Share your story, your thoughts, or tell us how you live with Multiple Sclerosis. There are so many things each of us learned the hard way. Sharing really helps smooth the road and eases our journey ... |
11/16/01
Name: Suzanne Sesbreno | ||
From: Sudbury/Ontario/Canada | Age at Onset: I believe when I was teen | |
Presenting Symptoms: Memory loss, Pain | Worst Symptom: Pain | Best Treatment: can't think of one |
Comments: When will this all end - not being able to do as you one did - not that long ago. I am 42, will it get worse than what I have, right now? I am using a cane for stability, I have 2 boys and a wonderful husband, and I used to have a wonderful job which I love. |
10/15/01
Name: Mrshumm | ||
From: Wash | Age at Onset: ? | |
Presenting Symptoms: A lot | Worst Symptom: Totaly spaced out |
Best Treatment: Doc says isn't any |
Comments: This for my spouse, he has been diagnosed-sort of, MRI looks like swiss cheese. Doc says it's advanced, help. |
9/30/01
Name: Beck | ||
From: AL | Age at Onset: 29 | |
Presenting Symptoms: Dizziness, Double Vision | Worst Symptom: Lose of balance | Best Treatment: |
9/11/01
Name: Dona | ||
From: Michigan | Age at Onset: 16 | |
Presenting Symptoms: Damage to my Brain and Spine, became paralized for 10 days took Steroids | Worst Symptom: Not being able to move | Best Treatment: Nothing |
Comments: I wish this wasn't happening to me, I wake up everyday wondering why this is happening to me. What did I do to deserve this? I sometimes wish I just wasn't on this Earth, I can't stand to think someday I won't be able to move on my own and that I'll need assistance. Living life scares me but death does not. |
9/10/01
Name: Bonnie | ||
From: Florida | Age at Onset: 23 dx @35 | |
Presenting Symptoms: Bladder spasms | Worst Symptom: Cognitive Impairment, Numbness | Best Treatment: Steroids |
Comments: This darn disease has taken so much from me, but I still control my fate. I know I can't conquer it, but I can still find ways to get around it. I will continue to live my life and try to be as "normal" as possible. Thank God I've got a wonderful husband. |
9/08/01
Name: McFox | ||
From: Scotland | Age at Onset: 15 first I can recall | |
Presenting Symptoms: I try to present them nicely | Worst Symptom: Doctors | Best Treatment: Not going to doctors |
Comments: Awsome site ... how do you do that little gizmo with the music? I'm building a site myself and would like to play Basket Case by Green Day in honour of the medical merry-go-round. You can catch me on my message board too ... url is ... sorry, forgotten. |
8/27/01
Name: Hassan | ||
From: 23rd/June/1999 | Age at Onset: 22 | |
Presenting Symptoms: Shivering in my left hand & arm, fatigue | Worst Symptom: | Best Treatment: Interferon and good spirit |
8/04/01
Name: Leonard Taylor | ||
From: Arizona | Age at Onset: 38, or earlier... | |
Presenting Symptoms: Fatigue, weak left arm and leg, tingling left foot... | Worst Symptom: Fatigue | Best Treatment: Being cool |
Comments: Just diagnosed as 'Probable. ' Looking to learn more, and have found a great place to do so, here! |
7/31/01
Name: Cindy Cleland | From: Chico, California |
Comments: I am only suspicious that the six week episode I endured, which was very similar in the variety of wierd symptoms of an attack five years ago, may be diagnosed as MS. |
7/26/01
Name: Beth | ||
From: Mississippi | Age at Onset: 39 | |
Presenting Symptoms: Dizziness | Worst Symptom: Not having control |
Best Treatment: Sleep |
Comments: Well I was just diagnosed in 3/2001. I am scared I went through the why me already, the feeling I would be better off dead has not quite left yet. As I just spent five days in the hospital terribly ill. I just don't know how to feel yet, except take each day one day at a time. |
7/20/01
Name: Ivonne | ||
From: Germany | Age at Onset: 37 | |
Presenting Symptoms: Almost none | Worst Symptom: Paralyzed eye once |
Best Treatment: Qi Gong |
Comments: On my HP you can find my MS-story and information about Qi Gong + Psychosomatics which have helped me to recover from 5 attacks from 1993-1995! |
7/16/01
Name: Stephen Phillips | ||
From: American Fork, Utah | Age at Onset: 15 | |
Presenting Symptoms: Right side numbness and weakness | Worst Symptom: Right leg dragging beside me | Best Treatment: New technology that I started April 2001 |
Comments: I am 26 years old now and doing extremely well. In fact since the start of my new expermental treatment I have lost all signs of complications of M.S. No more limp, no more numbness, no more wierd symptoms, and best of all no more fatigue. |
7/12/01
Name: Ivonne | ||
From: Germany | Age at Onset: 37 | |
Presenting Symptoms: Rest numbness here and there, basically none | Worst Symptom: Back then: Eye paralyzed, not recognizing people | Best Treatment: Qi Gong |
Comments: I have had 5 MS - attacks from 1993-1995. During that time I started different kinds of relaxation and meditation and finally started with Qi Gong. That was Easter 1995 and I have had no more attacks since then. I also read books about the power of mind. |
7/15/01
Name: Tina | ||
From: London, England | Age at Onset: 34 | |
Presenting Symptoms: Optic Neuritis | Worst Symptom: Total Paralysis |
Best Treatment: Still Looking |
Comments: This is the most informative site I've come across. I have spent hours exploring the various links & reading through your guestbook - its always nice to know there is someone else out there with the same problems. |
7/06/01
Name: Tracy | ||
From: Kent UK | Age at Onset: 24 | |
Presenting Symptoms: Numbness, Fatigue, Moody, Stroke like feeling | Worst Symptom: Numbness | Best Treatment: Neurofen plus |
Comments: Worst Symptom : I have not tried prescribed drugs yet, but I will if it gets worse. I often feel sick too, we must keep going and have a quality of life. |
7/06/01
Name: Sunil | ||
From: India | Age at Onset: 32 | |
Presenting Symptoms: Numbness of right hand finger tips, Tremor, Gait problem | Worst Symptom: | Best Treatment: 3 doses of Steriod in 1996, Baclefon |
Comments: Presently no medicine only multivitamin, tried Ayurveda, presently trying Homeopathy wait for results if any. |
7/01/01
Name: Tracy | ||
From: Kent, UK | Age at Onset: 24 | |
Presenting Symptoms: Numbness, fatigue, moody, stroke like feeling | Worst Symptom: Numbness | Best Treatment: Neurofen plus |
Comments: I have not tried prescribed drugs yet but I will if it gets worse. I often feel sick too, we must keep going and have a quality of life. |