or Someone You Know Have Lupus?: Yes | If so, would you please fill out the Lupus Survey?: Yes | Your Favorite Hobby:: crafting | Your Favorite Room In My House:: all of them |
How Did You Find Me?: another lupus site | Can I Expect You To Return?: Yes |
Comments:
This is the best site I've ever been in. So much to see, will return often.
Thank you Issy Missy
09/15/99 18:51:00
Name: Cory Yara | My URL: Visit Me | My Email: Email Me | Date of Visit:: 9/14/1999 |
Do You or Someone You Know Have Lupus?: Yes | If so, would you please fill out the Lupus Survey?: Not at this time | Your Favorite Hobby:: Music and Computers | Your Favorite Room In My House:: My Music/Office |
How Did You Find Me?: Other Lupus page | Can I Expect You To Return?: Yes |
Comments:
09/15/99 15:11:58
Name: susie henry | My URL: Visit Me |
My Email: Email Me | Date of Visit:: sept. 15th, 1999 |
Do You or Someone You Know Have Lupus?: yes |
Comments:
09/12/99 04:42:12
Name: Diane | My URL: Visit Me | My Email: Email Me |
Date of Visit:: 9/11/99 | Do You or Someone You Know Have Lupus?: I Do | If so, would you please fill out the Lupus Survey?: yes |
Your Favorite Hobby:: reading | How Did You Find Me?: Discoid Lupus Search | Can I Expect You To Return?: Yes |
Comments:
I am very touched by this site and I realize and am grateful that my systems are very very slight compared to what I have read here. The stories made me cry and even though I have discoid lupus and fibromyalgia it is not nearly as bad as what I've read h
re. My heart goes out to each and every one of these people who suffer from Lupus and their secondaries and as I've noticed even more than 2 other affecting illnesses. i will not complain again.
09/05/99 19:38:19
Name: Armando Bianchi | My URL: Visit Me | My Email: Email Me |
Date of Visit:: 9/5/99 | Do You or Someone You Know Have Lupus?: Cynthia | Your Favorite Hobby:: God |
Your Favorite Room In My House:: Bedroom | How Did You Find Me?: A friend sent me the page | Can I Expect You To Return?: Yes |
Comments:
I hope and pray that this pages will touch someone
out there and see that we can love another person
no matter what medical condition he or she had and like Cynthia got a heart of gold and the love of God inside...God bless you...Armando
09/05/99 04:24:23
Name: HASAN | My URL: Visit Me | My Email: Email Me |
Date of Visit:: 5th of september 1999 | Do You or Someone You Know Have Lupus?: My wife | Your Favorite Hobby:: Travel |
Your Favorite Room In My House:: Stories | How Did You Find Me?: msn | Can I Expect You To Return?: sure |
Comments:
great
08/27/99 23:13:28
Name: Dori Bernstein | My URL: Visit Me | My Email: Email Me | Date of Visit:: 8/27/99 |
Do You or Someone You Know Have Lupus?: yes, i do | If so, would you please fill out the Lupus Survey?: ok | Your Favorite Hobby:: reading | Your Favorite Room In My House:: I just got here |
How Did You Find Me?: hamline link | Can I Expect You To Return?: maybe |
Comments:
08/27/99 01:50:12
Name: Joanne | My URL: Visit Me | My Email: Email Me | Date of Visit:: 8/26/99 |
Do You or Someone You Know Have Lupus?: I do | If so, would you please fill out the Lupus Survey?: sure | Your Favorite Hobby:: dogs | Your Favorite Room In My House:: still looking |
How Did You Find Me?: browsing on line | Can I Expect You To Return?: definitely! |
Comments:
This is very creative. I'm always looking for info. and support. Great job. thank-you.
08/26/99 16:56:03
Name: Anthea Jones | My URL: Visit Me | My Email: Email Me | Date of Visit:: August 26, 1999 |
Do You or Someone You Know Have Lupus?: Yes | If so, would you please fill out the Lupus Survey?: Yes | Your Favorite Hobby:: Reading | Your Favorite Room In My House:: I haven't visited all the rooms as yet |
How Did You Find Me?: Searching for information on MS | Can I Expect You To Return?: Definitely |
Comments:
I must congratulate you on the design of your web page and I find it to be one of the most informative sites that I have visited. I was diagnosed with Lupus in 1996 and that is an experience that I would not wish on my worse enemy. All I remember is the
pain. I was hospitalized for about 3 weeks and it was during my hospital stay that I was diagnosed. So far, from what I have read, I seem to have gotten off quite lightly - I have not been on any medication since November 1997 (thank God) - I have got a
lot of prayers going my way and I will be praying for you as well.
08/25/99 22:32:01
Name: Dr. Robert W. Moore | My URL: Visit Me |
My Email: Email Me | Date of Visit:: 8-25-99 |
Do You or Someone You Know Have Lupus?: yes |
Comments:
thank you!
08/20/99 00:52:03
Name: Sheri | My URL: Visit Me | My Email: Email Me |
Date of Visit:: 8/19/99 | Do You or Someone You Know Have Lupus?: self | If so, would you please fill out the Lupus Survey?: done |
How Did You Find Me?: wondering | Can I Expect You To Return?: yes |
Comments:
i have been enjoying your site
08/19/99 07:00:04
Name:Julie Panozzo | My URL: Visit Me | My Email: Email Me |
Date of Visit:: 8/18/99 | Do You or Someone You Know Have Lupus?: yes | If so, would you please fill out the Lupus Survey?: yes |
Your Favorite Hobby:: photo albums | How Did You Find Me?: browsing | Can I Expect You To Return?: yes |
Comments:
Thank you so much for taking the time to put this web site together. I belive that I have lupus nephritis...the diagnosis is a difficult process. I have had most of the symptoms of lupus throughout my life. I am 30 years old. My mom, her only sister,
nd their mother (my grandmother) all have lupus. My antibody profile came back negative; but i am convinced. I have had blood in my urine for a week with no pain. I also had toxemia, low platelets and kidney failure in my pregnancy. Anyway, I have been se
rching for 5 days for answers. Your site has been very helpful. Thank you again.
God bless,
Julie