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I am 22, married for two years, I like to work on crafts, golf with my husband, love to shop. i collect precious moments.

I've been having pains since I was about 17. After changing doctors and having a laparoscopy, they discovered I have endo. This was just discovered in 1997.

I'm basically interested in finding out more about these drugs they want to put me on. Danazol, I think is how you say it. I also have the endo on my sigmoid colon, which really scares me, but the doctors seem to not want to discuss that.

I live in London with my parents, 18 year old brother, grandmother and aunt. I am going to uni in september to study physical sciences. I work in an investment bank.

I had awful painful heavy periods all my life. I'm 20 now and was diagnosed on 23rd March 98. No one ever took my pains seriously and said the pain, blood and short cycles were signs that I was 'healthy' and would never have any trouble with having babies - How ironic !! I only have stage 1 endo thank God. But the pain is there so often and at times it's SO bad. My Dr is putting me on continuous BCP's and I want to see another specialist and sort out a Naturopath/herbalist I can trust.

I'm really interested in the endo-yeast connection. I'm still trying to figure out how to cope.

I have been married for 8 years and have 3 children ages 7, 4, and 3 years. I am a stay at home mom and I do home health 1 day a week. We just got a computer and I am very excited about finding more about everything on endo. I love to read and have read everything I could get my hands on about the dianosis.

After I had my third child 3 years ago, I started noticing that my periods were getting more heavy and painful. I told my gynecologist about this and he stated I just suffered from painful peiods and put me on a different birth control pill. Well, this started a long battle with migraines which I had never had before. I suffered for 6 months trying many different pills and the migraines were increasingly getting worse to where I now was vomiting with them.

I finally went off of them on my own and decided to give my body a rest, and that's when I noticed some of the classic signs of endo. Pain with ovulating, severe moodiness the week before my period, with tiredness along with bouts of constipation and diarrhea. The first day of my period I had trouble getting out of bed, intense pressure in my uterus, cramping, lightheadedness, and heavy flow which would gradually get better by the third day.

After 6 months of suffering, I started getting what the Dr's were calling ovarian cysts, although they could not feel them and they did not show up on an ultasound. I was put on Depo provera to help control my symptoms and stop my periods. I did not respond well at all to the side effects. I was very tired all of the time, very moody, and gained 20lbs. During this time I started getting a pain on my rt side which my Dr said was probaly an ovarian cyst and he kept telling me to take Anaprox for the pain which I had done in the past. Well, the pain proceeded to get worse, taking me to the er on two occasions. During this time, I encountered some of the most uncaring, callus Dr's I had ever met and unfortunately they were my own. When I had repeatedly complained of pain, telling them it seemed to be getting worse, they told me there was nothing they could do and would not run any other tests or prescribe anything different because they said I would become addicted!

To make a long story short, I ended up having an ulcer from all of the Anaprox I was taking, and had to be on ulcer medicine for a 6 month period. Last June, I was to a female gynocologist which I like a lot better. I have been a challenge to treat because of the ulcer, so I can't take anti-inflamatories, and the migraines prevent me from taking any birthcontrol. I also have a history of cervical dysplasia as well as my mother and grandmother who already had hysterectomies. I started taking Synarel in January under some duress. The dr. has told me this is one of the last meds she knows that I haven't tried, and she even mentioned a hysterectomy if I was up for it.

To make matters worse, my 37 yr old husband was diagnosed a year ago January with bladder cancer, although he is doing well now. We have considered trying to conceive again as an option, but I am very fearful about the future of myself and my husband's health. Unfortunately, I have felt like I have been given a time bomb, and I have felt stressed about making any permanent decisions right now.

If I am able to get pregnant, are pregnancies more painful with endo, and has it helped put any members into remission? Also, I am interested in hearing from anyone who has been on synarel or lupron, and their concerns about the side effects- hot flashes, bone loss. How do you trust your gyno with your future? I like my gyno, personally, but she had never heard of synarel before I brought this up to her. She wanted to prescribe lupron but my insurance co. wouldn't cover it. I'm just scared she's not as experienced as I thought. I would love to hear from people who have had the hyterectomy and the pluses and minuses.

(Interested in) treatment options for endo.

One son: Alexander, who will be 6 on4/20/98. Just moved to Florida from the Chicago, Illinois area.

I was diagnosed with endo at the age of 25, and am now 38 years old. I have had 4 laparoscopies and 1 laparatomy. This also caused me to undergo infertility treatments, and it took 9 years of on and off treatments to get pregnant.

(Interested in) just general conversation.

I have two kids ages are 8-6.
I've been married for 9 years.
I've had a full operation because of Endometriosis.

I had (endo) bad, I was in severe pain with it, and now I am on hormones for the rest of my life.

I want to meet people that have it, and I want to know: once you have it, does it ever go away? Please help me to know more about this.

Hi! well, i love the outdoors, hunt, fish, camping, etc. Also love to cook and experiment with recipes. Have 2 daughters. Outgoing, will try just about anything...

Have had endo for 6 years as diagnosed (undiagnosed, let's add at least another 6 years to that). Have had a total of 6 laps now, each with laser ablation of endo and slow removal of my parts. Had lupron therapy twice, first worked great, second? Let's just say i was a raging hormone out of control!!!! Finally had a lap/vag hyst in December 1997. Since the dr didn't believe i was still having pain (since they all think we just make things up), i have since found an extensive return of endo involving my sigmoid colon, that i'm currently waiting to be scheduled for a bowel resection. I'll add more when i know more. Special issues: Just the caring and sharing environment, to be able to talk with other women who really know and understand how i feel and what i'm going through...

My husband, Rick, and I have our own business, no kids but 4 cats and a dog. My favorite things are animals (domestic and wild), books, movies, music, good wine and dark chocolate. I have a great sister and father but they live on the East Coast so we don't get to see each other enough.

I have probably had endo for years but didn't know it. I have always had terrible cramps with my periods, with some relief from BCP's during the times I've been on those. Cramps have been getting progressively more frequent and much more painful. Only within the last couple of months have I found out about endometriosis and had two different gynecologists tell me they think that's at the root of all my problems.

Just found out from my father TODAY 4/4/98 that my mother had endometriosis!!! My mother died in 1977, and I never thought to discuss my "women's problems" with my father until I told him I was scheduled for surgery. Duh. Talk to your families, everyone, if you haven't already! Am having surgery in 3 weeks to have fibroids removed and probable hysterectomy because of the endo.

It's nice to talk to other women who know how I feel. The collective knowledge and experience is staggering--it's wonderful to have a place to find out what pain meds people take, what surgery is like, what to expect during recovery, etc. etc., from people who have actually been through it.

I am the youngest daughter of 3. I am 18 years old. I enjoy volunteering at the church community center. I enjoy being a firefighter, and attending fire trainings.

At the age 14, I first went to the gynecologist because of pain. I continued going to him for this. 3 days after my 18th birthday I had laparascopic surgery and showed that I had stage III, almost stage IV. They removed over 200 endometriums. I lived in pain for 4 years everyday, now the scar tissue is growing and I'm incurring a new kind of pain.

I would like information on the approximate chance of someone 18 years of age that had a bad stage III endo. an lots of scar tissue to get pregnant?

I was married November 15, 1997.

I had a diagonistic lap. done in Sept of 1997. I started Lupron shots in Dec. 97. I will finish the shots in May. My husband & I are trying to decide if we want to try to get pregnant or if I should go on the pill. I experience mild to moderate pain daily. It becomes more intense after intercourse & lasts for days!

I started on Prempro to help with the Lupron side effects and that has helped a lot. Now I just need to lose all of the weight that I have gained!! Easier said than done!

Enjoy crafts, spending time with friends, candles, and more

I have had endo for many years, when I was in grade school, I can remember going to the girls locker room and bathroom, standing there, bent over holding my abdomen in excruciating pain. In 1991, after having my daughter, when having a cesearean, the surgeon did a biopsy on some tissue, and diagnosed me with endo. Now every day seems to be painful... (Interested in) how to deal with the pain, and how to deal with a husband that is not understanding of this disease, trying to deal with this disease, and having a daughter, age 6, who has diabetes.

Married, one child born 6/22/97
two doggies, and a kitty Endo Experience: Long hard road.....6 years of pain with no explanation but ovarian cysts. One doc says now that I might have microscopic endo....

I am 29 years old. I have been married for about 3 years to a wonderful man named Josh, who is very understanding and supportive. I feel very lucky that I have him and family to help me through this. I love to shop and cook (just learning to cook, we have had very creative and interesting meals)

I was diagnosed with endometriosis abouth 1 1/2 years ago. I have been though the lapro, hormones (lupron) birth control pills, pain pill, and abdominal surgery. My doctor warned me that my surgery might not work but at the time I was too desperate, I was willing to try anything at the time. Was out of work for 2 months. (3 weeks because the hormones were making me a little emotional, actually real emotional and 6 weeks to recover from the surgery)

I felt wonderful after my surgery. About 5 months after my surgery (February) I started to feel that horrible pain again. I tryed to ignore it, but it was definately there, cramps, painful sex, diarrhea, nausea, and emotional. I called my OB/GYN doctor and when she saw me she recommended pregnancy. I know that I am 29 years old, but I feel that I am not ready for a child yet. The more I read about this disease the more scared I get. I am very confussed. I want to do the right thing. There is a doctor I have seen at Davis Medical Center in Davis, California. She has recommended removal of my left ovary since that is where 99% of the pain is located. From what I have read, it is very hard to have children even with both ovaries.

I just want to feel normal again. I don't want to be negative, I am a very happy-go-lucky kind of person. This disease changes my whole personality, I don't want to go anywere, see anyone. It also makes me very depressed, I don't want to be a needy person and I don't want to have to depend on people to take care of me. I would appreciate any information I can get.

What is the percentage rates for people with endometriosis having 1 ovary removed? I am scheduled for a sonogram on April 2nd (in about 2 weeks) after my sonogram I will go in for another laproscopy. If I could get as much information as possible, I would be very greatful.

I am 27 years old, have been happily married for 6 years, and have no children yet, only 3 cats!

I am married with a wonderful three year old son, Drake. I enjoy cooking and gardening.

My mother took DES while she was pregnant with me which caused my endo. I've had one surgery and going to have a second soon to help relieve the pain.

I am 21 years old. I'm pretty much trying to figure out my life. I just quit my 3rd shift factory job and getting my feet wet in the office. My hobbies include music (piano and singing), horses, ferrets, photography, camping and fishing.

I have just been diagnosed with Endo. I am trying to figure out what road I should take with it. I don't know very much about the disease except that there is no cure for it.

I am a house wife, I have been married for 5yrs, I have 1 child that we adopted 2yrs ago. I have had Endo for 10yrs now. I did everything to have a child of my own but it didnt work. But I could not be any happier than I am now. Only one thing is wrong, the pain is coming back.

I have had 9 surg. since I was 19yrs old. I havent had any pain in 2yrs, But now it is back. I now have HMO INSURANCE that will not seen me to a GYN. Thay give me pain pills and told me to live with it. I'm not sure what to do now.