CFSupport

The Northern Virginia
CFS/ME, FMS, and OI
Support Group

 
Speakers - Prior

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PREVIOUS SPEAKERS
Alphabetical Order

Go to Page of Upcoming Speakers Only

Abrams, Esq C Hyde, MD O'Brien, LAc
Ashton, PT 10/94
Cox, DHC Jawer O'Brien, PharmD 2/98
A D Kaplan Offerman, LCSW 8/96
Baer Dale, Esq Khalsa, DC Offutt
Bains, MS, RN, CS-P
De Meirleir, MD PhD Kysela, PT Pecht 2/95
Baraniuk, MD DePorter, CPCC RCC Lambros, Esq Pfeiffer
Bateman, MD Margaret D'Urso 2/94 L Pocinki, MD
B
Epstein, MD 10/93
Levin, PhD 8/93
Rathbone 7/97
Berg, MS Fallon Levin, MD
Reddy, MD
BFLRowe, MD
Bellanti, MD Friedberg, PhD
Levine, MD The Sheridan Group
Bernad, MD Frymark & Park Libiot Simpson, PhD
Billman, Esq Jan 95 Fuller, Esq
Lucas, PhD 7/93 Soliman, MD
Binning, DC Gilbert,  NCCAOM Lukara
Solsberry, LCSW 12/94
Blackman, MD PhD Gollobin, 6/95 M
Stevens, MA
Brosius, MS Glass, Esq Makoul, CNC Trocki & Zipper
Brown NCCAOM Green
Mathis, Esq Walitt, MD
Cheney, MD, PhD
Gribble, PT M
Walker
Chesney, PhD Hall Morell, ND Wallace,md795 1296 398
Clauw, MD Hayat M Whitney, LMFT
CHellingerOWood & Riodan


Since 1993, The Northern Virginia CFS/FMS Support Group has invited speakers on topics including medical and alternative treatment of CFIDS and FM, research, coping, legal issues and more. We often update the contact information below and add links for our guests which include doctors, attorneys, and authors. Unless otherwise noted, lectures were held from before 1992 to March 2005 in room ECC 5 at  INOVA Fairfax Hospital in Falls Church, VA, and since April 2005 at the Mason Governmental Center in Annandale, VA.





PREVIOUS SPEAKERS
In Order of Appearance

April 17, 1993
August 1995
March 15, 1997
Sept 18, 1999

Dallas K. Mathis
Attorney at Law

Topic Applying for Social Security Disability Income Benefits (SSDI)
Address Mathis & Mathis, PC
5328 Lee Highway, Suite 202, Arlington, VA 22207
Phone 703-536-5000; 800-462-8447
Fax 703-536-5050
Email dmathis@mathispc.com 
Web http://www.mathisandmathispc.com
Notes - Recommends video Preparing for Your Social Security Hearing
- On our Practitioners List

Table of Prior Speakers

May 15, 1993

Dee Brown, M. Ac., R. Ac.
Acupuncturist

Topic Acupuncture and CFS
Address Kensington Acupuncture Assoc
3930 Knowles Ave #301, Kensington, Maryland 20895
Phone (301) 949-5570
Fax
Email deebr@toast.net
Web
Notes NCCAOM Acupuncture and Herbology. 5 Element Style, Japanese Needling Technique, Meridian Therapy, Herbal Therapy
- On our Practitioners List

Table of Prior Speakers

May 16, 1993

Byron Hyde, MD
Nightingale Research Foundation

Topic The Clinical and Scientific Basis of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome, Edited by Byron Hyde, MD
Attendees: 105
Address  121 Iona St, Ottawa Ontario  K1Y 3M1   Canada
Phone  
Fax (613) 523-1958
Email nightingale@nightingale.ca
Web http://www.nightingale.ca/
Notes 80 of the world's leading M.E. / CFS authorities contributed to this 725 page encyclopedia. Addressed as Chronic Fatigue Syndrome, Myalgic Encephalomyelitis and Post-Viral Fatigue Syndrome, M.E./CFS has provoked a chronic disabling illness in an estimated 1,000,000 persons. 75 chapters. Comprehensive account of history, epidemiology, children with M.E., investigation, virology, immunology, muscle pathology, host response, food intolerance, brain mapping, neurophysiology, neuro- psychology, psychiatry, sleep dysfunction, fibromyalgia syndrome, treatment and management. 1992. $49.99
- On our Practitioners List


June 19, 1993

Norman Levin, MD
Rheumatology, Internal Medicine, and Chelation Therapy

Topic A Holistic Approach to CFS
Address 39070 John Mosby Hwy (Rt 50), P.O.Box 107, Aldie VA 201050107
Phone 703-327-2434 or 703-260-3484
Fax 703-327-2729
Email
Notes Norman Levin, MD, "Rheumatoid Arthritis and Fibromyalgia," Alternative Medicine Digest (September 1997): 100-105.
- On our Practitioners List


July 17, 1993

Gurutrang Khalsa, DC

Topic Applied Kinesiology and Contact Reflex Analysis
Address 708 Pine St, Herndon VA 20170
Phone (703) 481-9000
Fax
Email
Web
Notes  King Bio Homeopathics



February 1994
April 20, 1996
Sept 20, 1997
Feb 19, 2000
Jan 20, 2001
July 20, 2002
Sept 18, 2004
Nov 19, 2005
Sept 16, 2006
Sept 15, 2007
Sept 20, 2008
July 18, 2009

Mitch Lambros
Attorney at Law
Lambros & Lambros
Specializing in Social Security Disability Benefites

 

Topic Applying for Social Security Disability Benefits (SSDI) when you have Chronic Fatigue Syndrome, Fibromyalgia, or similar conditions.
Address 9900 N. York Road, Cockeysville, MD 21030
Phone 410-666-2200; 800-562-0044
Fax 410-666-0244
Email lambros@lambroslaw.com
Web www.lambroslaw.com 
Notes - CSN Champion Award 2000
- Past President, Maryland Trial Lawyers Association
- Handout1: Myths About Social Security Disability Claims
- Handout2: SSDI Programs &
    Special Issues for CFIDS & FM Sufferers in Proving Disability

- Recommends video Preparing for Your Social Security Hearing
-
On our Practitioners List


Table of Prior Speakers

Nov 1995
Sheraton Premiere
Tysons Corner

Daniel Clauw, MD
Professor of Internal Medicine
  Director, The Chronic Pain and Fatigue Research Center

Topic Current Research in FM/CFS
# of Attendees: greater than 180
Address University of Michigan Health System
Department of Internal Medicine
Division of Rheumatology
Domino's Farms, 24 Frank Lloyd Wright Dr, Rm Lobby M
Ann Arbor, MI 48106-385
Phone (734) 647-5900
Fax (734) 615-5308
Email dclauw@umich.edu
Web http://www.med.umich.edu/painresearch
Notes About Dr. Clauw, leading FM/CFS researcher
2005: A CFS – related proteome in human cerebrospinal fluid
What are Chronic Multi-symptom Illnesses?
Our Advice to Patients
PDFs - Self Management Skills/Techniques
At the time Dr. Clauw addressed our group, he and the Research Center were at Georgetown University Medical Center in Washington, DC.
Study on Nasal Secretions in CFS group members participated in with lead author/group speaker Kris Naranch.
- A CFS – related proteome in human cerebrospinal fluid, Dec 2005
- On our Practitioners List


April 1996

April 18, 1998

Joseph Bellanti, MD
Professor of Internal Medicine
  Director, The Chronic Pain and Fatigue Research Center

Topic NADH and FM/CFS
Address Georgetown University Medical Center.
Phone 202-444-8233
Fax
Email baraniuj@georgetown.edu
Web
Notes  - On our Practitioners List

Table of Prior Speakers

Sept 21, 1996

Sept 15, 2007

James N. Baraniuk, MD
Assistant Professor of Medicine

Topic 2007 - New research for diagnostic marker for CFS at Georgetown
1996 - Allergies and FM/CFS
Address Georgetown University Medical Center. Gl008 Gorman
3800 Reservior Rd Gl008, Washington DC 20007-2113
Phone 202-444-8233
Fax
Email baraniuj@georgetown.edu
Web http://explore.georgetown.edu/people/baraniuj/
Notes Areas of expertise include: neuroimmune regulation of mucosal function in rhinitis, sinusitis, asthma, and CFS
- Article: Evidence for CFS?
- CFS and Overlapping Conditions. CFS Research Review Spr 2004
- Group members participated in 1998 in studies on Nasal Secretions in CFS with author/group speaker Kris Naranch and Dr. Baranuik leading to papers such as : Differences in Baseline Nasal Secretions Between Chronic Fatigue Syndrome (CFS) and Control Subjects
- Neuropathology in Rhinosinusitis, 2005
- A CFS – related proteome in human cerebrospinal fluid, Dec 2005
- Dec 2005 Press Release about above CFS study quoting Baraniuk
- On our Practitioners List

Table of Prior Speakers

Nov 16, '96
Mar 20, '98
Feb 20, '99

Paul H. Levine, MD
Clinical Professor of Medicine and Epidemiology & Biostatistics
George Washington University Medical Center

Topic CFS Research Overview
Address George Washington University School of Public Health & Health Services
2300 I Street N.W., Ross Hall 118;  Washington, D.C. 20037
Phone 202-994-4582
Fax 202-994-9940
Email sphphl@gwumc.edu
Web http://www.medicalcrossfire.com/debate_archive/1999/Sep99/cfssep99.htm
http://www.gwumc.edu/sphhs/faculty/levine_paul.cfm
Notes -Video and audio tapes still available of 1999 Presentation. (4/06)
-Levine & others: Neuromyasthenia and CFS in No. NV/CA: A ten-year follow-up of an outbreak. J Chronic Fatigue Syndrome 2001;9:3-14.


Jan 18, 1997

Nadir Soliman, MD
Anesthesiology, Pain Medicine and Medical Acupuncture

Topic Homeopathy, Pain Management, and Acupuncture.
Address Dir. Washington Alternative Med & Integrated Pain Management Cntr
15001 Shady Grove Road Suite 100, Rockville MD 20850
Phone 301-251-2335
Fax 301-610-5006
Email myalternatives@yahoo.com
Web http://www.alternativemedicineseminars.com/doctors.html
Notes A leading expert in the field of auricular medicine.
- On our Practitioners List


April 19, 1997
Mar 17, 2001
Feb 16, 2002

The Sheridan Group
The Lobbying Firm of the CFIDS Association

Topic How to get our message about CFS to Congress and Federal agencies
Address 1808 Swann Street, NW; Washington, DC 20009
Phone 202-462-7288
Fax 202-483-1964
Email
Web www.sheridangroupdc.com 
Notes Spotlight on Tom Sheridan (Spoke to us in 2001)                                  
Mary Beth Buchholz, spoke in 2001 & 2002, is no longer with group.)
General CFIDS Lobby Days Information
2006 CFIDS Lobby Days Registration Forms (PDF)
CFIDS Community Congressional Activities
Lobby Day 2006 Report from CFIDSLink
Lobby Day 2005 Report from CFIDSLink


Aug 15, 1998
Oct 19, 2002

John T. Cox, DHC
Master Practioner of NLP,  Doctor of Clinical Hypnotherapy
Board Certified Hypnotherapist

Topic Mind body harmony
Address Reston, VA
Phone 703-435-6002
Fax  
Email HypnoDream@aol.com
Web http://geocities.datacellar.net/hypnosis_doc/
Notes  What is NeuroLinguistic Programming? (NLP)
- On our Practitioners List


Oct 1998

Mark Llewellyn Hall
Author, Spoken Word Artist

Topic His book, Dazed and Fatigued in the Toxic 21st Century
Address  
Phone  
Fax  
Email mrkhall@worldnet.att.net  ? out of date ?
Web  
Notes  Book Review by Nat'l FM Association / FM Aware


Nov 21, 1998

Martha Whitney, LMFT
Family and Marriage Therapist

Topic How chronic illness affects relationships.
Address 326 North Royal Ave, Front Royal VA 22630
Phone (540) 631-0999
Fax  
Email mlwhitney@earthlink.net
Web http://www.ivf.com/socendo.html (Endometriosis)
Notes Improving relationships. Relieving anxiety and depression.
Resolving conflicts. Coping with chronic medical conditions. 
Hypnosis and Hakomi, a body-based psychotherap
- On our Practitioners List


Jan 16, 1999

Jayne Gribble, PT
Registered Physical Therapist

Topic Functional Capacity Evaluation
Address NRH/Suburban Regional Rehab
6410 Rockledge Dr., Suite 600, Bethesda, MD 20817
Phone 301-581-8061
Fax 301-581-8031
Email Jayne.F.Gribble@medstar.net
Web NRH Bethesda. (Fibromyalgia program)
Notes NRH Function Capacity Evaluation Info
http://www.ergonetics.com/posture.html
Work Site Evaluations
- On our Practitioners List


April 17, 1999

Lois Pfeiffer

Topic Reiki healing
Address  
Phone 703-561-3558
Fax  
Email  
Web  
Notes  


May 15, 1999
Oct 6, 2001

Leslie O. Simpson, PhD

Topic Red blood cell shape distortion in CFS
Address Red Blood Cell Research Limited
31 Bath Street
Dunedin, New Zealand 9001
Phone 64 3 471 8540
Fax 64 3 471 8530
Email leslie.simpson@xtra.co.nz (updated 2009)
Web http://geocities.datacellar.net/redbloodcellresearch/ 
Notes http://www.dfwcfids.org/simpson/
http://members.aol.com/rgm1/private/simpson.htm
http://www.anapsid.org/cnd/diagnosis/redcells.html
2008 Book: Blood Viscosity Factors - The Missing Dimension in Modern Medicine


Aug 21, 1999

David E. Berg, MS
Director, HEMEX Laboratories, Inc.

Topic Hypercoagulation in CFS;  treament with heparin.
Address HEMEX Laboratories; 2505 West Beryl Ave., Phoenix AZ  85021
Phone 800-999-CLOT (2568);  602-997-9161
Fax 602-997-4489
Email davidberg@hemex.com
Web www.hemex.com
Notes Is CFS/FM due to an undefined Hypercoagulable state....
CFS &/or FM as a variation of Antiphospholipid Antibody Synd. ...


Oct 16, 1999

Nancy Kysela, PT
Director, Physical Therapy Dimensions

Topic Breathing, visualization, & stretching to reduce pain and effects of stress
Address
Phone
Fax  
Email  
Web  
Notes  moved from our area


June 17, 2000

Bill Dale
Attorney at Law

Topic Private / Long Term Disability (LTD) insurance benefits.
Address McChesney & Dale, PC;  4000 Mitchellville Rd, Bowie MD 20716
Phone 301-805-6080
Fax 301-805-6086
Email bill@dalelaw.com
Web www.dalelaw.com
Notes - On our Practitioners List

July 15, 2000

Jacqueline Offutt
Nutritional Supplement Consultant

Topic Nutritional supplements
Address The Virginia Center for Nutraceutical Education and Research
Phone 703-589-1919
Fax 540-882-4082
Email jvoffutt@aol.com
Web  
Notes Ten Commandments for a long and healthy Life! - J. Offutt
- Meeting Notes by member CB
- Royal Body Care Supplements recommended by Offutt


Nov 18, 2000

Sally Fallon
Author; President of Weston A. Price Foundation

Topic Nourishing Traditions: The Cookbook that Challenges
Politically Correct Nutrition and the Diet Dictocrats.
Address The Weston A. Price Foundation
PMB 106-380, 4200 Wisconsin Avenue, NW; Washington, DC 20016
Phone 202-333-HEAL
Fax  
Email info@westonaprice.org
Web www.westonaprice.org
Notes Notes on Price Foundation, Nourishing Traditions, Sally & Geoffrey


Nov 18, 2000

Geoffrey Morell, ND
Treasurer, Weston A Price Foundation, Spiritual Healer & Naturopath

Topic Hands of light (energy) healing
Address 4200 Wisconsin Ave NW; Washington, DC 20016
Phone 202-237-8763
Fax  
Email fourhealing@mac.com
Web  
Notes Notes on Price Foundation, Nourishing Traditions, Sally & Geoffrey
- On our Practitioners List

Feb 17, 2001

Sam Makoul, CNC
Board Certified Clinical Nutritionist

Topic HeartMath & Other Techniques for Stress Relief
Address Center for Advanced Health & Wellness
104 Elden Street Suite 12; Herndon, VA 20170-4825
Phone 703-787-6660;  703-904-1677 (DC metro exchange)
Fax
Email
Web  
Notes Group Meeting Notes About Sam Makoul
Elly's Notes about HeartMath for Stress Reduction
Fibromyalgia, A Metabolic Profile -  Hair Tissue Mineral Analysis
July/Aug 2004 Newsletter by Trace Elements Inc

- On Our Practitioner's List: Counseling, Nutrition


Mar 16, 2002

Ted O'Brien, LAc, LN
Licensed Acupuncturist & Chinese Medicine Practitioner

Topic Acupuncture and nutrition in treating CFS and FMS; and the Jaffe-Mellor Technique
Address Center for Integrative Medicine
908 New Hampshire Ave #200,  Washington, DC 20037
and
Bethesda Acupuncture
4405 East West Highway #600, Bethesda MD 20814
Phone 202-833-5055 (Washington) and 301-655-1600 (Bethesda)
Fax  
Email TedOBrien@aol.com
Web http://www.bethesdaacupuncture.com/
Notes http://www.integrativemedicinedc.com/p606.html
- On our Practitioner's List

Aug 17, 2002

Tory Trocki and Carrie Zipper

Topic ELISA/ACT testing and Perque supplements
Address ELISA/ACT Biotechnologies LLC
14 Pidgeon Hill Drive, Suite 300;  Sterling, VA 20165
Phone 800-553-5472; 703-450-2980
Fax 703-450-2981
Email clientservices@elisaact.com
Web http://www.elisaact.com
Notes Meeting notes about ELISA/ACT

July 19, 2003

Ben Glass
Attorney at Law

Topic Long Term Disability
Address 3915 Old Lee Highway, Suite 22-B
Fairfax, VA 22030
Phone 703-591-9829
Fax 703-783-0686
Email ben@benglasslaw.com 
Web BenGlassLaw.com 
Notes Free booklet on LTD to VA, MD and DC residents, $25 to others:
"14 Ways to Guarantee that Your
Long-Term Disabilty Claim is Denied and You Lose in Court"

- On our Practitioners List


July 19, 2003

Sheri Abrams
Attorney at Law

Topic Social Security Disability
Address 3915 Old Lee Highway, Suite 22-A
Fairfax VA 22030
Phone 703-934-5450
Fax  
Email sheri@sheriabrams.com
Web www.sheriabrams.com 
Notes  On our Practitioner's List
- How To Win Your Case For Social Security Disability Benefits If You Suffer From Chronic Fatigue Syndrome and/or Fibromyalgia
- Social Security Disability FAQ


Oct 18, 2003

Patricia Ann Hellinger
Author

Topic Book: Hiatal Hernia & Chronic Fatigue Syndrome- And Many Other Diseases Healed Naturally Through the Power of Cause and Effect
Address Montana
Phone
Fax  
Email
Web
Notes  


Nov 1, 2003

Alex. Hosp

Kenny L. De Meirleir, MD, PhD
Professor of Physiology and Medicine
Vrije Universiteit Brussel, Brussels, Belgium

Topic Acclydine: A Therapeutic for Chronic Fatigue Syndrome?
Address Vrije Universiteit Brussel (The Free University of Brussels);  
Pleinlaan 2;  1050  Brussels, Belgium
Phone +32-2-6292222
Fax +32-2-6292876
Email Kenny.De.Meirleir@vub.ac.be
Web De Meirleir at Vrije Universiteit Brussel
Red Labs USA
Notes - Acclydine in Patients with Chronic Fatigue Syndrome
- Acclydine Protocol - OptiPharma bv (PDF)
- Advances in ME/CFS Testing & Treatment
- Book: Chronic Fatigue Syndrome: A Biological Approach
- CFS: Critical Reviews and Clinical Advances
- Value of exercise testing for predicting employment status in CFS
- Gen. joint hypermobility more common in CFS than controls, 2006
- Interview on Radio Liberty, April 30, 2002
- Journal of Chronic Fatigue Syndrome
- Recent Research by De Meirleir on Free University's Website
- Recent Research Pub Med Query
- RNase L Dysfunction Disorder (R.E.D.D.) in CFS
- On our Practitioners List



Nov 15, 2003

Margaret A. Chesney, PhD
Deputy Director
National Center for Complementary and Alternative Medicine

Topic Alternative and Complementary Medicine at NIH
Address National Center for Complementary & Alternative Medicine (NCCAM)
National Institutes of Health (NIH)
31 Center Drive, MSC 2182; Bethesda, MD 20892-2182
Phone 301-496-5825
Fax 301-594-6757
Email chesneym@mail.nih.gov
Web National Center for Complementary and Alternative Medicine
Notes - Margaret A. Chesney, Biography
- Life Stresses and Mind-Body Therapies
- Recent Research



March 20, 2004
Oct 16, 2004
Sept 17, 2005
June 17, 2006
Mar 17, 2007
May 10, 2008
Oct 26, 2008
Sept 5, 2009

Jonathan Gilbert, NCCAOM
Diplomate of Chinese Herbal Medicine & Acupuncture

The Gilbert Clinic

Topic Broadening Perspectives on Stress and Syndromes
with Elly Brosius
To Loudoun CFS and FM / Chronic Pain Seminar Group 9/5/09, in
Leesburg, VA. See Flyer
See Events
and
When Pushing Stops Working .com
Address Oak Lane Practice & 
The Gilbert Clinic
One Central Plaza, Suite 1205
11300 Rockville Pike, North Bethesda MD 20852-3003
Phone 866-546-0777;  301-230-2530
Fax 301-230-2535
Email info@thegilbertclinic.com
Web www.thegilbertclinic.com
Notes - Audio of Awareness Day Teleconference 2008
CFSupport Meeting Notes, Background, Links for Gilbert
- PDF-Effectiveness of Chinese Herbal Treatment for FM/CFS-Full 
- PDF-Effectiveness of Chinese Herbal Treatment for FM/CFS-Abstr
- Gilbert Article Excerpts (PDF)
- Q&A Perspective with 3 Gilbert Patients. Spr 06 CFIDS Chronicle
- On the Frontier, A New Model for Treating CFS and FM. Last page:    Treatment: Clinical Care for CFS Winter 06 CFIDS Chronicle
Y! Group GilbertClinicNews | Links - bios, articles, patient stories...
- When Sleep Goes Bad, March 2007
A documentary on The Learning Channel Featuring The Gilbert Clinic

- 2006: Finally, getting his zzz's. After coping with a sleep disorder, a Woodbridge man gets help from TV. Richmond Times-Dispatch.
- 2004: WebMD - IBS and Alternative Therapies
- 2003: Eastern Medicine Gains Ground In Region by Drew Bush
- Practices w/Janine Blackman MD/PhD & Anita Baines MS RN CS-P
Unique Traditional Chinese & Western FM Treatment Clinic Opens
- Our Practitioners List: Herbalist, Local Programs, National Clinics
-
June 2006 Event Flyer
- Chinese Medicine Gaining Respectability in West; FDA support for testing of botanical drugs helps boost credibility of ancient herbal treatments - SF Chronicle 06/2706. "One reason more patients and doctors are embracing traditional Chinese medicine is the reported success rate at treating "multisystemic" maladies, like fibromyalgia, chronic fatigue syndrome and chronic pain, which affect the brain as much as the body."

Articles by Jonathan Gilbert:
- Perspective on Integrative Treatment. In Spr 06 CFIDS Chronicle
-
FM Frontiers 2005 Vol 13 No 3: Breaking the Paradigm,
    Resolving the Causes, not just Managing The Symptoms

- FM Frontiers 2005 Vol 13 No 4:
   FM: Arresting The Cause, Eliminating The Symptoms (Part II)


Talk Titles:
6/2006: CFS & FM: States of Unrest
How chronic overwhelming stress gets you there,
possibilities for resolving symptoms.
 
3/2007: Herbal Brews & Evolving Views
Reuniting the Body & Mind in Fibromyalgia, CFS, & ME


April 17, 2004

Peter Bernad, MD
Neurologist

Topic A Holistic Approach to FM
Address Neurology Services Inc;
2112 F St NW #303; Washington, DC 20037-2754
10721 Main Street, # 200; Fairfax, VA 22030-6902
2616 Sherwood Hall Ln #201, Alexandria VA 22306
Phone 202-728-0099, 703-352-5861 or 703-360-3414 (Alex, VA)
Fax 202-638-7869 (DC) or 703-691-2690 (FF, VA) 
Email  
Web http://www.neuro-doc.com/
Notes Alexandria office has ANSAR and Sleep Center
- Neurotoxicology: A Clinical Sourcebook
- Closed-Head Injury: A Clinical Sourcebook
- On our Practitioners List

 

Feb 19, 2005

Deborah Barrett DePorter, CPCC, RCC
Author & Life Coach

Topic HeartMath - The Antidote for the Stresses of Everyday Life
Address CHANGE Associates, 126 Sulgrave Ct, Potomac Falls VA 20165
Phone 571-276-5528; 888-276-1359
Fax 703-450-9179
Email info@changeassociatescoaching.com
Web www.changeassociatescoaching.com
Notes Get Your Life Back: Overcoming Chronic Illness One Day at a Time.
Elly's Notes about HeartMath for Stress Reduction
- On Our Practitioners List

June 18, 2005

Kumunda Reddy, MD & J. Reddy, MD
Ayurvedic, Natural, and Holistic Doctor

Topic Ayurvedic Medicine for Chronic Illness
Address All Healthy Family, 5009 Paducah Road, College Park, MD 20740
Phone 1-866-REDDYMD; 1-301-474-2184
Fax  
Email www.allhealthyfamily.com/contact.html  
Web www.allhealthyfamily.com
Notes Book Conquering Chronic Disease Through Maharishi Vedic Medicine
On our Practitioners List


June 25, 2005

Lucinda (Cindy) Bateman, MD
Internal Medicine
Organization for Fatigue & FM Education and Research (OFFER)

Topic kNOw MORE CFS Kick Off Seminar w/ CFIDS Association
“Fatigue, fatigue or fatigue? Strategies for
Diagnosing and Managing Fatigue in CFS/FM
Special Date/Location: ASCE Bechtel Conference Center, Reston, VA.
# of Attendees: 141
Address 1002 E South Temple, Suite 408; Salt Lake City, UT 84102
Phone 801-359-7400 (Dr. Bateman); (801)328-8080 (OFFER)
Fax  
Email Support@OFFERUtah.org
Web http://www.offerutah.org/
Notes OFFER's About CFS
OFFER's About FM
CFIDS Association Spotlight on Cindy Bateman
DVD: Managing Fatigue. L. Bateman, MD. $10
On our Practitioners List
Treatment: Clinical Care for CFS 2005-2006 CFIDS Chronicle


June 25, 2005

Staci Stevens, MA
Exercise Physiologist

Topic kNOw MORE CFS Kick Off Seminar w/ CFIDS Association
“Activity Management: How to Do More With Less”
Special Date/Location: ASCE Bechtel Conference Center, Reston, VA.
# of Attendees: 141
Address Workwell, 601 Madsen Dr, Ripon, CA 95366
Phone (209) 599-7194
Fax  
Email
Web
Notes A Realistic Approach to Exercise for CFS Patients
Staci Stevens Chronic Fatigue Battle ('94)
Summer 2004 The CFIDS Chronicle:
When Working Out Doesn’t Work Out
Postexertional malaise, joint pain, crushing fatigue. There are lots of reasons why exercise is often a dirty word to people with CFIDS. Research suggests CFIDS patients may not get the oxygen they need during exercise. While a cookie-cutter approach to exercise doesn’t work, many PWCs can benefit from an analeptic exercise program.
By Dr. Christopher Snell, Dr. J. Mark Vanness and Staci Stevens
Treatment: Clinical Care for CFS 2005-2006 CFIDS Chronicle,
Sidebar: A New Definition of Exercise


Aug 20, 2005

Michael Jawer
Researcher and Author

Topic Environmental Sensitivity and Psi: Are They Linked?
Address Emotional Gateway Research Center, Vienna VA
Phone  
Fax  
Email emotionalgateway@hotmail.com
Web http://emotiongateway.com/
Notes - Winner of 14th D. Scott Rogo Award for Parapsychological Literature
- CFSupport Yahoo email about impending visit to Group, 8/20/05;
- CFSupport Yahoo email about psi definitions
- Press Release: A Neurobiology of Sensitivity?
- Environmental Sensitivity: Inquiry Into a Possible Link with Apparitional Experience by Michael Jawer. The Journal of the Society for Psychical Research 70(882): pp. 25-47
-
What Kind of People Feel too Much?
   CFS Article in Sept/Oct 2006 Spirituality and Health Magazine: 
- A Neurobiology of Sensitivity?
   Sentience as the Foundation of Unusual Conscious Perception

   Science & Consciousness Review - Jan 17, 2007
- How to scare up a happy, healthy Halloween day
   10/29/06 - nashuatelegraph.com
- 2009 Book:
The Spiritual Anatomy of Emotion:
How Feelings Link the Brain, the Body, and the Sixth Sense

Dec 17, 2005

Christel Libiot
Life Coach & Workshop Presenter

Topic Chose the Life YOU Want to Live!
Address P.O. Box 8, Cheltenham, MD 20623-0008
Phone 301-372-8718
Fax  
Email coachchristel@att.net
Web  
Notes - 2004 Rose Award, Woman Within International
- About Christel and the December 2005 Workshop
- Life Coaching Can Enrich Your Life (Oct. 2005)
- How Would Your Life Be Different? (Nov. 2005)
- Chose the Life You Want to Live (Dec. 2005)
- On Our Practitioners List

Table of Prior Speakers


May 20, 2006

Andrew Baer, MD, & Jina Kim

Topic Diet, Free Radicals, Anti-Oxidants, Carotenoids,
the Bi0Photonic® Scanner, and LifePak Supplements.
 
Address Anti-Aging Global
Phone 703-979-0302
Fax  
Email drbaer@mybigplanet.com
Web  www.drbaer.mypharmanex.com
Notes - Andy invites people to him for references, papers, etc.
- Abstract: Oxidative stress levels are raised in chronic fatigue syndrome and are associated with clinical symptoms. Kennedy, Spence, McLaren, Hill, Underwood, Belch Free Radic Biol Med. 2005 Sep 1;39(5):584-9.
CFS: Oxidative Stress and Dietary Modifications, Logan & Wong 2001, Alternative Medicine Review
- About Lester Packer, the world’s foremost antioxidant scientist
- Lester Packer is on Pharmanex Scientific Advisory Board 
http://www.pharmanexusa.com   (Scanner overview available here)
- http://www.nutritionfilecabinet.com/

Table of Prior Speakers



Oct 21, 2006

Janine Blackman MD, PhD
Family Practice. Integrative Medicine. Epidemiology.

Topic Applying Integrative Medicine to FM and CFS.
The Return of Soul to Medicine &
The Role of the Integrative Physician

Address

The Gilbert Clinic
One Central Plaza
11300 Rockville Pike, Suite 1205; North Bethesda, MD 20852

Phone 866-546-0777;  301-230-2530 
Fax 301-230-2535
Email info@thegilbertclinic.com
Web www.thegilbertclinic.com
Notes - CFSupport Meeting notes & handouts, more links for Dr. Blackman
-  2006: When They Ask, Tell - Experts urge full disclosure on alternative treatments (HealthDay News)
- 2006: On the Frontier, A New Model for Treating CFS and FM. Last page of: Treatment: Clinical Care for CFS The CFIDS Chronicle
- 2004 WebMD Article: IBS and Alternative Therapies
- 2003: MindBody Medicine, by J Blackman. Maryland Family Doctor
Y! Group GilbertClinicNews' Links - bios, articles, patient stories...
- WholeHealthMD.com Bio
- The Center for Mind Body Medicine - Certified Practitioners
- Bio at TGC, practices w/Gilbert & Bains
- Press Release: Blackman resigns UMD to Direct Unique FM Clinic
- When Sleep Goes Bad, March 2007
A documentary on The Learning Channel Featuring The Gilbert Clinic

- Our Practitioners List: Family Practice, Local Programs, National

Table of Prior Speakers


Jan 20, 2007

Chuck Fuller
Attorney at Law

Topic Private / Long Term Disability (LTD) insurance benefits. (ERISA)
Address McChesney & Dale, PC;  4000 Mitchellville Rd, Bowie MD 20716
Phone 301-805-6080
Fax 301-805-6086
Email chuck AT dalelaw.com
Web www.dalelaw.com/attorneys/fuller.htm
Notes - Meeting Handout: LTD Claims Overview of the Claims Process and Practical Considerations. Updated 2/16/07. (PDF)  
The LTD Claims Overview is provided by Chuck Fuller for information purposes only. He is neither agreeing to accept cases or represent people who review the document, nor is any information provided to be interpreted as legal advice about a specific case or claim.

- On our Practitioners List - Many member recommendations. Very familiar with chronic fatigue syndrome, fibromyalgia, and many other conditions requiring a skilled attorney.
- Concentrates in general litigation, with emphasis on personal injury, worker’s compensation, insurance coverage, ERISA, and products liability.  Also active in estates and trust practice.

Table of Prior Speakers


Mar 17, 2007

Anita Bains, MS, RN, CS-P
Psychotherapist
Board Certified Advanced Practice Registered Nurse

Topic Herbal Brews & Evolving Views
Reuniting the Body & Mind in CFS & FM
Mind-Body Spring Series Trifold PDF - color
Mind-Body Spring Series Trifold PDF - b/w
Address

The Gilbert Clinic
One Central Plaza
11300 Rockville Pike, Suite 1205; North Bethesda, MD 20852

Phone 866-546-0777;  301-230-2530 
Fax 301-230-2535
Email info@thegilbertclinic.com
Web www.thegilbertclinic.com
Notes - Nurses.com: Emotional Freedom Technique Shows Promise
   (interview with Anita Bains) March 2007

- When Sleep Goes Bad, March 2007
A documentary on The Learning Channel Featuring The Gilbert Clinic

- Anita's Awaken Your Potential Website
Y! Group GilbertClinicNews' Links - bios, articles, patient stories...
- Practices w/J. Gilbert NCCAOM and J. Blackman, MS RN CS-P
- Our Practitioners List: Counselors, Local Programs, National

Table of Prior Speakers

Mar 29, 2007
June 14, 2007

Oct 2, 2007
Oct 10, 2007

Alissa Lukara
President of Life Challenges.org;
Author of Riding Grace, A Triumph of the Soul; Former PWC

Topic Writing Grace Workshop—How writing Riding Grace transformed Alissa Lukara’s life and opened her to her life’s purpose.  How creative expression can help open you to your own.

October 10: Online, 6 Weeks


March 2007: Elly's Gratitude Group meets Alissa Lukara
June 14, 2007: Riding Grace Coast to Coast Teleconference
October 2, 2007: Writing Grace Teleconference
Address
Phone
Fax
Email info@ridinggrace.com
Web http://www.lifechallenges.org
http://www.ridinggrace.com
Notes - On our Book Page 2007
- Audio Recording from 6/14/07 Readings from Riding Grace


Table of Prior Speakers


April 5, 2007

Fred Friedberg, PhD
Author, PWC, Clinical & Research Psychologist
Topic A Lifestyle Balance Program for Less Pain and More Energy
Lecture & Book Signing
Books will not be available for sale.
Please purchase in advance.
Special Date/Time/Location:
Davis Library
6400 Democracy Blvd
Bethesda, MD
Time: 1:30 - 3 PM
In conjuction with Pain-Connection
Address PO Box 456
Kent, CT 06757
Phone 516-702-4213 (NY) and (860) 619-8069 (CT); Phone Consultations.
Fax 860-619-8069
Email info@lifebalance7.com
Web http://www.lifebalance7.com/
Notes - CFSupport Meeting notes & handouts, more links for Dr. Friedberg
- Article from 2007 with Elly Brosius:
   "When your Mind goes to Talk Therapy, is your Body Invited?"
On Practitioners List - Nationwide, On Practitioners List - Counselors
- On our Book Page 2006
- Department of Psychiatry & Behavioral Science, SUNY Stonybrook
- Recent books:

Table of Prior Speakers



April 21, 2007

Alan Pocinki, MD
Internal Medicine

Topic The cycle of pain, fatigue, poor sleep, and depression.
With extra detail about sleep.
Discussion will address the importance of treating all aspects of the cycle--sleep, pain, and depression--in order to improve fatigue. Helping one or two alone isn't enough--it's the holistic thing. You can't just fix one piece and expect the other pieces to fix themselves.  For sleep, and of course this applies equally to pain and other symptoms (and depending on time we can talk about them, too) I'll stress that different people have non-restorative sleep for different reasons, so sleep needs to be evaluated, eg with sleep study, to have the best chance of concocting an effective cocktail to improve it.
Address 2141 K St #606
Washington DC 20037
Phone (202) 223-2282
Fax  
Email  
Web http://www.alanpocinkimd.com/
Notes - CFSupport Meeting notes & handouts, more links for Dr. Pocinki
- On our Practitioners List
- Attended NoVA 2005 kNOw MORE CFS conference!

Dr Pocinki on the Web :
Speaker: March 10, 2007 kNOw More CFS Conference in NJ




Oct 11, 2007
Nov 14, 26, '07

Dec 2, 10 2007
Jan 9, 31 '08
Mar 1, 3 '08
May 10, '08
Oct 26, '08

Elly Brosius, MS
Facilitator
NoVA CFS/FMS Support Group

Northern Virginia MVPS/D and OI Support Group
Elly's Gratitude Group

Topic Making the Connection: Support and Self-Help
with Jonathan Gilbert, NCCAOM

Special dates and location in Maryland and Virginia: See Events
and
When Pushing Stops Working.com
Address
Phone see About Us page, link under notes.
Fax
Email cfsupport-owner@yahoogroups.com
Web http://geocities.datacellar.net/cfsnova
Notes - Audio of Awareness Day Teleconference 2008
- On our About Us Page, Information about Elly
Articles:
2007 "When your Mind goes to Talk Therapy, is your Body Invited?"
2007 "Secrets of a Long Standing Support Group"
2006 "EGGing Each Other On - From Incitement to Insight"
2002"Inclined to Recline: Tips for living with OI"
1999 "Pelvic Varicosities and Pelvic Pain"




Nov 8, 2007

Gary Kaplan, DO

Topic Fibromyalgia & Its Medical Treatments Q&A
Special Location, Date & Time- The Kaplan Clinic, noon, following a free screening of the film "Living with FM, A Journey of Hope and Understanding"
See Events
Address

The Kaplan Clinic
5275 Lee Hwy #200
Arlington VA 22207-1619

Phone (703) 532-4892
Fax
Email
Web www.kaplanclinic.com
Notes - Past president of the Medical Acupuncture Research Foundation.
- Anesthesiology-Pain Management, Acupuncture
- Osteopathic manipulative therapy, homeopathy, and mind-body work.
- What is Biotoxicity/Neurotoxicity?
- Our Practitioners List: Family Practice





Feb 16, 2008

James G. Binning, D.C.
Chiropractor

Topic Therapeutic Methods for FM/CFS
Address Chiropractic Center of Manassas, Inc.
Ambassador Square
7505 Presidential Lane
Manassas VA 20190
Phone (703) 257-0100
Fax
Email
Web http://www.spinedoc.us
Notes - On our Practitioners List
- CFSupport Page for Dr. Binning
Dr. Binning has a special interest in chronic pain, including fibromyalgia.





Jul 19, 2008

Joan Green, MA, CCC-SLP
Cognitive Rehabilitation

Topic The Use of Technology along with a holistic 'life participation' approach for FM/CFS
Address Innovative Speech Therapy
7731 Tuckerman Lane #206
Potomac, MD 20854
Phone (301) 602-2899, (800) IST-2550
Fax (301) 610-9234
Email Joan@innovativespeech.com
Web http://www.innovativespeech.com/
Notes - On our Practitioners List
- Author: Technology for Communication and Cognitive Treatment: The Clinician's Guide




Jan 17, 2008

Matth Hayat, PhD, NMQ
Integrative Whole Body Therapy

Topic Medical Qigong, Self-health Techniques
Address
Phone (301) 437-4966 appointment only
Fax
Email healing@martialsigning.com
Web http://www.martialsigning.com/healing.html
Notes Kiai Jin Jitsu - Instructor
Qigong for Self Health - Instructor
Master of Medical Qigong Therapy - Certified
Heart Centered Therapy
- On our Practitioners List








Mar 21, 2009
Chantilly, VA

Peter Rowe, MD
Sunshine Natural Wellbeing Foundation Professor of
Chronic Fatigue and Related Disorders,
Department of Pediatrics,
Johns Hopkins University School of Medicine.
Director, Chronic Fatigue Clinic,
Johns Hopkins Children's Center.

Topic
"Update on Orthostatic Intolerance in CFS (and FM)."



This talk will describe the links between disturbances in the control of blood pressure and heart rate in those with Chronic Fatigue Syndrome (CFS), and will discuss practical aspects of managing symptoms caused by the circulatory problems in CFS (and similar syndromes). 

Slides available to members in CFSupport Files Section
Address David M. Rubenstein Child Health Building
Room 2077
200 N. Wolfe Street
Baltimore, MD 21287
Phone  
Fax (410) 955-9229
Email prowe@jhmi.edu
Web http://www.hopkinschildrens.org/staffDetail.aspx?id=3226
Notes Dr. Rowe directs the Chronic Fatigue Clinic at Hopkins Children’s. His work first identified the relationship between chronic fatigue syndrome (CFS) and treatable orthostatic intolerance syndromes, and first reported the association between Ehlers-Danlos syndrome and CFS. He has been interested in the association between orthostatic intolerance and upper gastrointestinal symptoms, fatigue in cancer survivors, fatiguing illnesses in Gulf War veterans, and fatigue in athletes.
- NOVA/CFSupport Page about Dr. Rowe
- kNOw More CFS Presenter Fall 2005
General Information Brochure on Orthostatic Intolerance
    and Its Treament (27 page PDF)

- CFSupport Y! email "Dr. Rowe is one of my medical heros" by Toni
- CFSupport Y! email "More [Dr. Rowe] stories" by Elly
- On Practitioners List: Beyond DC, Dysautonomia, Adolescents Only



April 4, 2009
Leesburg, VA

Brian T. Walitt, MD
Assistant Professor of Medicine
Georgetown University Medical Center
Associate Director, Section of Rheumatology

Topic Fibromyalgia 201
To Loudoun CFS and FM/Chronic Pain Seminar Group
Address Washington Hospital Center
110 Irving Street, NW
Washington, DC 20010
Phone (202) 877-8535
Fax (202) 877-6130
Email
Web http://www.whcenter.org/body.cfm?id=555824
Notes - On our Practitioners List in Rhematology
- Meet-the-Experts Program Panel Memeber, 2008: "Case Studies in Fibromyalgia: Connecting the Dots from Diagnosis to Pain Management"
- First Author: Automated neuropsychiatric measurements of information processing in fibromyalgia




April 25, 2009
Fairfax, VA

Paul R. Cheney, MD, PhD
Director of The Cheney Clinic

Topic

Chronic Fatigue Syndrome:  
Is Oxygen the Problem and Why? 
A Four-Part Treatment Protocol

CFSupport's page for this event
   including DVD ordering, attendee comments, more web links


Address The Cheney Clinic
P.O. Box 15675
Asheville NC 28813-0675
Phone (828) 274-6665
Fax (828) 274-6917
Email
Web http://www.CheneyResearch.com 
http://www.CheneyClinic.com
Notes - CFSupport's page about Dr. Cheney and this event
   including DVD ordering, attendee comments, more web links

- Article: Oxygen Toxicity as a Locus of Control for CFS
- Article: Cell Associated Therapy for CFS: Is this the Next Frontier?
- On our Practitioners List under "Beyond DC"
- Phoenix Rising's "The Cheney Files"
CFS/FM Support Group of Dallas Fort Worth page on Dr. Cheney
    includes artilces, interviews and treatment protocols.


FUTURE FIRST TIME SPEAKERS




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Updated April 28, 2009
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