Pseudo Tumor Cerebri


Pseudo Tumor Cerebri. Also known as PTC, Benign Intracranial Hypertension, and Ideopathic Intracranial Hypertension. PTC is an elavation of cerebro-spinal fluid that causes pressure in the skull. Pressure is often put on the optic nerve causing double vision, as in my case. Other effects of this condition range from nausea, dizzyness, headache, loss of vision, menstrual irregularities, and short term memory loss. Tinnitus, intracranial noises or "whooshing" in the ear, is also common in those with PTC. In a vast majority of cases, PTC has no known cause. Lupus and some birth control, such as Depo-Provera, have been known to elevate pressure. Other medications can also cause a rise in fluids. Treatment can include spinal taps, shunts, and medication. People suffering from this condition must educate themselves, due to the lack of knowledge by the medical profession in general. Active participation in treatment is beneficial. There is no known cure.

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If you suffer from PTC, e-mail me and I will help you join our online support group.

© 1997 freedombrd@aol.com

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1) How old are you?

Under 18 years old
Between 19 and 24 years old
Between 25 and 34 years old
Between 35 and 44 years old
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2) Do you have menstrual irregularities?

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3) How often do you experience headaches?

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4) What time of day do you notice symptoms to be at their worst?

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5) How would you describe the medical care you have recieved with PTC?

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6) Are you male or female?

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7) Do you experience Tinnitus (whooshing in the ear)?

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8) Are you overweight?

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9) At what age where you first diagnosed with PTC?

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10) Where you taking birth control when your symptoms first appeared?

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11) Have you ever been diagnosed with a Vitamin A deficiency?

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12) Have you ever been diagnosed with Lupus?

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13) What type of diuretic have you been prescribed?(choose the most current)

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14) Was your medication successful?

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15) How many spinal taps have you undergone?

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16) Have you recieved a shunt?

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17) If so, was it successful?

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18) Have you been diagnosed with sleep apnea?

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19) Have you had the ONSF surgery?

Yes
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20) If you have had the ONSF, was it successful?

Yes
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21) Have you ever been diagnosed with Empty Sella Syndrome?

Yes
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22) Have you been diagnosed with Arnold Chiari Malformation?

Yes
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23) Have you been able to continue working?

Yes
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