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I am 30 years old, married with a yellow lab 5 and a cat that thinks the dog is his mother. I've probably had endo for a lot longer than I've been diagnosed with it. I've had pain for so long I don't really remember when it started. It was "all in my head" according to friends and family...midol will resolve that. Well, one midol lead to numerous midol, that still left me in pain and of course now very sick to my stomach. After a few years of not being able to conceive I finally got to see a gynacologist. Sure enough its endo. and not mild...severe. After a year of laprascopies and specialists it's been confirmed - no children for me unless invitro fertilization works. We'll find out as I'm currently going through my first cycle.

I've taken Chlomid, Lupron depot and now lupron daily injections. I'm having a difficult time emotionally with all of this and would love to talk with anyone who's been down the same road. Part I'm sure is due to side effects of the medication ?!?!

I have two e-mail addresses levi@execulink.com and lisaw@ocl.net. The first is home...sometimes I don't get a chance to check often enough and the second is my work...if I can't read it there I can forward it home and make time to check it !!

Hi there! I am 27, I live with my fiance Ross and my doggy Sasha! I work as a florist and I also sell crafts from home. I love crafting, reading, bubble baths, spending time planning my wedding, walks, and spending time with family and friends! Oh, I also love this new endo site I've stumbled upon!

I found out about my endo on Jan.8 1998, during a lapo to figure out why I've been in so much pain. They found an extensive amount and cauterized it. Since then I have been to the hospital 3 times running tests because the pain has been so intense. Turns out my left kidney is inflammed as well as parts of my abdomen. I hurt, I'm nauseous, and I would really like to get back to work. The whole reality of my situation and what I have to live with for the rest of my life is just sinking in!

I would just like to know that there are people who understand and can empathize with my feelings without judging me. It's so easy for people to make comments when they have never walked in your shoes! I'd love to have people I could turn to as well as have people lean on me, I make a great listner!

I just want to say that this is a wonderful site it's so comforting to know we can all help each other!

I am 33yrs old and married. No kids other than the stray birds, dogs, and other assorted creatures that find their way into my home. It is a good thing my husband has a sense of humour about this wildlife rehabing stuff, I do too until I meet my nemsis-bats.

The outdoors is where I feel the best. I seize every opportunity to get out there, and have seen some wonderful things that can only be described as "soul food". Hiking, birding, wildlife viewing, and art are passions.

Endo, smendo I speeeet on it. Okay, I feel better. I was diagnosed 3 years ago. The usual feeling of coping with what I thought was normal periods. I had been put on the pill when I was 14 to help me out so the slog began.

I had the Lap done in April of '95. the gyn spent a whopping .5hrs workiing on me. That should have been my clue that I was in big trouble. Endo in the Cul-de-sac, thick adhesions on pelvic side wall, reduced mobility of right ovary and the uterosacral ligaments. I had this surgery two weeks before I had to head out into the bush. It was physically demanding work and this gyn assured me I could do it if I took a couple of days off and no heavy lifting. To make a looooong story short, the pain was back in three weeks and I was having difficulty walking. I had to quit my job early that year. I went to gyn who had done lap to tell her, a HER (I felt so betrayed by a sister so to speak) her solution was synarel and to cope with the pain. So off I went to gyn #2, decided that I would just remove "the problem" via hysti. When push came to shove I realized I was still attached to my uterus etc., and couldn't bear to part yet until I had absolutley tried everything. With my husband and my sister by my side and my butt flashing in the breeze, I refused surgery on the same day I was scheduled and I have not been involved with the allopathic medical community since. I am a nut and berry type so I have really concentrated on alternative medicine with positive results, much slower but positive.

As you can tell I would love to talk with other people to share thoughts, encouragement and to vent with someone who has walked that same mile.

I will be married in May of '98. My finace is very understanding and helpful. No children. Like to read, watch movies/TV. Like Tori Amos, James Taylor. Like watching Wonder Years on Nick at Nite. Like Seinfeld.

I've had 3 laparoscopies and 1 laparotomy. I am sick of doctors. I use alternative medicine techniques very successfully now. I would like to avoid further surgeries. I have had 9 kidney stones. I have had 3 gout attacks. I am 29 years old. I am sick of being sick.

I just enjoy talking to others like me. Enjoy helping others. I think I have lots of information to share. Hopefully, I can learn some new things too!

I am an artist. I work as a graphic artist to make a living. I am 25 and I have been married almost two years. We have no children but we're trying. I enjoy anything art related. I also enjoy the great outdoors, and spending time with my husband.

I had my lap in June 97. So far the procedure has helped to take away my daily physical pain, however, my periods are becoming increasingly worse. And my husband and I have still not been able to conceive. I have always handled the physical pain of this disease well, but the emotional pain has pushed both my husband and I to the edge of insanity. I have read so many stories about the physical pain, and I feel for each and every woman going through it. I would like to hear from women who are having a tough time dealing with the emotional aspects of this disease. I am also interested in talking to women who are trying to conceive or who have successfully conceived.

Special issues/concerns: emotional pain & infertility

Very happily married. One son, age 6 (going on 13!). Planning a move in the summer. Very content w/ life except for my endo!!

I'm facing another lap unless I can find a way to stop my now 5 mm nodule from growing. It's behind my uterus, growing approx. 1 mm per month. My next route is Chinese herbs. I'd love any info on this!

Any information on alternative medications, specifically Chinese herbs.

I am 38 yrs. old. Married 16 years, have 2 girls ages 9 and 12, a dog.....love to read, travel and collect beanie babies!

I have had endo since i was a teenager, but didn't know it until this August 1997! Had many ailments and surgeries, but was always told it was something else. Now I had a radical hysterectomy due to severe endo, and am recovering from it. Had the surgery December '97. The Dr. does a lot of research on endo. and infertility. I chose him becasue of his experience and compassion for the pain and sufferring I endured. I still am experiencing some slight pain,and have many, many surgical menopause symptoms.

Special issues/concerns: Estrogen Replacement after hysterectomy......recurrence of endo. after hysterectomy....a CURE found!

Engaged to be married in March of 1998.

Hobbies: Showing AKC registered Rhodesian Ridgebacks. I love my dogs immensely - they are very good therapy with their unconditional love.

I was suffering from Endo since I was 18 years old (Now 27). I was so immune from taking so many pain killers from my doctor, that when I had the surgery, NO pain pills would work - NONE. It was very scary and very painful. I finally changed doctors after I realized my first doctor was only interested in cutting me open as much as she could. I am quite happy with my new DR. and He is a man. He does not believe in the word Hysterectomy....He put me on the Depo Lupron shot for 6 months - it worked very well, but OH! what a strange and emotional experience. I stopped the shot a month ago and when they tell you it shuts down your system - they mean it... talk about feeling like Half of a Woman! It has been very trying on my personal life with my fiance. It is very hard for him to understand the pain - but I know he is trying his best to be supportive. Sometimes, I feel very unsure of the future and what it holds for me or "us".

Not only is Endo physically painful, but it is emotionally painful as well. Sometimes I feel like I should be alone, that my fiance should not have to put up with this "Problem". And part of me wants to be selfish and say, "Hey, I need to worry about ME". The Depo Lupron shot was emotionally draining too. Sometimes I feel like I am on an Endo rollercoster and I never know what to expect next. How do you cope with it? At times i feel strong, but other times I feel so weak. HELP!

Married to a wonderfully loving and caring man, who gives me a hug when I need, and a nudge when I need it. We have 4 boys 13, 11, 9, 8. The computer is a hobby of mine, I use it to keep my mind off the pain; sometimes it works, sometimes not. I don't get out a lot because of the pain I have not only pain from the endo, but arthritis in my back from 2 surgeries.

I found out about 3 years ago I had endo after many years of suffering. I've have one "lap" and I know I'm heading for another one in the near future. Things are getting really bad again.

The worst parts of having endo to me are the things you miss out on because of it and the fact that there are still some doctors who think this is all in our heads. I get so mad when I hear it's natural for us to hurt and feel bad, or it can't be all that bad, you just have to learn to cope. They don't understand how you and your family suffer.

I am originally from Chicago and moved to Arizona to go to ASU. I finished and have decided to stay here to live. I collect cat stamps and have two cats who are my babies. I like running and hiking(when I get a chance) I am very close to my family, one older brother, one younger, and my parents. I enjoy hiking and running and also laying around.

I was diagnosed with stage II endo in September of 1996 after going to the hospital for abdominal pain. I was found to have adhesions to the bowel and my left ovary and Fallopian tube were attached to it. I was on Lupron for six months and had horrible side effects. Headaches, depression, mood swings, and hot flashes. All were somewhat debilitating except the hot flashes. I had my second lap in May 1997. A lot of my endo had stopped growing but I still had adhesions of the bowel. Because the surgery to correct this is so involved the doctor decided not to do it. I would need to be hospitalized and we were not in a situation to do that. It is now January 1998, and my pains have returned after a somewhat pain free 6 months. I am having problems with my bowels and shooting cramps if I sit for too long. I am on birth control pills and they do reduce pain during periods but doesn't help much of the rest.

I would like more information regarding bowel problems. Also if anyone has found any ways of reducing pain instead of medications.

I am 28 years old, had endo surgically diagnosed 3.5 years ago. I have a 13 year old boy, who I had when I was 15. I have been married to his father for 13 years and we live a very happy life. (aside from the endo and dealing with a teenager) We have two dogs, who think and might as well be our other children. I feel very lucky that we have "made it" as a family. It would have been very easy to "not have the baby" when I was 15, only to find out 13 years later that I had endo and am infertile. Ironic how things work sometimes.

I did not have pain until 2 years ago. First surgery helped the pain, the second surgery did nothing for the pain. Recent doc visit has determined that the endo had grown into the muscle of the utereus....causing considerably more pain. Endo is on bladder and explains all the years of bladder problems. Husband is very understanding and loving...thank goodness. I have decided to try the combined Lupron/Danocrine treatment. I will start it this month.

I have an identical twin sister who shows no symptoms. I have volunteered for studies. I would think we could be a "test bed".

I've suffered too long already. I've also been told that it looks like I have Adenomyosis. I'm scheduled for a Hysterectomy on 2/5/98.

Any input, information, suggestions would be greatly appreciated. I can't live with this any more. I work full-time & it's effecting my job. I miss too much work! It's effecting my family life. I spend too much time in bed in pain!

Engaged, desparate for my own family, into bike riding

Diagnosed three years ago, two laparoscopies, two laparotomies, 3 miscarriages - the most recent two days before xmas, we lost twins at 12 weeks. I'm having real trouble dealing with things on an emotional level at the moment, and are not looking forward to the next specialist visit. I have been trying for 9 years to have a family. The light at the end of my tunnel is slowly going out.

Would just like someone to talk to.

Married, no children. I am a potter and crafter and I show dogs. I was diagnosised with severe endo 2 years ago.

I'm a stay at home mom of two. A 4 1/2 year old boy and a 1 1/2 year old girl :o) I enjoy doing creative memories scrapbooking, walking, reading and spending time with family and friends.

I was told last month that I MAY have endo because of my symptoms, periods that became long and heavy and I have pelvic pain all the time, everyday. My GYN put me on BCP and a pain killer (that doesn't seem to help at all) He says that if the BCP doesn't help that it may be something else- something he can't help me with and that I'll have to see an Internal medicine Dr. But from what I read on the forum, it sounds to me like endo. I think I'll try a few other doctors and get thier opinions.

I was wondering if any one else suffers from leg aches-cramps, full time pelvic pain and/or fatigue?

I am married and have two kids, and am trying for my third

I have had pain during a period since I was about 14 (am now 29) I would get severe cramps in my side and headaches, and as I got older my symptoms got worse and I would get them even when I wasn't having a period. It is only really from reading all the pages on the web that I am finally understanding all the "other" problems I have experienced over the years are due to Endo. I have had lots of kidney infections but the doctor doesn't know why. I have had pains in my sides for years, tiredness, depression, headaches, sleep problems and aching joints, backache...etc, etc....I could go on for hours. I have had two miscarriages that I am now wondering whether that could be due to Endo, and I had problems in both my pregnancies before that, with severe pains in my sides that doctors told me were just the baby moving!

I could go on and on, but if I haven't bored you already I would eventually! The most important thing I have found from finding these web pages is that perhaps my husband could try and read some of the information I have found and he will finally understand what I have tried explaining to him for years!

Is there any help in England? Has anyone heard about the new coil which is meant to help Endo....?

Im from a family of 2 brothers and 3 sisters. I have no children. Hobbies include most sports, gardening, a good movie, and traveling when I can.

I was diagnosed with Endo about 4 yrs ago, and have had several laparoscopies, as well as an ovary removed last year. Diognoses was comfirmed through surgery for fiboid growths on both ovarys. I'm currently waiting to have a complete hysterectomy and possible bowel resection at the age of 35. Special issues: Any info on endo after complete Hysterectomy. Info on the bowel and endo. Info on alternative medicene for treatment of endo

I have three sons, I'm divorced and live with my boyfriend. I like surfing the net (and "ain't I glad", I found you!) reading, walking, swimming, boardgames, talking. I've worked in a women's health centre and there I found a lot of support too. We had a supportgroup for endometriosis, that also turned out to be an eyeopener for me.

It started almost right away when I started my periods at 12 years old. When I was 15 yrs. old the gynecologist prescribed a whole lot of hormonal therapies. One after another. They made me very depressed and I was totally out of touch with myself. Developed anxieties I never had before, etc. No one told me these were the side-effects of the drugs I took. Years later I found out that he prescribed a drug that was only to be given to women in their 50's and 60's after the change. I have had 5 miscarriages, nobody knows if that is because of those drugs. Now I have three boys, my endo quieted down after each pregnancy. Now it is getting worse again. You'll never know where it will end.

I had a hard time dealing with the fact that my mother was totally non supportive. She always said and says: "menstruation is something normal, that all women go through. Don't make a fuss." etc. I always felt terrible about myself, thinking I had to be tougher. When I gave birth I experienced how tough I had always been, enduring the pains before, they prepaired me for childbirth. The doctor (a man) told me the pains would be more worse then menstrual pains.. well as it turned out they were not, and these ones only took eight hours, not two weeks. How do you enlighten your mother?